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Happiness22 profile image
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Still waiting. I admire all on this site. Am concerned should I have husband get flu shot in Sept? No symptoms yet and hemotoligist did his own bloodwork. My husband is concerned about holding all the water during ultrasound. I want to do everything right for him.thankx everyone

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Happiness22 profile image
Happiness22
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alexmcg48 profile image
alexmcg48

There are wiser heads on here who give good advice on CLL, but the advice generally is for all CLL sufferers to have the flu jab & a pneumonia as well if they can. You should consider having one as well, because if you go down with a serious bout of flu it could well increase the chances of your husband getting it.

I was diagnosed with CLL 4 years ago & I'm on W&W, but every year since then my wife & have had the flu jab (in the past I had been reluctant to have it) & we've had a the pneumonia jab at the recommendation of our GP.

Happiness22 profile image
Happiness22 in reply to alexmcg48

Thank you

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to Happiness22

With CLL you want the Prevnar13 pneumonia vaccine, followed later by the usual 5 year vaccine pneumococcal 23.

Most GPs won't know this

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

I think everyone worries about holding water during an ultrasound that requires it. Remind your husband that ultrasound techs deal with hundreds of patients and understand that it can be a problem for some patients. They get you through that part of the process as quickly as they can.

crystalsky profile image
crystalsky

Of course vaccines like the flu shot are recommended - to everyone - regardless of their health status. I would research those flu shot and other vaccine ingredients before rolling up a sleeve. They all contain toxic ingredients. But, of course according to the manufacturers injecting your body with toxic ingredients is perfectly safe. However, no where will you find a statement that vaccines are 100% safe.

Personally, I don't understand why people take the risk. I think it's the fear factor the media and the CDC are so good at promoting. What we put into our bodies matter, and once you do, you can't take it back. Thimersol, aluminum, formaldehyde, MSG, GMO sourced ingredients, and on and on. I covet my body's health and won't be injected with questionable ingredients that may hamper my health immediately or down the road.

I know my views are frowned upon and discouraged here. My husband and I choose health, and will not be frightened into getting vaccines. Our choice of course. If a vaccine was proven to be 100% safe AND effective, perhaps we would consider it.

Anyway, here's some interesting reading regarding last year's flu vaccine, and a list of the ingredients used last year in the various flu vaccines. No doubt I'm going to be scolded for posting this. It will be said this is not a true site, or some such nonsense. If that's the case, I guess all journalistic reporting is nonsense and full of untruths. Decide for yourself:

organiclifestylemagazine.co...

And info on the adjuvant, called “QS-21 Stimulon used in the Shingrix vaccine, which you will have a hard time finding safety studies done on it. In addition, it's just too new to know about all possible adverse events or how effective it will be in larger populations than just the study groups:

hsionline.com/2017/10/25/do...

Jm954 profile image
Jm954Administrator in reply to crystalsky

You are fortunate that others do not share your views and you are then able to benefit from ‘herd’ immunity - other immunised people are protecting you.

The benefits of immunisations to society far outway the risks although, it is acknowledged, that a tiny minority may have an adverse reaction.

Falling death and incidence rates of measles, whooping cough and meningitis demonstrate just a few real measures of effectiveness.

For CLL patients, vaccinations are even more important and can be life savers, as well as avoiding unnecessary illness and potential complications.

crystalsky profile image
crystalsky in reply to Jm954

You are insinuating I need to be grateful for those injecting themselves with vaccines, because otherwise I would be ill with said illnesses. When in reality, I keep myself well through proper eating, exercise, washing my hands, adequate levels of vitamins and minerals, etc. So, I don't really appreciate you saying I need to thank anyone for my good health.

"Herd Immunity" has changed since all the vaccinations have been introduced. There used to be natural herd immunity, and now we are dependent on vaccine immunity, but it fails. The population no longer has long term immunity from naturally acquiring the antibodies from the virus when exposed as a child. Vaccine protection wanes, thus the answer by the vaccine industry is to just get another dose. But then still, there is no natural immunity obtained.

I love the way it is explained here:

vaxxedthemovie.com/notes-he...

I'm sure you'll have an opinion on this as well, and debunk the explanation as rubbish. However, it is how it used to be, and we no longer have natural immunity. We don't allow children to acquire natural immunity to anything anymore, and I don't see this as a good thing at all.

AussieNeil profile image
AussieNeilAdministrator in reply to crystalsky

The Vaxxed the Movie website opens with unreferenced notes by Andrew Wakefield, who "is a discredited former British doctor who became an anti-vaccine activist. He was a gastroenterologist until he was struck off the UK medical register for unethical behaviour, misconduct and fraud.

:

Wakefield's study and his claim that the MMR vaccine might cause autism led to a decline in vaccination rates in the United States, United Kingdom and Ireland and a corresponding rise in measles and mumps, resulting in serious illness and deaths, and his continued claims that the vaccine is harmful have contributed to a climate of distrust of all vaccines and the reemergence of other previously controlled disease."

en.wikipedia.org/wiki/Andre...

