Flu vaccine

Her vocabulary is your clue... she’s American! My Hematologist in San Antonio Texas kept correcting me when I called it Hughes Syndrome... ( he called it “APLS” and told me to do the same. He also told me I had ,”Lupus Anticoagulant “ which really confused me since I was put on warfarin immediately after my first obligatory tests were performed- and LA was the only one negative. )

I asked- “ I’m LA positive now? Did you do a test for that antibody despite the fact that I’m on warfarin?”

Seriously- this is why it just needs to be named “ Hughes Syndrome!!!!!!!”

I’m probably not done ranting.

I live in England in the Midlands. I was diagnosed with systemic lupus and antiphospholipid Syndrome and sjogrins syndrome in 1997 by Graham Hughes. I need to take warfarin to achieve a INR of 3-4.

I am interested in the 18/19 flu vaccine because the one with the booster for the elderly only contains 3 vaccines instead of 4. The Vaccine with 4 types has no booster and is just for younger people. I want to find if there is anything better for the elderly. Lots of them died last year.

I would rather have the option of paying myself if something better is available and I suspect many other people would.

I would also like to find out if anything is being done to solve the problems with CoaguChek. I use INRange and with INR range 3-4 I am usually 3.6 or above.

I have recently had to have vein tests twice a week.

Does anyone know what is happening with CoaguChek?