Cytoxan(Cyclophosphamide

[NebraskaTexas]

Hello to All,

My husband had an appointment with his neurologist today. The latest MRI indicates he still has Encephalitis. With the latest cocktail of meds, (prednisone, mycophenolate and Rituxan) his doctor thought the encephalitis would show improvement or be totally gone by now.

His doctor is talking about taking him off mycophenolate and Rituxan and add infusions of Cytoxan.

I was wondering if anyone has had experience with Cytoxan.

On a brighter note, we have a new member to our family. Her name is Bella. Bella adds life and joy to our home and takes our minds off our problems. Our other dog a Rat Terrier named Little Bit and our 2 cats, Kitty and KitKat are adjusting slowly. I have included a picture of Bella.

Thanks again for everyone posting their experience on this sight. Your experiences helps me immensely as a caregiver.

Nebraska/Texas

[Gandalf2]

Hi Nebraska, I don't know if you have made any progress with Cytoxan information. I haven't been prescribed it but I am on a similar drug called 'prednisolone', - many side effects, it seems you can't take an immune suppressant without them.

Here is a reputable site that provides plenty of information on a complete range of drugs including Cytoxan, including reviews from various patients.

drugs.com/comments/cyclopho...

Good luck!

[NebraskaTexas in reply to Gandalf2]

Thanks Gandalf2 for your help. I did not know about this website. I found it very helpful.

[Gandalf2 in reply to NebraskaTexas]

Hi Nebraska, thank you for getting back. I found the website very good too - more detailed than the leaflets that come with the medication and the reviews are very helpful. Good luck with your husband's recovery - it's a long road but things do improve and summer is on its way. Best Wishes G2

[jujumello82]

Hi there,

The Cytoxan was the only med that was able to control my partners autoimmune encephalitis. They tried everything… 2 weeks after the first treatment we started to see improvements. He had to do 3 rounds.

Best

J

[NebraskaTexas in reply to jujumello82]

Thanks Jujumello82. Thanks for letting me know your partner had this drug and it helped. My husband has been through all the other treatments and this will be the next and hopefully the last one. Regards,