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Mycophenolate
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Mycophenolate
The consultant is considering switching Methotrexate to
Mycophenolate
. Does anyone have any experience of this drug? Many thanks
The consultant is considering switching Methotrexate to
Mycophenolate
. Does anyone have any experience of this drug? Many thanks
Mandyi
in
PMRGCAuk
7 months ago
Constant, crippling nausea: gastroparesis
Hi all, I have Dssc and medicated x2 twice daily
mycophenolate
which I've been on for about a year.
Hi all, I have Dssc and medicated x2 twice daily
mycophenolate
which I've been on for about a year.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Is this GCA? My first post here.
I take methotrexate,
mycophenolate
mofetil, Hydroxychloroquine and Mepacrine, plus Amitriptyline and omeprazole. Please photos below. Thank you in advance. Wendy
I take methotrexate,
mycophenolate
mofetil, Hydroxychloroquine and Mepacrine, plus Amitriptyline and omeprazole. Please photos below. Thank you in advance. Wendy
Wendy39
in
PMRGCAuk
10 months ago
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Marginal zone lymphoma
I refused steroids as I listen to my gut instinct, but was started on
mycophenolate
. As teams carried on investigating what was going on further scans were showing nodules were disappearing themselves. Which was great.
I refused steroids as I listen to my gut instinct, but was started on
mycophenolate
. As teams carried on investigating what was going on further scans were showing nodules were disappearing themselves. Which was great.
ush1401
in
Sjogren's Support
9 months ago
Possible relapse, trouble seeing Rheumatologist.
Put on pred and
mycophenolate
initially, then two rounds of rituximab. I have been med free since 2016 other than Septrin. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago.
Put on pred and
mycophenolate
initially, then two rounds of rituximab. I have been med free since 2016 other than Septrin. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago.
lollypocket
in
Vasculitis UK
7 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with
mycophenolate
mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with
mycophenolate
mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Shingrix vaccine for immunosuppressed people aged 50+
long term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months ●any non-biological oral immune modulating drugs e.g. methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
long term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months ●any non-biological oral immune modulating drugs e.g. methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
Sharitone
in
PMRGCAuk
9 months ago
Newly diagnosed scleroderma
I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start
Mycophenolate
. So devastating to hear my diagnosis. I suffer from sausage-like, tight, difficult to bend fingers. Few skin hardening on forearm and thighs. Raynaud's since 2022.
I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start
Mycophenolate
. So devastating to hear my diagnosis. I suffer from sausage-like, tight, difficult to bend fingers. Few skin hardening on forearm and thighs. Raynaud's since 2022.
luna_lovegood
in
Scleroderma & Raynaud's UK (SRUK)
6 days ago
Mycophenolate
I am on my first week of taking
Mycophenolate
and my PMR/Vasculitis pain has increased tremendously, so much so, I can barely function. Sleep is almost nonexistent. I was meant to take two tablets, but have started with one. I am not sure whether I should stop or not. Thank you
I am on my first week of taking
Mycophenolate
and my PMR/Vasculitis pain has increased tremendously, so much so, I can barely function. Sleep is almost nonexistent. I was meant to take two tablets, but have started with one. I am not sure whether I should stop or not. Thank you
Ab-12
in
PMRGCAuk
1 year ago
Financial resources
Does anyone know of a financial resource assistance for the medication myfortic or it generic, mycophenolic acid? Tks Lybie
Does anyone know of a financial resource assistance for the medication myfortic or it generic, mycophenolic acid? Tks Lybie
LBatl
in
Kidney Transplant
10 days ago
Fed up with meds
Now on
mycophenolate
which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4. My cholesterol is up so started on statins but realised that
mycophenolate
my be partly responsible for increase in cholesterol and that certain statins can cause muscle and joint pain.
Now on
mycophenolate
which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4. My cholesterol is up so started on statins but realised that
mycophenolate
my be partly responsible for increase in cholesterol and that certain statins can cause muscle and joint pain.
Cactus7
in
NRAS
1 year ago
new myocarditis MRI results; what now?
The doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or
mycophenolate
(also known in the
The doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or
mycophenolate
(also known in the
Britomartis29
in
British Heart Foundation
10 months ago
Link with Scleroderma and Cholesterol
Hi all - I’m on
mycophenolate
last 6 months and have noticed my cholesterol levels slowly rising. Really careful with my diet. Does anyone have the same issue? What tips do you have to manage this? I also have acid reflux, Do you think this is connected too? Thanks
Hi all - I’m on
mycophenolate
last 6 months and have noticed my cholesterol levels slowly rising. Really careful with my diet. Does anyone have the same issue? What tips do you have to manage this? I also have acid reflux, Do you think this is connected too? Thanks
SDJ31
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Tips for starting mycophenolate
Hi all, I'm currently on hydroxychloroquine, transitioning to
mycophenolate
in a few weeks. (Diagnosed with diffuse systemic sclerosis.) Are there any precautions / tips you can share - especially in respect to sun exposure and any other common side effects?
Hi all, I'm currently on hydroxychloroquine, transitioning to
mycophenolate
in a few weeks. (Diagnosed with diffuse systemic sclerosis.) Are there any precautions / tips you can share - especially in respect to sun exposure and any other common side effects?
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Mycophenolate
Hi there I have limited scleroderma and I have been asked if I want to go on a trial study for
Mycophenolate
. Just wondering if anyone is on this drug and the side effects of it. Or if anyone is on the minimise trial and how you are getting on with the trial drug. Thank you
Hi there I have limited scleroderma and I have been asked if I want to go on a trial study for
Mycophenolate
. Just wondering if anyone is on this drug and the side effects of it. Or if anyone is on the minimise trial and how you are getting on with the trial drug. Thank you
HansaSRUK
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Trying holistic Nutrition Approach for scleroderma
Few weeks later I got a call saying they wanted to give my some steroid infusion and then
mycophenolate
as a maintenance but would only be very low dose. Nurse rang to tell side effects which was she said was just basic.
Few weeks later I got a call saying they wanted to give my some steroid infusion and then
mycophenolate
as a maintenance but would only be very low dose. Nurse rang to tell side effects which was she said was just basic.
Sus22
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Feet pain ( metatarsalgia?)
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and
mycophenolate
1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions?
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and
mycophenolate
1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions?
Melaxx
in
LUPUS UK
1 year ago
Rituximab questions
Hi everyone, I have been on Methotrexate,
Mycophenolate
Mofetil, Prednisolone and many others for the past 2 years for Vasculitis GPA.
Hi everyone, I have been on Methotrexate,
Mycophenolate
Mofetil, Prednisolone and many others for the past 2 years for Vasculitis GPA.
Wyllow
in
Vasculitis UK
1 year ago
Mycophenolate or Azathioprine ?
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either
Mycophenolate
or Azathioprine, both or which are immunosuppressants.
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either
Mycophenolate
or Azathioprine, both or which are immunosuppressants.
Spotty-ewe
in
LUPUS UK
1 year ago
infusion of steroid and mycophenolate
Then put me on
mycophenolate
. As I am type 2 diabetic am quite worried as to having the steroid as I’ve read it can shoot sugar levels up. Am also worried about side effects both of steroid and mycophenalate. Just wondered if anyone else is diabetic and has had on going through these treatments.
Then put me on
mycophenolate
. As I am type 2 diabetic am quite worried as to having the steroid as I’ve read it can shoot sugar levels up. Am also worried about side effects both of steroid and mycophenalate. Just wondered if anyone else is diabetic and has had on going through these treatments.
Sus22
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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