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Mycophenolate
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Methotrexate and Mycophenolate together?
I’ve been on
Mycophenolate
for over a decade but in recent years it’s less effective and I am trying to find a way to better manage my lupus.
I’ve been on
Mycophenolate
for over a decade but in recent years it’s less effective and I am trying to find a way to better manage my lupus.
ShannonB
in
LUPUS UK
2 years ago
Any one else.
Has anyone else been on
mycophenolate
mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone else have bad constipation on the combination of urso,
mycophenolate
and budesonide.
Has anyone else been on
mycophenolate
mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone else have bad constipation on the combination of urso,
mycophenolate
and budesonide.
Alley27
in
PBC Foundation
2 years ago
EGPA still not under control despite
After a hospital admission 18 months ago
mycophenolate
to little effect was added and this was increased by 50% for the last 6wks. I am still needing regular large courses of steroids to control things. Specialist now talking of adding rituxumab.
After a hospital admission 18 months ago
mycophenolate
to little effect was added and this was increased by 50% for the last 6wks. I am still needing regular large courses of steroids to control things. Specialist now talking of adding rituxumab.
ElaineRH
in
Vasculitis UK
2 years ago
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Methotrexate and Blood tests?
I’m currently trialing methotrexate as an alternative to
mycophenolate
(which I have taken for years but has stopped being effective in managing my lupus.) My bloods, which are normally very normal (even lupus is often seronegative), are starting to show up out of range on a few measures.
I’m currently trialing methotrexate as an alternative to
mycophenolate
(which I have taken for years but has stopped being effective in managing my lupus.) My bloods, which are normally very normal (even lupus is often seronegative), are starting to show up out of range on a few measures.
ShannonB
in
LUPUS UK
2 years ago
Skin problems
I am on the usual meds like prednisolone and 2.5grams of
mycophenolate
amongst a host of others! My problem at the moment is I’m getting loads of skin tags and warts. I mean hundreds of them. They are around my eyes and on my chest mainly.
I am on the usual meds like prednisolone and 2.5grams of
mycophenolate
amongst a host of others! My problem at the moment is I’m getting loads of skin tags and warts. I mean hundreds of them. They are around my eyes and on my chest mainly.
Dave34
in
Vasculitis UK
2 years ago
Lupkynis Approved in UK to Treat Adults With Active Lupus Nephritis
Participants in both groups were also given standard anti-inflammatory medications (
mycophenolate
mofetil and low-dose corticosteroids) during the study, and safety outcomes were comparable in both groups.
Participants in both groups were also given standard anti-inflammatory medications (
mycophenolate
mofetil and low-dose corticosteroids) during the study, and safety outcomes were comparable in both groups.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Pain and stiffness - menopause or something else?
I was put on pred,
mycophenolate
and alendronic acid for 2 years in 2008 after several strokes and many tests which concluded in a diagnosis of primary (cerebral) vasculitis. I recovered exceptionally well and still take blood thinners now.
I was put on pred,
mycophenolate
and alendronic acid for 2 years in 2008 after several strokes and many tests which concluded in a diagnosis of primary (cerebral) vasculitis. I recovered exceptionally well and still take blood thinners now.
U06334
in
PMRGCAuk
2 years ago
Pain tolerable or 100% relief?
I didn’t tolerate MTX and although on
Mycophenolate
I’m not convinced that it helps. Best wishes to you all.
I didn’t tolerate MTX and although on
Mycophenolate
I’m not convinced that it helps. Best wishes to you all.
Vanillaslice
in
PMRGCAuk
2 years ago
Mycophenolate mental side effects
I've been back on
Mycophenolate
for around six months now and am beginning to suspect that it's causing insomnia and a bad feeling of agitation/stress that is quite difficult to cope with.
I've been back on
Mycophenolate
for around six months now and am beginning to suspect that it's causing insomnia and a bad feeling of agitation/stress that is quite difficult to cope with.
Choccy8
in
LUPUS UK
2 years ago
European Commission OKs Lupkynis for Active Lupus Nephritis
Participants in both groups also received treatment with standard anti-inflammatory medications (
mycophenolate
mofetil and low-dose corticosteroids).
