Is it Behcets?

[Emwb]

I imagine lots of you like me have struggled to get a diagnosis, but I'm at the end of my tether! I've seen gastro and Max fax without joy, and I'm now so fed up of going to my GP I just can't face it. Behcets seems like the most likely condition I've been able to search (over years of trying) but my GP has never suggested making a rheumatology appt because I've never had a genital ulcer. I've had mouth ulcers for well over ten years, and non-stop for about 4 years. I was recently diagnosed with endometriosis too. I get a lot of gastro symptoms, joint pain and fatigue, all of which are getting worse. As it's invisible pain, you feel like a fraud without a diagnosis. I don't seem to get eye issues either, but I'm going to see an optician to check. I wondered if anyone else was like me and if I should push for seeing rheumatology?

[Tuppence23]

Have you had a blood test.?There is not a test to diagnose Behcets but a lot of patients have HLA B51 resultsIt is a hard disease to get diagnosed.

You can be referred to the hospital of excellence that specialise in Behcets but depends where you are living. In England there is one in London, Liverpool,

[Tuppence23 in reply to Tuppence23]

And Birmingham. good luck hope you get sorted soon 😊