Please, just go for that cemetery walk and see if that doesn't profoundly affect the way you feel about vaccinations. Sure, those children that survived now preventable and (thanks to vaccinations), quite rare childhood illnesses, went on to live long lives without a repeat infection, but many of them lost siblings to those same infections. Perhaps you are too young to be aware of the lifelong impact on many that survived polio, but were crippled for life: en.wikipedia.org/wiki/Polio...

Neil

crystalsky profile image
crystalsky in reply to AussieNeil

It goes on to tell the whole story of how Dr. Wakefield was discredited because he dared to raise concern about the safety of the combined MMR vaccine.

The Meaning of The Wakefield Prosecution

What, then, was this high-profile prosecution really about? If there was no scientific fraud, no undisclosed financial conflicts of interest, no ethical breaches in performing tests on sick children, and no complaints from patients or their families, then what was the big deal? Did the international scandal and multi-million dollar prosecution proceed merely to chastise a doctor for drawing blood from children at a birthday party, with their consent and their parents’ consent? Of course not.

Dr. Wakefield was, and remains, a dissident from medical orthodoxy. The medical establishment subjected him to a modern day medical show trial for his dissent.32 Dr. Wakefield’s research raised fundamental doubts about the safety of vaccines and the etiology of autism. Dr. Wakefield was punished for his temerity to caution the public about vaccine risks and to urge them to use their own judgment. Dr. Wakefield was punished for upholding vaccination choice.

The purpose of the proceeding, as in any show trial, was to communicate to other doctors and scientists, and to the public, the error of the perpetrator’s ways. A show trial offers a veneer of due process but, at its core, displays naked power. The apparent intent of the prosecution was to intimidate others from following Dr. Wakefield’s footsteps and to teach the lesson that anyone in the medical or scientific community who dares to publicly question the safety and efficacy of vaccines will be punished with utmost severity. The GMC appears to have decided that if the price of such a lesson was scientific ignorance about vaccine-autism links and the suffering of severely ill children, then so be it. Dr. Wakefield was made an example.

The GMC destroyed Dr. Wakefield’s professional reputation and livelihood, and The Lancet and other publications confiscated his professional accomplishment through retraction. The GMC colluded with The Lancet, the media, the British Department of Health, the pharmaceutical industry, and even with the U.S. Department of Health and Human Services and the U.S. Department of Justice, to discredit Dr. Wakefield. The Center for Personal Rights is confident that the world will look back at the prosecution of Drs. Wakefield, Walker-Smith, and Murch with shame and remorse. Dr. Wakefield has joined in a long, honorable tradition of dissidents in science and human rights. The world has benefitted profoundly from other courageous dissidents in science—Galileo, who argued that the sun is the center of the universe; Semmelweis, who reasoned that doctors must wash their hands to prevent transmission of infection; Needleman, who proved that lead exposure causes neurological damage in developing children; and McBride, who demonstrated that thalidomide caused birth defects. As Thomas Kuhn explained, changing scientific paradigms is a revolutionary process, with the wrenching upheaval that revolution brings.

If you had a child who was severely injured or died after having a vaccine, I wonder how willing you would be to roll up your sleeve. Only then, do people really understand the powerful damage a vaccine can wage on one's body. And the vaccine court pays out damages here in the U.S. every year, only the media doesn't talk about it. For me, the risk out weighs any presumed benefit of an injected chemical cocktail. I've seen the damage and suffering first hand.

AussieNeil profile image
AussieNeilAdministrator in reply to crystalsky

The editorially independent Guardian tells a different story: theguardian.com/society/201...

"In the interests of proving Wakefield's theory, children were given lumbar punctures in the spine, colonoscopies and barium meals – all significant procedures." That's a lot more invasive than your quoted "drawing blood from children at a birthday party, with their consent and their parents’ consent." and much more.

You may not be aware of the subsequent research around the world to investigate Dr Wakefield's claims, which resoundingly refuted his theory of MMR vaccinations resulting in a difference in the age of onset, severity or course or risk of recurrence of Autism Spectrum Disorders: autismspeaks.org/science/sc...

"In an accompanying editorial, Dr. Bryan King, director of the Seattle Children’s Autism Center, writes: “Taken together, some dozen studies have now shown that the age of onset of ASD does not differ between vaccinated and unvaccinated children, the severity or course of ASD does not differ between vaccinated and unvaccinated children, and now the risk of ASD recurrence in families does not differ between vaccinated and unvaccinated children.” (My emphasis)

Do your own investigation. Go for that cemetery walk.

in reply to crystalsky

If you had a child who died or was severely injured from...say Polio because they were not vaccinated....how willing would you be to roll up your sleeve and say "Well, kids need natural immunity, nothing to do about it except lose a few to a disease that was virtually eradicated 70 years ago."