Participants in both groups also received treatment with standard anti-inflammatory medications (
mycophenolate
mofetil and low-dose corticosteroids).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Noticed shaky hands and fingers
She's on Prednisolone since 2020 (tapered to 5mgs at the moment)
Mycophenolate
and also medications for her PH. Just finished 2 doses of Biologic infusion. Wondering if anyone has problem with shaking hands/finger problems and also a very hard bloated stomach(looking like 8mths pregnant!)
She's on Prednisolone since 2020 (tapered to 5mgs at the moment)
Mycophenolate
and also medications for her PH. Just finished 2 doses of Biologic infusion. Wondering if anyone has problem with shaking hands/finger problems and also a very hard bloated stomach(looking like 8mths pregnant!)
Wangpaupau
in
NRAS
2 years ago
Stopping Prednisone
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
peregrin
in
Kidney Transplant
2 years ago
The best of three evils: Which medication will cause me least grief?
APO-
Mycophenolate
, Esbriet (Pirfenidone), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking
mycophenolate
during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
APO-
Mycophenolate
, Esbriet (Pirfenidone), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking
mycophenolate
during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
Sclero_99
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Medication on GPA
Im on 4 500mg
mycophenolate
daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole.
Im on 4 500mg
mycophenolate
daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole.
Mingtai
in
Vasculitis UK
2 years ago
Mycophenolate
My consultant is quite keen on increasing me from 1000mg to 1500mg. Anybody had good results from increasing to this? I’m worried about hair loss, chills and being more vulnerable to covid-19.
My consultant is quite keen on increasing me from 1000mg to 1500mg. Anybody had good results from increasing to this? I’m worried about hair loss, chills and being more vulnerable to covid-19.
LilyMistri2
in
LUPUS UK
2 years ago
Cytoxan(Cyclophosphamide
With the latest cocktail of meds, (prednisone,
mycophenolate
and Rituxan) his doctor thought the encephalitis would show improvement or be totally gone by now. His doctor is talking about taking him off
mycophenolate
and Rituxan and add infusions of Cytoxan.
With the latest cocktail of meds, (prednisone,
mycophenolate
and Rituxan) his doctor thought the encephalitis would show improvement or be totally gone by now. His doctor is talking about taking him off
mycophenolate
and Rituxan and add infusions of Cytoxan.
NebraskaTexas
in
Encephalitis International
2 years ago
Medication advice mycophenolate
mycophenolate
Advise please My daughter had HUVS and possible lupus She’s on hydroxychloroquine 200 mg and
mycophenolate
1000 mg Fexofenadine 360mg She’s now developed very sore ulcers all over her tongue, and back of her throat. My question is this likely to be a side effect to her meds?
mycophenolate
Advise please My daughter had HUVS and possible lupus She’s on hydroxychloroquine 200 mg and
mycophenolate
1000 mg Fexofenadine 360mg She’s now developed very sore ulcers all over her tongue, and back of her throat. My question is this likely to be a side effect to her meds?
Sarah-38
in
Vasculitis UK
3 years ago
Lupus and stress
I've even switched from Methotrexate to
Mycophenolate
in this time, and now am up to 3grams myco a day from 2grams. However, they have reiterated that all the medicine in the world will not make the same difference that reducing my stress levels would.
I've even switched from Methotrexate to
Mycophenolate
in this time, and now am up to 3grams myco a day from 2grams. However, they have reiterated that all the medicine in the world will not make the same difference that reducing my stress levels would.
eescvc
in
LUPUS UK
2 years ago
Lupus Nephritis and Cyclophosphamide
They're hoping to move me onto
mycophenolate
or rituximab once I'm done with the chemotherapy. My self esteem and body image are rock bottom at this point 😪.
They're hoping to move me onto
mycophenolate
or rituximab once I'm done with the chemotherapy. My self esteem and body image are rock bottom at this point 😪.
CPower
in
LUPUS UK
2 years ago
Alternative treatments for AIH
Are there alternative medications for AIH (ie other than Azathioprine &
Mycophenolate
)?
Are there alternative medications for AIH (ie other than Azathioprine &
Mycophenolate
)?
2longdogs
in
British Liver Trust
3 years ago
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