My CT scan results are good and there has been a tiny bit of shrinkage. However there has been some tethering of the bowel and some thickening in something called the jejunum. I have been told I must keep on top of my bowels to prevent any blockages.
My heart EF has continued to drop and it’s now borderline for the study. However because my CT scan results are generally so positive they have decided to keep me on the trial for another 4 weeks redo my echo then decide next month. If it does fall it will be a break then possibly another dose reduction.
The results were more or less what I was expecting. My magnesium levels are slightly low so I have been prescribed some magnesium tablets. I asked if this explains my recent cramps but was told I shouldn’t really notice. However my trials nurse conceded I was a bit more ‘sensitive’ 😇
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ScardyCat40
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Good news....what do they mean by keeping on top of your bowels exactly(! ? Perhaps having to think about your mum has been a blessing in disguise! Well done!!!
Making sure I am going everyday by taking stool softeners regularly I also have the option of adding in a prokinetic as well to help food pass through my digestive system
Oh yes a right barrel of laughs. I think it’s just a consequence of living long term with this disease you can get adhesions and things start to stick together so over the years my bowels have become sluggish
The shrinkage is excellent news and the trial news is excellent too. Keep those pesky bowels in good working order and keep as well as you possibly can be, thank you for sharing your news with us ❤️Xx Jane
I have sensitivity to chemo and have it over 2 days. I get terrible restless leg syndrome which makes it impossible to sleep and dr's said low magnesium levels are the cause, I have to have regular infusions which seem to work.
Good luck with them. I had some huge ones as an in-patient. In the outside world it took a while to find some which didn’t upset my stomach.
I seem to get terrible muscle cramps during and for months after chemo - I take a powdered magnesium supplement which seems to do the trick, it's vaguely lemon flavoured so not too disgusting.
I also have many issues with bowel thickness, I have to take meds, very constipated and have cramps on occasion doc says from IP chemo intraperitoneal chemotherapy. But it worked and I'm still here. All's good. Best wishes, Liz
I think some of it is scar tissue from surgery and the cancer causes inflammation which can cause scarring. When you live with cancer for many years as some of us do then these things just become more of an issue
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