And what damage and suffering have you seen first hand? A crying kid who got poked.....or a sore arm....or all those girls who will die from cervix cancer because of HPV....which could of been prevented with a vaccine.

Yes, I agree mostly in the new religion of Science anyone bucking the trend is going to get 86'd and maybe some of them should be...and some should not be....but Wakefield freaked a lot of people out with vaccines and Autism....and he really didn't have much fact based evidence backing him up.....he *might* be proven right in the future....but if so, it will be from other people who don't cry wolf but get a bunch of real data that can be repeated and verified by others.

Yes, lots more autism around these days...but vaccines were around for 70 years +/- and the whole Autism thing took off only about 25 years ago....so again, vaccines *might* be the cause or part of it....but based on the first 45 years of vaccines and no increase in autism....I kinda doubt it.

Plus everyone knows the Autism is because of the Alien/Human Hybrid program the government is doing with the Greys in Dulce NM....or maybe it is the cell phones and tablets like the news said last week....or maybe it is the Mayan Doomsday Calendar...oh wait...that was like Y2K a big bust.....

Marie-54 profile image
Marie-54 in reply to crystalsky

So indoctrinated. You are welcome to your denial. You are not welcome in my home however, as I will not allow you to put me or my family at risk.

in reply to Marie-54

I got my vaccines...can I come over?

AussieNeil profile image
AussieNeilAdministrator in reply to crystalsky

Crystalsky, please educate yourself regarding the risk/reward situation with vaccinations. It's very easy to do. Just find a cemetery that has been in use for over 100 years and look at the difference in early deaths from infections preventable by much lower risk vaccinations. I've done that and found the experience profoundly moving, reading of all the young lives extinguished by diseases we now rarely hear about. And don't forget the related deaths of women in childbearing age, with too many dying from another pregnancy to replace a lost child...

crystalsky profile image
crystalsky in reply to AussieNeil

With multiple extended family members and friend's children suffering from damage from vaccines, I'm educated. Many of those diseases you mention were helped to be eradicated due to natural immunity acquired by the general population over time from exposure. The vaccine industry will have us all believe we can't survive or live a healthy life without their "life saving" chemicals. I have not had the flu in over 15 years, and neither has my husband, and we don't get vaccinated. If these vaccinations were 100% effective, no one who has been vaccinated would get an of the illnesses they've been vaccinated for. I like a sure thing. Safety. Effective. Won't make me sicker than I was before I started.

AussieNeil profile image
AussieNeilAdministrator in reply to crystalsky

This theory of natural immunity is flawed in that it disregards all those that don't survive an illness to develop that natural immunity. There is abundant evidence that while a small and unfortunate few do suffer damage from vaccinations, without vaccinations, many more people would be dead. We live longer and healthier lives because our society has implemented so many interventions, including childhood vaccinations.

Go for that cemetery walk, please! Or talk to retired school teachers who remember teaching classes with crippled children from poliomyelitis.

PaulaS profile image
PaulaSVolunteer in reply to crystalsky

Very few things in this life are 100% sure, crystalsky No one is saying that vaccinations are 100% effective (specially for CLL patients whose immune system is already damaged). But we have to weigh up the pros and cons and balance the risks/benefits.

From all I have read and seen during my life, I have come to believe that the benefits of vaccinations are much greater than the risks.

Paula

in reply to crystalsky

CrystalSky,

Your statement "I like a sure thing. Safety. Effective. Won't make me sicker than I was before I started" pretty much describes being dead. It is a sure thing with plenty of guaranteed safety...no bills to worry about...no eating nasty chemicals....no doing anything, really....and definitely effective as it is pretty much done once and forget.....and you will never ever get sicker than when it started.

I can think of no other thing for when we are not dead that even comes close to meeting your criteria...help me out here some if you will.....what did I miss?

Justasheet1 profile image
Justasheet1

I got the Quadrivalent flu jab yesterday. Still breathing 👍🏻

Going for the second Shingrix next week.

I just pray they work for me.

Jeff

in reply to Justasheet1

I get my second Shringex Monday myself....

Marie-54 profile image
Marie-54

Evryone in the family should have the flu shot every year, even the kids and grandkids. It will help protect the CLL member and make everyone else less prone to the flu as well.

crystalsky profile image
crystalsky in reply to Marie-54

None of my children, me or my husband get the flu shot, and we've not had the flu. We don't need a shot to keep the flu at bay.

Marie-54 profile image
Marie-54 in reply to crystalsky

With CLL in the mix, I disagree. But it is of course your choice. I wish you continued good luck, but hope you change your mind and sincerely hope that you and your kin do not pass on your infections to others who could not be vacinnated through no fault of their own.

