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Experiences with
Mouth ulcers
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Is it Behcets?
I've had
mouth
ulcers
for well over ten years, and non-stop for about 4 years. I was recently diagnosed with endometriosis too. I get a lot of gastro symptoms, joint pain and fatigue, all of which are getting worse. As it's invisible pain, you feel like a fraud without a diagnosis.
I've had
mouth
ulcers
for well over ten years, and non-stop for about 4 years. I was recently diagnosed with endometriosis too. I get a lot of gastro symptoms, joint pain and fatigue, all of which are getting worse. As it's invisible pain, you feel like a fraud without a diagnosis.
Emwb
in
Partners for Behcet's
3 months ago
Some advice please! At my wits’ end
Main symptoms are: recurrent
mouth
ulcers
that are really painful; gum disease (now under control); episodes of debilitating lethargy; Low mood/irritability/tearful for no reason; Dry mouth and excessive thirst I had my thyroid tested in November and it seems I have very high TgbA (379) but the
Main symptoms are: recurrent
mouth
ulcers
that are really painful; gum disease (now under control); episodes of debilitating lethargy; Low mood/irritability/tearful for no reason; Dry mouth and excessive thirst I had my thyroid tested in November and it seems I have very high TgbA (379) but the
Gogifi
in
Thyroid UK
4 months ago
persistent oral thrush
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
oldtimer2
in
NRAS
2 months ago
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Association of Sweet’s Syndrome and Behçet’s Disease
Developed skin lesions on both forearms and hands with outbreaks of
mouth
ulcers
. Also, fever and fatigue.
Developed skin lesions on both forearms and hands with outbreaks of
mouth
ulcers
. Also, fever and fatigue.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
7 months ago
Advice
I have been suffering from chronic fatigue,
mouth
ulcers
which are slow to heal and wondering if I need my dose amending.
I have been suffering from chronic fatigue,
mouth
ulcers
which are slow to heal and wondering if I need my dose amending.
HuskyBlue
in
Thyroid UK
5 months ago
Jakey2020
I have RA and on methotrexate but am getting bad side effects..
mouth
ulcers
nausea fatigue.. rheumatology said to take the folic acid every day apart from meth day, but they’re 5 mgs so thats35 mgs a week.. does anyone know if that’s too much?? Thanks my friends
I have RA and on methotrexate but am getting bad side effects..
mouth
ulcers
nausea fatigue.. rheumatology said to take the folic acid every day apart from meth day, but they’re 5 mgs so thats35 mgs a week.. does anyone know if that’s too much?? Thanks my friends
Jakey2020
in
PMRGCAuk
10 months ago
Stopping supplements before B12 Test?
I recently visited my GP because of worsening fatigue and tingling in feet ,hands around my
mouth
. In addition I had frequent bouts of
mouth
ulcers
and generally a sore
mouth
. My balance and movement had also taken a downturn.
I recently visited my GP because of worsening fatigue and tingling in feet ,hands around my
mouth
. In addition I had frequent bouts of
mouth
ulcers
and generally a sore
mouth
. My balance and movement had also taken a downturn.
InLiverpool
in
Fibromyalgia Action UK
6 months ago
Mouth ulcers and hydroxy
Since being on hydroxy, I’ve had
ulcers
in my
mouth
and with mouthwash prescribed by haematologist, they disappeared quickly. Last week, I had a blocked salivary gland, not for the first time and nothing to do with hydroxycarbamide because I had this much before diagnosed with MPN.
Since being on hydroxy, I’ve had
ulcers
in my
mouth
and with mouthwash prescribed by haematologist, they disappeared quickly. Last week, I had a blocked salivary gland, not for the first time and nothing to do with hydroxycarbamide because I had this much before diagnosed with MPN.
Cokopops
in
MPN Voice
1 year ago
Elvanse Vyvanse for ADHD & anxiety - Are these side effects normal or is it the wrong med?
I really need a higher dose of the stims for more concentration, focus, motivation, confidence... but can't face all I mentioned above besides the lack of sleep and resulting exhaustion,
mouth
ulcers
, nausea, run down feeling and weight loss which all happens in the first days on a higher dose, followed
I really need a higher dose of the stims for more concentration, focus, motivation, confidence... but can't face all I mentioned above besides the lack of sleep and resulting exhaustion,
mouth
ulcers
, nausea, run down feeling and weight loss which all happens in the first days on a higher dose, followed
hyperfocusaficionado
in
CHADD's Adult ADHD Support
4 months ago
Methotrexate side affects
My Sister has just called me to say she is in such a bad way - she was diagnosed with PMR last year and has been taking Methotrexate for about 12 weeks - she has
mouth
ulcers
, cold sores, a rash on her chin, feeling sick, constipation and more worrying is really breathless just getting up and going to
My Sister has just called me to say she is in such a bad way - she was diagnosed with PMR last year and has been taking Methotrexate for about 12 weeks - she has
mouth
ulcers
, cold sores, a rash on her chin, feeling sick, constipation and more worrying is really breathless just getting up and going to
jules1955
in
PMRGCAuk
8 months ago
Diet and arthritis
Last year I had a particularly trying time with considerable fatigue and very painful
mouth
ulcers
. Slightly at the end of my tether I was given a book called Diet and Arthritis by Dr Gail Darlington and Linda Gamlin. It is quite an old book (published in 1996).
