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Mycophenolate
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rituximab nerves!
i will still be on
mycophenolate
x3 a day afterwards- how restricted will i have to be in my life, how restricted are others?
i will still be on
mycophenolate
x3 a day afterwards- how restricted will i have to be in my life, how restricted are others?
maeows
in
LUPUS UK
1 year ago
HAPPY NEW YEAR
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids, Rituximab,
Mycophenolate
Mofetil and plenty more besides.
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids, Rituximab,
Mycophenolate
Mofetil and plenty more besides.
Anthonyh7
in
ITP Support Association
6 months ago
Itchy skin
I take
mycophenolate
, hydroxychloroqunine, Topirimate, pregablin, propanolol and folic acid , nothing has really changed tablet wise in a while . I use paracetamol for pain . I have tried dipribase cream but there is no rash just itch , itch , i could take my skin off !
I take
mycophenolate
, hydroxychloroqunine, Topirimate, pregablin, propanolol and folic acid , nothing has really changed tablet wise in a while . I use paracetamol for pain . I have tried dipribase cream but there is no rash just itch , itch , i could take my skin off !
Maddymay65
in
LUPUS UK
1 year ago
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Uveitis treatment opinion please
Take 2 g of
mycophenolate
( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ? I'm favoring biologicals more as
mycophenolate
is the same family as methotexrate( although supposed to be stronger than MTX) , which hasn't worked for me. Many thanks
Take 2 g of
mycophenolate
( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ? I'm favoring biologicals more as
mycophenolate
is the same family as methotexrate( although supposed to be stronger than MTX) , which hasn't worked for me. Many thanks
Udupik
in
Vasculitis UK
1 year ago
Mycophenolate - Anyone know anything good/bad about this drug.
So I'm now being asked to go onto
Mycophenolate
& having read up a little about it I don't like the sound of it's possible side effects. Has anyone taken this drug, or know anything about it, as I'd be very grateful to hear of anyones experience or knowledge of it.
So I'm now being asked to go onto
Mycophenolate
& having read up a little about it I don't like the sound of it's possible side effects. Has anyone taken this drug, or know anything about it, as I'd be very grateful to hear of anyones experience or knowledge of it.
Purpleprimate
in
PMRGCAuk
1 year ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
., the European Union, and the U.K. for adults with active lupus nephritis when given along standard-of-care treatments that include
mycophenolate
mofetil and low-dose corticosteroids.
., the European Union, and the U.K. for adults with active lupus nephritis when given along standard-of-care treatments that include
mycophenolate
mofetil and low-dose corticosteroids.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Mycophenolate trial?
Hi, I've been invited to take part in a drug trial of
mycophenolate
in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH.
Hi, I've been invited to take part in a drug trial of
mycophenolate
in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH.
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Methotrexate for the summer
He also encouraged me to try
Mycophenolate
or Azathioprine and ended up prescribing me Myfortic . I was due to start it last Sunday but really didn’t have a good feeling about it when, apart from the unsightly rash from head to toe, I felt the best I’ve been in about 2 years.
He also encouraged me to try
Mycophenolate
or Azathioprine and ended up prescribing me Myfortic . I was due to start it last Sunday but really didn’t have a good feeling about it when, apart from the unsightly rash from head to toe, I felt the best I’ve been in about 2 years.
Spotty-ewe
in
LUPUS UK
1 year ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
Findings suggested that Lupkynis helped preserve kidney function when given alongside
mycophenolate
mofetil and low-dose steroids (well-established anti-inflammatory therapies for lupus), without substantially increased safety risks.
Findings suggested that Lupkynis helped preserve kidney function when given alongside
mycophenolate
mofetil and low-dose steroids (well-established anti-inflammatory therapies for lupus), without substantially increased safety risks.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
., European Union, and the U.K. as an oral treatment for adults with active lupus nephritis when combined with background immunosuppressant therapy, including
mycophenolate
mofetil and corticosteroids.
., European Union, and the U.K. as an oral treatment for adults with active lupus nephritis when combined with background immunosuppressant therapy, including
mycophenolate
mofetil and corticosteroids.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
IPF or idiopathic ILD?
I'm conscious there can be serious implications if they have this wrong as certain drugs used for ILD (like
mycophenolate
mofetil, which I'm on) can actually do damage to people with IPF. Grateful for any thoughts or advice anyone has to share. TIA.