Canuck901 profile image
Canuck901 in reply to Marie-54

If you’re vaccinated why are you afraid of getting an infection ? You’re supposed to be protected. By the way NHL players got the Mumps when it was going around a few years ago , the vaccinated got it more often than the ones that were not vaccinated .

Marie-54 profile image
Marie-54 in reply to Canuck901

Because my neutrophil count is 0.05, and my White blood count is 0.9. At the moment I have very little immunity. I DO NOT have enough resources to fight off anything at all.

I am not the only one out there who has immunity issues. Antivaxxers put everyone of the immune compromised at risk just because they believe pseudo science from people who are not doctors.

They believe people who write articles with big scary sounding names for chemicals and believe the crap, from people with no scientific background. If they bothered to look up the reviews of the literature they do believe, they would find it debunked in so many places, but no they could not do that eh? Too many of them are too young to remember the deaths that were common from the diseases, the handicaps, the disfigurements. They did not live through it becuse THEY were vaccinated. They are so afraid of the vacinnations, that they would rather have a dead child than a vaccinated one. Go figure.

in reply to Marie-54

Marie,

The anti vaxxers have eating right, washing their hands and prayer to keep them healthy and fit...I mean, common....what more does anyone need? Those silly vaccines won' t help protect against Polio or Measles or HPV...all just a scam so a whitecoat can jab a needle in your arm and go home and laugh about it. It said so on YouTube so I totally believe it.....

Marie-54 profile image
Marie-54 in reply to

Yup and all those dead children from almost eradicated diseases in the past, those crippled by polio - (which is also on the comeback) and the ones who are dying and suffering today from preventable illnesses are all because they did not wash their hands or Mommy and Daddy did not buy only 'organic' stuff.

Just keep all of them the heck away from me and mine and anyone else's people who cannot through no fault of their own get protected.

in reply to Marie-54

Marie

The problem with trying to enter any type of discussion with someone like crystalsky is she has set the bar as being 100% effective and 100% safe.

There is nothing on this planet that reaches that level...but by setting the criteria for acceptance at such a high level, it gives strength to her beliefs and since it can never ever ever achieve that level she will never have to reconsider her beliefs or any other point of view.

Vaccines are not 100% safe and not 100% effective....so they must be bad. Period. End of conversation. End of any further consideration. It is a self deluding protective mechanism that allows a person to go on blindly and happily with bad information and thus conclusions....and it never need be questioned.

I know several people like that and it never ceases to amaze me they can't even see it.

Scott

crystalsky profile image
crystalsky in reply to

I don't appreciate you slandering me. You have bullied me and harassed me, and I love that this is allowed. Good to know. But wait, I would never do that to someone. This all started because I said know the ingredients in the vaccines you agree to, and if you get the flu shot, ask for the single dose shot so you can at least avoid mercury!!!!!!!!!!!!!!!!!! You have been overly aggressive, where as I have never told you what to do. How is it okay to bully people online? I wonder if you do this with off line people. Rounding up a lynch mob next? This is the future of our world? I understand the whole online bullying teenagers especially have trouble with.

Next, you'll tell me if I don't like it, then leave this site and never come back. No, I think harassment and bullying shouldn't be tolerated.

in reply to crystalsky

No CrystalSky,

I would never ask you to leave this site, not would I round up a lynch mob. You are confusing me for facebook people.

You have a belief that is contrary to most everyone else. I am fine with that as a concept. This particular belief is so dangerous to not just yourself but everyone else I can't help but respond.

I am not trying to insult you or slander you. I am trying to get you to listen....although I know you won't. Still, I have to try.

Scott

sandybeaches profile image
sandybeaches

It is recommended that we get a flu vaccine and some people get a second one in or around February as well. Hopefully our family members will have one as well to help keep us, with our lowered immunity, healthy.

When we have any type of chronic health condition it is recommended to have the flu shot unless contraindicated. Influenza can be quite disabling for us, at times causing hospital admission for several weeks, and also landing one in the ICU on ventilator support, and all ensuing monitoring and medications. It is not a pleasant experience for the patient nor their families. And not to be morbid, but some patients do not go home, ever. So carefully decide about getting a flu shot so as to at least help us, at whatever level our bodies respond to the immunization.

All the best,

Sandy Beaches

MF79 profile image
MF79

I go for the flu vaccine every year. I had flu once, prevSLL, and was floored for months.

I am now post FCR , in remission. Should I be asking for pneumonia vaccines? It’s never been suggested. I’m in the UK.

PaulaS profile image
PaulaSVolunteer in reply to MF79

Hi MF79,

Yes, if you are more than 6 months post FCR, I would certainly ask for pneumonia vaccinations.

If you haven't had any pneumonia vaccinations before, make sure you get Prevnar13 first, rather than Pneumovax23 (which can be given at least 8 weeks later.). If you HAVE had some pneumococcal jabs in the past, FCR can alter the situation and your doctor might want to do blood tests first, to see what your antibodies are like.

