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Experiences with
Mycophenolate
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Link with Scleroderma and Cholesterol
Hi all - I’m on
mycophenolate
last 6 months and have noticed my cholesterol levels slowly rising. Really careful with my diet. Does anyone have the same issue? What tips do you have to manage this? I also have acid reflux, Do you think this is connected too? Thanks
Hi all - I’m on
mycophenolate
last 6 months and have noticed my cholesterol levels slowly rising. Really careful with my diet. Does anyone have the same issue? What tips do you have to manage this? I also have acid reflux, Do you think this is connected too? Thanks
SDJ31
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Mycophenolate
Hi there I have limited scleroderma and I have been asked if I want to go on a trial study for
Mycophenolate
. Just wondering if anyone is on this drug and the side effects of it. Or if anyone is on the minimise trial and how you are getting on with the trial drug. Thank you
Hi there I have limited scleroderma and I have been asked if I want to go on a trial study for
Mycophenolate
. Just wondering if anyone is on this drug and the side effects of it. Or if anyone is on the minimise trial and how you are getting on with the trial drug. Thank you
HansaSRUK
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
new myocarditis MRI results; what now?
The doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or
mycophenolate
(also known in the
The doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or
mycophenolate
(also known in the
Britomartis29
in
British Heart Foundation
8 months ago
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Mycophenolate or Azathioprine ?
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either
Mycophenolate
or Azathioprine, both or which are immunosuppressants.
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either
Mycophenolate
or Azathioprine, both or which are immunosuppressants.
Spotty-ewe
in
LUPUS UK
1 year ago
Feet pain ( metatarsalgia?)
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and
mycophenolate
1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions?
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and
mycophenolate
1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions?
Melaxx
in
LUPUS UK
1 year ago
Rituximab questions
Hi everyone, I have been on Methotrexate,
Mycophenolate
Mofetil, Prednisolone and many others for the past 2 years for Vasculitis GPA.
Hi everyone, I have been on Methotrexate,
Mycophenolate
Mofetil, Prednisolone and many others for the past 2 years for Vasculitis GPA.
Wyllow
in
Vasculitis UK
11 months ago
Trying holistic Nutrition Approach for scleroderma
Few weeks later I got a call saying they wanted to give my some steroid infusion and then
mycophenolate
as a maintenance but would only be very low dose. Nurse rang to tell side effects which was she said was just basic.
Few weeks later I got a call saying they wanted to give my some steroid infusion and then
mycophenolate
as a maintenance but would only be very low dose. Nurse rang to tell side effects which was she said was just basic.
Sus22
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
infusion of steroid and mycophenolate
Then put me on
mycophenolate
. As I am type 2 diabetic am quite worried as to having the steroid as I’ve read it can shoot sugar levels up. Am also worried about side effects both of steroid and mycophenalate. Just wondered if anyone else is diabetic and has had on going through these treatments.
Then put me on
mycophenolate
. As I am type 2 diabetic am quite worried as to having the steroid as I’ve read it can shoot sugar levels up. Am also worried about side effects both of steroid and mycophenalate. Just wondered if anyone else is diabetic and has had on going through these treatments.
Sus22
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Egg harvesting and mycophenolate/hydroxychloroquine
I am currently on hydroxychloroquine and transitioning to
mycophenolate
in May.
I am currently on hydroxychloroquine and transitioning to
mycophenolate
in May.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Liver problems
I'm in hospital atm, and consultant initially thought I had cholecystitis, but that doesn't appear to be the case although the presentation certainly looked that way.Theyve stopped my
Mycophenolate
as that may be causing the liver problem, but I've already tried Methotrexate and Leflunomide without
I'm in hospital atm, and consultant initially thought I had cholecystitis, but that doesn't appear to be the case although the presentation certainly looked that way.Theyve stopped my
Mycophenolate
as that may be causing the liver problem, but I've already tried Methotrexate and Leflunomide without
Phoebess
in
PMRGCAuk
1 year ago
cutaneous lupus
Hi, is anyone taking the immunosuppressant
mycophenolate
for cutaneous lupus /discoid lupus ? If so, has it worked and what side effects ? Many thanks
Hi, is anyone taking the immunosuppressant
mycophenolate
for cutaneous lupus /discoid lupus ? If so, has it worked and what side effects ? Many thanks
Nellons
in
LUPUS UK
1 year ago
Update on CT coronary angiogram - totally confused by results, anyone had this experience?
