EGPA still not under control despite

[ElaineRH]

I have EGPA and been on benralizumab for 2 years which has controlled the production of eosinophils but EGPA was still very active. After a hospital admission 18 months ago mycophenolate to little effect was added and this was increased by 50% for the last 6wks. I am still needing regular large courses of steroids to control things. Specialist now talking of adding rituxumab. But I am concerned about the possibility damage that may happen from rituxumab . My lung function off steroids is only 25-30% so any further decrease would not be good. Anyone else had issues with rituxumab and lung issues for EGPA?

[agary]

Has your doctor tried Fasenra?

[ElaineRH in reply to agary]

Hi, thanks for your reply- I'm on Fensara (benralizumab) - have been for the couple of years. Its stopped the production of Eosinophils but not the extreme inflammation on the blood vessels .... which is what causes most of my problems ...