Best wishes,

Paula

P.S. You might this post helpful. healthunlocked.com/cllsuppo...

MF79 profile image
MF79 in reply to PaulaS

Thank you. I will speak to my GP

crystalsky profile image
crystalsky

My reply was not intended to start a discussion on should or shouldn't regarding vaccines, as everyone will decide for themselves. My intention was to make sure one researches the ingredients that will be injected into your body, and understand the associated risks.Like aluminum for instance, which crosses the blood brain barrier, and is believe to be a contributor to Alzheimer's Disease.

And with the flu shot, multi dose flu shots contain mercury, and single dose shots do not, so making sure to get the mercury free shot will at least reduce the toxic chemical load from the shot.

Certainly, most of you have heard about the tainted MMR vaccine manufactured in China and given to the children there. It's only been discovered in that vaccine for Chinese children, but I wonder where the vaccines used in adults are manufactured? China has had problems in the manufacture of drugs, infant formula, and now a vaccine. Best to ask where the vaccines are being made. It seems like a reasonable question to ask before getting any shots.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to crystalsky

Ibrutinib is made in China ...you seemed fine with that for your spouse. Sorry.. I don't quite get your point...

lonza.com/custom-manufactur...

crystalsky profile image
crystalsky in reply to Cllcanada

You don’t have to be rude! And I didn’t realize Ibrutinib was manufactured in China until after my husband was on it. Why? Well, I never thought to ask. I hope the facility making it is inspected regularly and that they are using purified water if that is needed to make the tablets.

Marie-54 profile image
Marie-54 in reply to crystalsky

You are so afraid of the chemical names inside of vaccines, but they are just names. Look at the attached. It has the chemical names of foods you eat every day. The name is not the scary thing. the lack of informed knowledge is.. io9.gizmodo.com/what-if-nat...

crystalsky profile image
crystalsky in reply to Marie-54

Aluminum, mercury, MSG, formeldehyde, etc. all things I avoid eating. Thank you.

Marie-54 profile image
Marie-54 in reply to crystalsky

Do you eat apples? This is a good demonstration of how naming chemicals ingredients scares the naive and ill informed. See in the link what makes up a naturally grown apple. Nature makes many compounds ON ITS OWN, but don't let that scare you from apples, because we all know an apple a day keeps the doctor away. imgur.com/gallery/5EbigTX\

crystalsky profile image
crystalsky in reply to Marie-54

Marie, these links have nothing to do with vaccine ingredients. You wrote: "You are so afraid of the chemical names inside of vaccines, but they are just names." Please don't assume I'm "afraid." I'm not afraid. I just prefer not to inject my body with synthetic, and toxic chemical ingredients.

You also wrote, "Look at the attached. It has the chemical names of foods you eat every day. The name is not the scary thing. The lack of informed knowledge is." I would appreciate it if you would stop insulting my intelligence and assuming I have a lack of knowledge and I'm uninformed. Like wow! Really? An apple's ingredients are all plant based, made by Mother Nature, and safe to consume. Good for us to consume in fact. Apples and plant based foods have nothing to do with vaccine ingredients.

We apparently live in a free society and are free to have our own opinions without persecution of imprisonment or death. But who knows, the way things are going in this world regarding even this topic, I may be hauled off to prison in the foreseeable future simply for my beliefs.

But again, this all got off track. I was saying, know what ingredients you are agreeing to have injected into your body, and if you choose to get the flu shot, making sure you get a shot from a single dose vaccine, and not a multi dose vaccine will at least lessen your exposure to mercury, which is in the multi dose vaccine.

AussieNeil profile image
AussieNeilAdministrator in reply to crystalsky

"There is research on correlation between neurological disorders, including Alzheimer's disease, and aluminium levels, but it has been inconclusive so far.": en.m.wikipedia.org/wiki/Alu...

Jm954 profile image
Jm954Administrator in reply to AussieNeil

I bet quite a few people cook using aluminium saucepans. I ditched mine about 35 years ago when this was first mooted but evidence is poor.

crystalsky profile image
crystalsky in reply to Jm954

Why not be safe better than sorry, and avoid aluminum since studies are inconclusive, but researchers have indicated a possible contributing factor? I helped care for BOTH of my inlaws who BOTH had Alzheimer's. I'm going to do everything in my power to help avoid that devastating disease. So, if it means cooking with a different type of pan for instance to be safe, then why not?

Jm954 profile image
Jm954Administrator in reply to crystalsky

I agree but most people aren’t aware of these things.

Marie-54 profile image
Marie-54 in reply to Jm954

So you do not drink pop or beer that is stored in aluminum cans either then right?

in reply to Marie-54

Now you are getting personal Marie.....I definitely neither admit or deny that I might, maybe, drink Sprite from a container that might or might not be a metal called Aluminum. But thankfully I only drink beer from glass containers...it just tastes better.