lower limits of normal with an injection fraction of around 50% • Methotrexate – 20mg a week – increased from 15mg per week from September 2022 (started on Monday 22nd March 2021 – 15mg a week) • Folic Acid 5mg, every day except day when I take methotrexate • 400mg Hydroxychloroquine daily • 2g
Mycophenolate
lower limits of normal with an injection fraction of around 50% • Methotrexate – 20mg a week – increased from 15mg per week from September 2022 (started on Monday 22nd March 2021 – 15mg a week) • Folic Acid 5mg, every day except day when I take methotrexate • 400mg Hydroxychloroquine daily • 2g
Mycophenolate
Wendy39
in
LUPUS UK
9 months ago
rituximab nerves!
i will still be on
mycophenolate
x3 a day afterwards- how restricted will i have to be in my life, how restricted are others?
i will still be on
mycophenolate
x3 a day afterwards- how restricted will i have to be in my life, how restricted are others?
maeows
in
LUPUS UK
1 year ago
Itchy skin
I take
mycophenolate
, hydroxychloroqunine, Topirimate, pregablin, propanolol and folic acid , nothing has really changed tablet wise in a while . I use paracetamol for pain . I have tried dipribase cream but there is no rash just itch , itch , i could take my skin off !
I take
mycophenolate
, hydroxychloroqunine, Topirimate, pregablin, propanolol and folic acid , nothing has really changed tablet wise in a while . I use paracetamol for pain . I have tried dipribase cream but there is no rash just itch , itch , i could take my skin off !
Maddymay65
in
LUPUS UK
1 year ago
Carpets or hardwood
Restarted my
Mycophenolate
last night after a weeks pause due to back pain. Hopefully all well on restart!
Restarted my
Mycophenolate
last night after a weeks pause due to back pain. Hopefully all well on restart!
Blyth1
in
Lung Conditions Community Forum
6 months ago
Uveitis treatment opinion please
Take 2 g of
mycophenolate
( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ? I'm favoring biologicals more as
mycophenolate
is the same family as methotexrate( although supposed to be stronger than MTX) , which hasn't worked for me. Many thanks
Take 2 g of
mycophenolate
( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ? I'm favoring biologicals more as
mycophenolate
is the same family as methotexrate( although supposed to be stronger than MTX) , which hasn't worked for me. Many thanks
Udupik
in
Vasculitis UK
1 year ago
Mycophenolate trial?
Hi, I've been invited to take part in a drug trial of
mycophenolate
in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH.
Hi, I've been invited to take part in a drug trial of
mycophenolate
in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH.
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Mycophenolate - Anyone know anything good/bad about this drug.
So I'm now being asked to go onto
Mycophenolate
& having read up a little about it I don't like the sound of it's possible side effects. Has anyone taken this drug, or know anything about it, as I'd be very grateful to hear of anyones experience or knowledge of it.
So I'm now being asked to go onto
Mycophenolate
& having read up a little about it I don't like the sound of it's possible side effects. Has anyone taken this drug, or know anything about it, as I'd be very grateful to hear of anyones experience or knowledge of it.
Purpleprimate
in
PMRGCAuk
1 year ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
., the European Union, and the U.K. for adults with active lupus nephritis when given along standard-of-care treatments that include
mycophenolate
mofetil and low-dose corticosteroids.
., the European Union, and the U.K. for adults with active lupus nephritis when given along standard-of-care treatments that include
mycophenolate
mofetil and low-dose corticosteroids.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
HAPPY NEW YEAR
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids, Rituximab,
Mycophenolate
Mofetil and plenty more besides.
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids, Rituximab,
Mycophenolate
Mofetil and plenty more besides.
Anthonyh7
in
ITP Support Association
5 months ago
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