Last year I had a particularly trying time with considerable fatigue and very painful
mouth
ulcers
. Slightly at the end of my tether I was given a book called Diet and Arthritis by Dr Gail Darlington and Linda Gamlin. It is quite an old book (published in 1996).
Evamollie
in
PMRGCAuk
3 months ago
Update on severe skin lesions
I also stopped taking Colchicine which we had started to counteract continual
mouth
ulcers
. She did all kinds of blood tests that ruled out just about everything. The lesions cleared up, so the rheumatologist has okayed doing another infusion next week and seeing what happens.
I also stopped taking Colchicine which we had started to counteract continual
mouth
ulcers
. She did all kinds of blood tests that ruled out just about everything. The lesions cleared up, so the rheumatologist has okayed doing another infusion next week and seeing what happens.
Charkha
in
PMRGCAuk
4 months ago
awaiting Behçet’s diagnosis
hi for 8 weeks now I have experienced
mouth
ulcers
7-8 at a time acne type flares all over my back chest ,legs Only thing that keeps it at bay is prednisolone, as soon as I drop down dose it all comes back , also have chronic fatigue and joint aches Tests originally for lupus came back negative but
hi for 8 weeks now I have experienced
mouth
ulcers
7-8 at a time acne type flares all over my back chest ,legs Only thing that keeps it at bay is prednisolone, as soon as I drop down dose it all comes back , also have chronic fatigue and joint aches Tests originally for lupus came back negative but
Tiffrose
in
Behçet's UK
9 months ago
Behcet and very bad mouth ulcers in throat and esopshagus
It all started with problems with nose and and very big
mouth
ulcers
. Then it started to go on throath and esopshagus. These were really hurting that I couldnt eat anything. I lost 10-12 kg from march till now. Before I was professional football player never had any health problems.
It all started with problems with nose and and very big
mouth
ulcers
. Then it started to go on throath and esopshagus. These were really hurting that I couldnt eat anything. I lost 10-12 kg from march till now. Before I was professional football player never had any health problems.
Enyce
in
Behçet's UK
8 months ago
Fatigue, anaemia and chest pain
The worst symptom is extreme fatigue then I have body aches, Joint pain, abdomen pain, chest pain,
mouth
ulcers
, swollen sinus and diarrhea. Usually I have to take a couple of days off work. In my pre-op they found I had low haemoglobin but folate, b12 and iron were all OK.
The worst symptom is extreme fatigue then I have body aches, Joint pain, abdomen pain, chest pain,
mouth
ulcers
, swollen sinus and diarrhea. Usually I have to take a couple of days off work. In my pre-op they found I had low haemoglobin but folate, b12 and iron were all OK.
Bluebells86
in
Endometriosis UK
3 months ago
Thoughts welcome
Balance was fine when she walked down the surgery corridor, falling downstairs is too long ago to be relevant,
mouth
ulcers
ditto, dizzyness probably BP or vertigo.
Balance was fine when she walked down the surgery corridor, falling downstairs is too long ago to be relevant,
mouth
ulcers
ditto, dizzyness probably BP or vertigo.
debra_bill
in
Pernicious Anaemia Society
8 months ago
What is your experience with oral thrush and nystatin?
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
Mstiles
in
PMRGCAuk
11 months ago
Foot/mouth hand or something else??
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Shine54
in
LUPUS UK
6 months ago
Infected Nasal Sore
I told her I had an endoscopy in February to ascertain whether there were ulcers on my vocal chords and there were no ulcers anywhere but I had a flare six weeks ago and still have residual
mouth
ulcers
and this troublesome nasal one. Has anyone got any experience of such an ulcer?
I told her I had an endoscopy in February to ascertain whether there were ulcers on my vocal chords and there were no ulcers anywhere but I had a flare six weeks ago and still have residual
mouth
ulcers
and this troublesome nasal one. Has anyone got any experience of such an ulcer?
CecilyParsley
in
Behçet's UK
5 months ago
Coming off the pill - any tips for dealing with endo?
Constant
mouth
ulcers
that make it near impossible to eat healthy foods because they sting my mouth, chronic insomnia with the hormone changes and weight gain. Anyway, I work from home and have decided that I'd rather deal with the pain each month than the symptoms that come with it.
Constant
mouth
ulcers
that make it near impossible to eat healthy foods because they sting my mouth, chronic insomnia with the hormone changes and weight gain. Anyway, I work from home and have decided that I'd rather deal with the pain each month than the symptoms that come with it.
hannonll
in
Endometriosis UK
9 months ago
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