Jm954 profile image
Jm954Administrator in reply to Marie-54

Course I do!

I'm not fussed, I'd rather live today and not worry about things like that where it's not proved :)

in reply to Jm954

The real problem is something that is "bad" for you today might be "good" for you in 5 years. They do all kinds of studies....Alcohol was bad...then it was good to have a drink or two....and coffee was bad...and now up to 4 cups a day is good for you....and Red M&M's were bad for you...but then it was discovered you had to eat like 10,000,0000 of them every day for 100 years...so now there are Red M&M's again.

Anyone reading the latest "what is good for you and what is bad for you" list only has what might be known at that time....and often that information changes drastically...sometimes in a short period of time.

A person could spend their entire life jumping around from one "not good for you" thing to another and not ever actually do anything to keep them healthier than if they ignored it all until it was conclusive....like I don't think Cyanide will ever be considered good for humans...that is conclusive to me :)

Jm954 profile image
Jm954Administrator in reply to

So true Scott! :)

crystalsky profile image
crystalsky in reply to Marie-54

I never drink soda or beer or anything in an aluminum can. That is correct.

in reply to crystalsky

CrystalSky,

I do not share your concerns with vaccines and flu shots...but you are not alone in this strange feeling that vaccines and flu shots are some how harmful...tons of people share your concerns. I think Alex Jones and Donald Trump are big anti vaccine people.

If you think about all the kids not dead from Polio, Small Pox, Measles, Rubella, Typhoid, Dengue Fever, Yellow Fever...and 1000 others you might rethink your position. Vaccines work. Period. Are they made with the utmost safety and benefit to humans in mind....probably not.

You keep pushing the whole "No vaccine is proven 100% safe" and that makes me ask....is ANYTHING proven 100% safe? Going to sleep at night is not proven 100% safe....house might burn down, furnace might carbon monoxide you to death....who knows. Eating that organic lettuce...nope, not proven 100% safe....might have MRSA or Brain Worms living on it....I dare you to tell me 1 thing proven 100% safe. None exist.

You also keep pushing the whole "China is unreliable" as if anywhere else is so much better....don't you recall that contaminated compounding pharmacy 5 +/- years ago that killed all those people.....that was in the USA....and what about all those E.Coli stuff going around...eating at Chipolte is definitely not 100% safe....but I still do it.

You don't want a vaccine....hey, your life, have at it. But pushing this sort of fringe theory of vaccines is not doing anyone any good. And don't get me wrong, I absolutely LOVE conspiracy theories.....but really....there are no answers in any of them...not the official story and not the various alternative stories either.....you simply can not know the truth or lack of it in this day and age because of too many people buying into some wacky-doo theory and then pushing it as the truth. Just because it is on YouTube does not mean it is right, sane or even accurate....hell, it might be.....but just as easily, it might not be.

Go get your damn flu shot and make your husband get his. It is not 100% safe...but I can tell you this....it is way safer for CLL people to get that 97% safe vaccine....than get that 35% fatal flu that is going around.....

Scott

crystalsky profile image
crystalsky in reply to

It's not wackado therory. The vaccine court pays out damages every year. And again, this got carried away. I was saying know the ingredients you are being injected with and go for the single dose flu shot because it's mercury free.

in reply to crystalsky

Yeah Yeah....I been married to a lawyer for 25 years. They pay cause it is easier or some uneducated jurors who couldn't get excused from jury duty decided RoundUp causes cancer without a shred of evidence and awards 285 million.....

And you know...your hero Doc Wakefield....what was all that getting $400,000 dollars from the lawyers who were suing the maker of the MMR vaccine...2 years before his "study"...and his own patent he filed for a single vaccine.....oh, but I am sure that is all just made up crap to discredit him.....lemme give you a small bit of advice....you won't listen....but I can't help myself....do your own research....approach everything with an open mind....take all sides into account....learn.....don't just parrot what some other idiots are saying on YouTube. There are enough parrots in the world today...

crystalsky profile image
crystalsky in reply to

Excuse me. I don't watch Youtube and would never go there for medical anything. I choose not to be injected with any chemical that doesn't belong in my body naturally, because that is my choice. You like to get vaccines. Great. Your choice. But, don't tell me to go do research, and that I'm parroting someone. You don't know me. Yo don't anything about my life, or how I think. You know very little about me, or what my life has been like. So, thank you, I don't need you to tell me to go do something. I am doing it. I'm taking care of my health everyday by making safe choices that are acceptable to me and my husband. Back off please!

in reply to crystalsky

There are currently over 70 cities in the USA with big measles outbreak going on right now. Your Anti-Vaxx agenda is putting everyone else in danger. You are making choices about vaccines based on faulty, clearly fraudulent, financially motivated agenda of Doc Wakefield. And regardless of what your life has been like, mine has been worse...a lot worse.

