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Waiting
Still waiting. I admire all on this site. Am concerned should I have husband get flu shot in Sept? No symptoms yet and hemotoligist did his own bloodwork. My husband is concerned about holding all the water during ultrasound. I want to do everything right for him.thankx everyone
Still waiting. I admire all on this site. Am concerned should I have husband get flu shot in Sept? No symptoms yet and hemotoligist did his own bloodwork. My husband is concerned about holding all the water during ultrasound. I want to do everything right for him.thankx everyone
Happiness22
in
CLL Support
6 years ago
The FM/a test....I got my results.
I got the results of my FM/a blood test. I called and although they have mailed me and my doctor the results the lady in the lab gave them to me verbally over the phone. With 50-100 being indicative of fibro my score was 96. I knew I was pretty messed up, and I guess I am. The lady asked me "how
I got the results of my FM/a blood test. I called and although they have mailed me and my doctor the results the lady in the lab gave them to me verbally over the phone. With 50-100 being indicative of fibro my score was 96. I knew I was pretty messed up, and I guess I am. The lady asked me "how
WorldOHurt
in
Fibromyalgia Action UK
6 years ago
Natural Checkpoint Inhibitors?
Any decent research out there on "natural" checkpoint inhibitors? I am guessing they exist. Perhaps IP-6 or Curcumin is a "checkpoint " inhibitor? Also wondering if there is I any respectable research on 4-MU which apparently is used quite a bit in Europe. I am also curious about BCG vaccine. My father
Any decent research out there on "natural" checkpoint inhibitors? I am guessing they exist. Perhaps IP-6 or Curcumin is a "checkpoint " inhibitor? Also wondering if there is I any respectable research on 4-MU which apparently is used quite a bit in Europe. I am also curious about BCG vaccine. My father
sammamish
in
Advanced Prostate Cancer
6 years ago
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Meningitis and influenza vaccines
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
JA14
in
CLL Support
6 years ago
Hepatitis B vaccine before Ocrevus?
Anyone have to get a Hepatitis B vaccine prior to starting Ocrevus? I was asked to get the vaccine (which is actually a total of three doses; get the first two doses now) before starting O.
Anyone have to get a Hepatitis B vaccine prior to starting Ocrevus? I was asked to get the vaccine (which is actually a total of three doses; get the first two doses now) before starting O.
Elizt3
in
My MSAA Community
6 years ago
I had my blood drawn for the FM/a fibro test.
I had my FM/a blood test done Tuesday and it was shipped overnight to Los Angeles. I should know the results in 7-10 days (I hope). As I wrote in a previous post if I test positive for fibro then I will be able to get the BCG vaccine (a variation of the tuberculosis vaccine when the FDA approves the
I had my FM/a blood test done Tuesday and it was shipped overnight to Los Angeles. I should know the results in 7-10 days (I hope). As I wrote in a previous post if I test positive for fibro then I will be able to get the BCG vaccine (a variation of the tuberculosis vaccine when the FDA approves the
WorldOHurt
in
Fibromyalgia Action UK
6 years ago
Flu vaccine
The time for flu vaccination will be hear soon. Last year's vaccine was not much of a success. The choice this year seems to be the triple vaccine with a booster for the over 65s or the quad vaccine without booster for those under 65. I have Lupus antiphospholipid Syndrome and sjogrins. I am over 65
The time for flu vaccination will be hear soon. Last year's vaccine was not much of a success. The choice this year seems to be the triple vaccine with a booster for the over 65s or the quad vaccine without booster for those under 65. I have Lupus antiphospholipid Syndrome and sjogrins. I am over 65
Maz189
in
Hughes Syndrome APS Forum
6 years ago
A little story with some bits left out.............
Morning all i hope my post finds you well. Here is a bit about me and how i become so ill. In 2001 we went to Tenerife and i got a chest infection while there and though it was treated,in the September i had another one which took over a month for me to recover from. Then in the November i went for my
Morning all i hope my post finds you well. Here is a bit about me and how i become so ill. In 2001 we went to Tenerife and i got a chest infection while there and though it was treated,in the September i had another one which took over a month for me to recover from. Then in the November i went for my
sylvi
in
NRAS
6 years ago
Essential Thrombocythaemia
I have had ET for 12 years + and am currently on a fairly high dose of Hydrea. I live in Australia but each year travel to the UK for several months. After having stable platelets for several months prior to my flight, I find they shoot up quite considerably when I have my blood tested in the UK. I
I have had ET for 12 years + and am currently on a fairly high dose of Hydrea. I live in Australia but each year travel to the UK for several months. After having stable platelets for several months prior to my flight, I find they shoot up quite considerably when I have my blood tested in the UK. I
Mufftreacs
in
MPN Voice
6 years ago
Flu Jab
Hey guys, Bit early to be thinking about it I know but do we need to take the flu jab? Ive only ever had it once when I was working in a hospital. My mum gets its free every year as she’s a pensioner and my dad has to take it every year as he’s a stroke survivor and on lifetime meds. Do we MPN patients
Hey guys, Bit early to be thinking about it I know but do we need to take the flu jab? Ive only ever had it once when I was working in a hospital. My mum gets its free every year as she’s a pensioner and my dad has to take it every year as he’s a stroke survivor and on lifetime meds. Do we MPN patients
Mackydee123
in
MPN Voice
6 years ago
Painful tingling
Hi everyone I’m coming to the end of my BCG treatment with 4 out of 15 to go,unfortunately the side effects with my last 2 treatments were unbearable,I was getting painful tingling in my arms and hands only when I pass water and have now postponed my treatment until my urologist can find a reason for
Hi everyone I’m coming to the end of my BCG treatment with 4 out of 15 to go,unfortunately the side effects with my last 2 treatments were unbearable,I was getting painful tingling in my arms and hands only when I pass water and have now postponed my treatment until my urologist can find a reason for
Rob52
in
Fight Bladder Cancer
6 years ago
Jellybean
I was diagnosed with bronchiectasis /asthma 5 years ago had 1 sputum sample taken in 5 YEARS & during that time been prescribed symbicort 400 &sabutomal reliever, I asked to be referred to a consultant as I was constantly taking chest infections on a regular basis, I was prescribed amoxillan 500 for
I was diagnosed with bronchiectasis /asthma 5 years ago had 1 sputum sample taken in 5 YEARS & during that time been prescribed symbicort 400 &sabutomal reliever, I asked to be referred to a consultant as I was constantly taking chest infections on a regular basis, I was prescribed amoxillan 500 for
111patricia
in
Lung Conditions Community Forum
6 years ago
APS and pneumoccal vaccine any pros/cons?