I'm conscious there can be serious implications if they have this wrong as certain drugs used for ILD (like
mycophenolate
mofetil, which I'm on) can actually do damage to people with IPF. Grateful for any thoughts or advice anyone has to share. TIA.
Oteneko
in
Lung Conditions Community Forum
1 year ago
NICE recommends voclosporin to treat lupus nephritis
NICE have made a recommendation to the NHS that a new treatment, voclosporin, can be used in combination with
mycophenolate
mofetil (MMF) to treat some patients with lupus nephritis. This is only the second treatment developed specifically for lupus to be approved in within the UK. Exciting stuff!
NICE have made a recommendation to the NHS that a new treatment, voclosporin, can be used in combination with
mycophenolate
mofetil (MMF) to treat some patients with lupus nephritis. This is only the second treatment developed specifically for lupus to be approved in within the UK. Exciting stuff!
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Mycophenolate
Hi all I have Hypersensitivity Pneumonitis Interested to know how others get on with
Mycophenolate
?
Hi all I have Hypersensitivity Pneumonitis Interested to know how others get on with
Mycophenolate
?
Tawny10
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Is it possible to request for a particular brand of medication
I get my medications(
Mycophenolate
and Hydroxycloroquine) from my rheumatology team. And I get other medications from my GP. Please I need help on what to do. Thanks.
I get my medications(
Mycophenolate
and Hydroxycloroquine) from my rheumatology team. And I get other medications from my GP. Please I need help on what to do. Thanks.
LittleAngle
in
LUPUS UK
1 year ago
Mycophenolate & nausea
Hi i take
Mycophenolate
along with other things for hypersensitivity pneumonitis they increased my dose to 750mg twice per day around 3 weeks ago but i can’t cope with the nausea 🤢does anybody take this and have any tips before i give up with them? or is there an alternative medication?
Hi i take
Mycophenolate
along with other things for hypersensitivity pneumonitis they increased my dose to 750mg twice per day around 3 weeks ago but i can’t cope with the nausea 🤢does anybody take this and have any tips before i give up with them? or is there an alternative medication?
Nicolefre
in
Lung Conditions Community Forum
1 year ago
SLE and disk surgery
Having to come off
mycophenolate
for week before and week after and I know if I miss a dose it catches up a day later currently. Any advice appreciated for recovery 🫶
Having to come off
mycophenolate
for week before and week after and I know if I miss a dose it catches up a day later currently. Any advice appreciated for recovery 🫶
Kelbol1
in
LUPUS UK
1 year ago
Polymyositis with visible swelling
So no treatment other than Steroids, (
mycophenolate
tried but did not work). Thought i would reach out to see if anyone here had any advice or similar situation. Thank you in Advance for your Kindness
So no treatment other than Steroids, (
mycophenolate
tried but did not work). Thought i would reach out to see if anyone here had any advice or similar situation. Thank you in Advance for your Kindness
Angebuck
in
Myositis UK
10 months ago
Scalp & Feet
hello to all, I am still at the relative early stages of my scleroderma journey and beginning to notice red patches on my scalp and feet that come and go - I am never to sure if this is disease related or medication side effects (
mycophenolate
& prednisolone).
hello to all, I am still at the relative early stages of my scleroderma journey and beginning to notice red patches on my scalp and feet that come and go - I am never to sure if this is disease related or medication side effects (
mycophenolate
& prednisolone).
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Switch from MMF to Mycophenolic Acid
Hello, readers, I am 2 years post-transplant, and after many months of suffering from abdominal pain post-eating, my nephrologist at the transplant center agreed to switch me from MMF to Mycophenolic Acid, 360 mg twice daily. Within a week, my GI symptoms had almost completely disappeared, and I
Hello, readers, I am 2 years post-transplant, and after many months of suffering from abdominal pain post-eating, my nephrologist at the transplant center agreed to switch me from MMF to Mycophenolic Acid, 360 mg twice daily. Within a week, my GI symptoms had almost completely disappeared, and I
6821green
in
Kidney Transplant
11 months ago
Brother in hospital with pulmonary fibrosis
He was on
mycophenolate
but the side effects were intolerable. I'm so worried. I think he has been protecting me re the severity of his condition. Google has been my friend but the information was not very positive. Decided to speak to his consultant and now feeling devastated.
He was on
mycophenolate
but the side effects were intolerable. I'm so worried. I think he has been protecting me re the severity of his condition. Google has been my friend but the information was not very positive. Decided to speak to his consultant and now feeling devastated.
nomoreibsc
in
Lung Conditions Community Forum
1 year ago
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