But you are right, I don't know you....but you rub me the wrong way with this BS anti vaccine agenda. It threatens me. It threatens my family. It costs me money in higher premiums. It frustrates me anyone can be so naive to take the word of one discredited doctor and start preaching the horrors of vaccines.

If there were 10 discredited doctors...I might be more on your side, hell I would carry a sign around saying Anti Vaxx is GREAT........but you got only the one Doc...and he was in it for the money. And look what his greed caused....a whole big anti vaxx movement in the USA, UK and else where.

Get yourself and your family vaccinated. I doubt anyone will get more than a sore arm and it might keep them alive. Like I said....perfectly safe? Doubtful....but the other choices are worse

lankisterguy profile image
lankisterguyVolunteer in reply to

I agree with Scottxxoo,

Here is some historical and current perspectives on this debate.

historyofvaccines.org/conte...

csicop.org/si/show/anti-vac...

vox.com/cards/vaccines-fact...

blogs.bmj.com/bmj/2018/03/0...

Len

crystalsky profile image
crystalsky in reply to

You say your life has been worse - alot worse than mine - yet you know vary little about my life, or about me, so such a blatant statement is unfounded as you have no idea. None at all. Regardless, I stay healthy, so I'm not spreading anything around.

It's your business to be vaccinated, and it's my business if I choose to or not. We have free choice, this is not communist China - yet. I will continue to keep myself healthy so I I'm not a carrier of illness.

in reply to crystalsky

Crystal,

Look I know you are unable to even begin to reconsider your feelings about vaccines/flu shots/etc. That is the real problem with society today....no one will even consider they *might* be wrong and listen to or research all the various issues.

Please don't tell me you will "continue to keep yourself healthy so you are not a carrier of illness". Eating right, washing your hands and prayer will not do much to keep you healthy....ask any of those people suffering measles these days. You are not keeping yourself healthy....you have been lucky so far...that is all.

And I don't need to know anything about your life to know compared to mine you were Opie Taylor's sister in Mayberry.

You want to wear a tin foil hat...I will join you only in 9-11 stuff or Mandela Effect....those I have to give lots of credit too....the rest, like vaccines are bad, flat earth, Moon Landing Hoax, Aliens, Bigfoot, and JFK...great fun...but don't bother thinking any one side is more accurate than any other...

Go get your Vaccines and get your kids vaccinated...please, I am begging you.

crystalsky profile image
crystalsky in reply to

I don't appreciated you calling me names, being disrespectful to my opinions and thoughts, saying I wear a tin foil hat (whatever the freak that means), and overall being unkind to me. People's behavior online is often so aggressive and hurtful.

Vaccines contain ingredients I can't in good conscience, have injected into my body. Good hygiene, and improved nutrition has had an impact on societies, and the rate of disease. To attribute it all to a pharmaceutical invention is not the whole story. Why not then, go shove your face full of donuts everyday, and sit in a chair all day and do nothing, and see what impact that has on your health. According to you, a good diet, nutrition, exercise, etc. has no impact on our health status. Enjoy your beer an donuts.

Stop demanding I go get vaccinated. It is my choice not to. Today. However, people like you probably want all of us who reject getting vaccinated, rounded up at gun point, and threatened to be shot if we don't comply.

You are free to vaccinate your body, and I am free not to. Period.

in reply to crystalsky

I don't normally drink alcohol...gotta be in Las Vegas or Jamaica. As for donuts, again, not a big fan....but Renee totally loves Krispy Creame donuts.

I don't want anyone shot, for any reason either. But I do wish people like you who rejected common sense about vaccines get a freekin grip and stop bowing down at the Alter of Alex Jones or whoever your current Prophet might be and think for yourself instead of latching onto the weakest, most questionable data available and clutching it like God All Mighty Herself dropped it in your life.

According to me, Diet and exercise is always a good thing....but again, everyone goes overboard Vegan, or No This, or No That...all based on the latest fad book or Fat Butt Kardashian saying it is so.

Good hygiene has helped quite a bit with being healthy....we don't empty chamber pots out the window into the street (Which is why the man is suppose to walk on the left of the woman, so he gets splattered not her when the crap rains down). But this advance required the invention of sewers and flush toilets....and I am pretty sure lots of people back then argued about the dangers of getting flushed down the toilet with the poop.

So Crystal, I don't respect your beliefs....and in general, I respect EVERYONE's beliefs. I don't care if your tan is better or worse than mine, what real or imagined god you pray too or what is between your legs....but I do care about people who abdicate using what is between their ears giving no thought to anything except what they have been programed to repeat.

You are so programmed you can't even consider you might be wrong....you will defend your anti vaccine agenda if every single one of your family was dying of Polio right now....and blame someone or something else for it....saying the vaccines would not help....the gov't was out o discredit you and finally sent he MIB to silence your truth.