I have a flu vaccination every year. I have APS diagnosed in 2016. This year my GP has suggested I have the Pneumococcal vaccine. Anybody have any views regarding this vaccine.
I have a flu vaccination every year. I have APS diagnosed in 2016. This year my GP has suggested I have the Pneumococcal vaccine. Anybody have any views regarding this vaccine.
MaryH
in
Hughes Syndrome APS Forum
6 years ago
I've applied for the FM/a blood test.
Thanks to another member of this forum who posted information about the BCG tuberculosis vaccine clinical trials coming up I was able to research the FM/a test so I decided to apply for it online. The BCG theory sounds very promising to me. My daughter had sent me an email years ago with her theory
Thanks to another member of this forum who posted information about the BCG tuberculosis vaccine clinical trials coming up I was able to research the FM/a test so I decided to apply for it online. The BCG theory sounds very promising to me. My daughter had sent me an email years ago with her theory
WorldOHurt
in
Fibromyalgia Action UK
6 years ago
Beware of Shingles (Shingrix) vaccine!
I had an appointment with my Rheumatologist a couple of weeks ago and she advised me to have a Shingles vaccine. She said the new one is ok for people with Lupus. My brother in law had recently had Shingles and it was terrible for him so I thought, ok, I'll do it. Now, 2 weeks later, I am pretty sure
I had an appointment with my Rheumatologist a couple of weeks ago and she advised me to have a Shingles vaccine. She said the new one is ok for people with Lupus. My brother in law had recently had Shingles and it was terrible for him so I thought, ok, I'll do it. Now, 2 weeks later, I am pretty sure
ecough
in
LUPUS UK
6 years ago
Difficulty getting diagnosed
Hello. This is my first post since joining. I have only been ill for a few weeks, an illness that seems to have come out of the blue. But maybe not when I look back. I will outline my problems in the hope that others have experienced a similar story and in the hope that they can give me some support
Hello. This is my first post since joining. I have only been ill for a few weeks, an illness that seems to have come out of the blue. But maybe not when I look back. I will outline my problems in the hope that others have experienced a similar story and in the hope that they can give me some support
Districtnurse61
in
Vasculitis UK
6 years ago
Unbelievable
I truly believe googling has gotten me to this point, after getting a flu shot I started to feel bad then I’d google how the shot could affect me. Shortly afterwards I had days of not feeling well then I went to the Er & was told acid reflux, went back the very next night & the doc was confused to why
I truly believe googling has gotten me to this point, after getting a flu shot I started to feel bad then I’d google how the shot could affect me. Shortly afterwards I had days of not feeling well then I went to the Er & was told acid reflux, went back the very next night & the doc was confused to why
Keoshiana
in
Anxiety Support
6 years ago
Reoccurrence despite mitomycin
Hi everyone I’m sorry to say my recent cystoscopy revealed two tiny tumours. It would have been two years clear so I was devastated. I know this tends to come back but we all hope it’s not going to. Next turbt (#5) is in two weeks. Anyone have something similar happen? I’d been on mitomycin monthly
Hi everyone I’m sorry to say my recent cystoscopy revealed two tiny tumours. It would have been two years clear so I was devastated. I know this tends to come back but we all hope it’s not going to. Next turbt (#5) is in two weeks. Anyone have something similar happen? I’d been on mitomycin monthly
PaMul
in
Fight Bladder Cancer
6 years ago
Thyroid and HPV
My daughter has had HPV vaccine. She has always been borderline and under the drs for continuous monitoring of her thyroid. Since the vaccine her TSH level has risen and she has become fatigued could it have started her thyroid to get worse?
My daughter has had HPV vaccine. She has always been borderline and under the drs for continuous monitoring of her thyroid. Since the vaccine her TSH level has risen and she has become fatigued could it have started her thyroid to get worse?
Sade2620erydan2620
in
Thyroid UK
6 years ago
I'm currently taking lupron for advanced prostate cancer. Is it ok to get an mmr and a tdap vaccine shot?
My white blood cell count is lower than normal but my general health is good.
My white blood cell count is lower than normal but my general health is good.
GeorgeGlass
in
Advanced Prostate Cancer
6 years ago
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