Put on some big girl grown up pants and go do something you might not love doing....and get yourself and family vaccinated. I ain't asking you to like it....I am asking you to understand it is better for everyone....including me if you do it. I don't want you getting all sick and giving me anti vaccine cotties....all the while telling me "But But I never got sick....I always kept myself healthy". To that I will point out....uhhhhh, you are on a Leukemia forum.....you are not technically keeping yourself completely healthy now, are you....

Scott

Happiness22 profile image
Happiness22

We have always gotten flu shots with good results. Afraid now because of immune system

Marie-54 profile image
Marie-54 in reply to Happiness22

Just do it. Your immune system needs all the boosts it can get from the vaccinations. Do not let anti-vaxxer's like chrystalsky turn you off of this very valuable resource at our disposal.

crystalsky profile image
crystalsky in reply to Marie-54

I don't appreciate your derogatory remark about me. You are beyond rude! I'm pro health, and if vaccines were 100% safe and made without toxic ingredients that pass the blood brain barrier, etc. I may think differently. Everyone can make their own choices. However, it's rude to label me. I thought we were still sovereign over our own bodies.

And for the umpteenth time, I simply suggested knowing what the ingredients are before getting injected, and that the single dose flu shot does not contain mercury, so it's a safer choice.

Canuck901 profile image
Canuck901

Vaccinations for children are a bit scary these days. The vaccinations day are nothing like they use to be , it’s primarily about money not health. Shoving vaccinations for babies is a bit ridiculous. I think a 3 year old would have 15 vaccinations. Why so many ? Why is autism rate so high for families that never had any history or Autism? For adults some vaccinations are safe but for children I’m

Wouldn’t give them any until they are older and yes my children are not vaccinated.

Newdawn profile image
NewdawnAdministrator in reply to Canuck901

Better diagnosis for children on the Autistic Spectrum is why there now appears to be an increase in reportable numbers Canuck. It was an undiagnosed and misunderstood condition for decades. Wakefield was found to have a financial interest in proving his now discredited hypothesis and put thousands of parents of autistic children through hell believing they may be responsible for their child’s condition by permitting vaccinations.

Following the discredited findings from Wakefield, this is taken from one of the links Lankisterguy posted. They’re worth reading!

‘Subsequent to the seminal article in the Lancet, many follow-up studies were performed testing the autism-MMR vaccine correlation. As the follow-up studies began to be published, however, it became increasingly clear that there was no link between MMR and autism. For example, a study in the British Medical Journal found that autism rates continued to climb in areas where MMR vaccination rates were not increasing (Taylor 1999). Another study found no association with MMR and autism or GI (gastrointestinal) disorders (Taylor 2002). Other studies showed no difference in the diagnosis rate of autism either before or after the MMR vaccine was administered (Honda 2005), or between vaccinated and unvaccinated children (Madsen 2002). Most recently, a study found that there was no decrease in autism rates following removal of the MMR vaccine in Japan (Honda 2005).’

csicop.org/si/show/anti-vac...

Newdawn

AussieNeil profile image
AussieNeilAdministrator in reply to Canuck901

Delaying vaccinations until children are older results in a higher mortality rate by denying protection from vaccinations against childhood illnesses. Children are far more susceptible to infections and are at a higher risk of dying. (Incidentally, that's why standard advice to those with CLL is to avoid contact with children, due to the higher risk of infection from them.)

Per en.wikipedia.org/wiki/Child... "Two-thirds of child deaths are preventable. Most of the children who die each year could be saved by low-tech, evidence-based, cost-effective measures such as vaccines, antibiotics, micronutrient supplementation, insecticide-treated bed nets, improved family care and breastfeeding practices and oral rehydration therapy."

Go for a walk in an old cemetery and see how many children died in the 19th and early 20th century when they were under 10 from diseases we rarely hear about nowadays. It must have been heartbreaking for those families.

Neil

Canuck901 profile image
Canuck901

For adults it’s a different story flu shots are beneficial but for vaccination on babies I’d think twice

PaulaS profile image
PaulaSVolunteer

Hi Happiness22 (what a lovely name),

I see that you're new here, so WELCOME to the forum! :-)

At the beginning of your post, you say you want to do everything right for your husband (who has CLL).

As he is still in “Watch and Wait”, he might find the following post helpful. It’s a list of “29 Things we can Do” to help our journey with CLL. I gathered most of the points from people on this forum, so it’s very much a joint effort.

healthunlocked.com/cllsuppo...

These are not complicated medical things. They are relatively simple things that we can do ourselves. Not everything will be relevant to your husband, as we’re all very different. But I hope he will find some things there that will help him. Perhaps you could go through the list together, and make an action plan.

Wishing all the best to you and your husband, as you continue with your CLL journey.

Best wishes,

Paula (in Yorkshire, UK).

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