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Tried EVERYTHING, and now...
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
auntiesioux
in
Restless Legs Syndrome
6 years ago
Traveling to Ireland this coming week.
I’m supposed to be traveling to Ireland this coming week. I’m down to 2 mg DAs and 5 methadone. I’ve slept 5-7 hours the last 4 days. Am I crazy to take a 6 hour plane ride with this still up in the air or do I throw caution to the wind and go?
I’m supposed to be traveling to Ireland this coming week. I’m down to 2 mg DAs and 5 methadone. I’ve slept 5-7 hours the last 4 days. Am I crazy to take a 6 hour plane ride with this still up in the air or do I throw caution to the wind and go?
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Neupro and methadone
Oddly enough I am down to 2 mg of neupro and am taking 5mg of methadone. Got 7 hours sleep last night. Anyone else experience this? Can they be taken together long term?
Oddly enough I am down to 2 mg of neupro and am taking 5mg of methadone. Got 7 hours sleep last night. Anyone else experience this? Can they be taken together long term?
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
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Augmentation
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Methadone and edema
I’ve been on methadone 5mg once a day for a month. I noticed yesterday that I had edema in my left ankle. I had to go to the ER After taking all kinds of tests no causes that they could tell they told me to keep my leg up. But as soon as I do the RLS kicks in. Does anyone know if methadone causes edema
I’ve been on methadone 5mg once a day for a month. I noticed yesterday that I had edema in my left ankle. I had to go to the ER After taking all kinds of tests no causes that they could tell they told me to keep my leg up. But as soon as I do the RLS kicks in. Does anyone know if methadone causes edema
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Augmentation withdrawal and neupro patch
Has anyone experienced severe augmentation using the neupro patch? I was on Requip for over 10 years and noticed augmentation and my doc switched me to the patch. At first I didn’t notice any difference but very soon I began to notice that just one patch wasn’t enough so I would leave the previous days
Has anyone experienced severe augmentation using the neupro patch? I was on Requip for over 10 years and noticed augmentation and my doc switched me to the patch. At first I didn’t notice any difference but very soon I began to notice that just one patch wasn’t enough so I would leave the previous days
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Morphine!!
Hey guys I've been on morphine liquid and patch for ABT 20 years now waste time obviously immune to it now n it doesn't do anything!! But they ..drs...insist thats the best and strongest I did a swap n went on methadone for a while to get my body lean from morphine ... obviously I didn't like methadone
Hey guys I've been on morphine liquid and patch for ABT 20 years now waste time obviously immune to it now n it doesn't do anything!! But they ..drs...insist thats the best and strongest I did a swap n went on methadone for a while to get my body lean from morphine ... obviously I didn't like methadone
katzaminx
in
Pain Concern
6 years ago
Sleep, Anyone? Anyone?
Have any of you suffered from hyper insomnia, then changed meds and had some good sleep at last? At very long last? I am still on a small-ish dose of pramipexole, ready to wean with the help of methadone. Benzos make no difference to sleep, sadly. Nor do all the whacked out remedies, magnesium and
Have any of you suffered from hyper insomnia, then changed meds and had some good sleep at last? At very long last? I am still on a small-ish dose of pramipexole, ready to wean with the help of methadone. Benzos make no difference to sleep, sadly. Nor do all the whacked out remedies, magnesium and
Parminter
in
Restless Legs Syndrome
6 years ago
Pain is a pain!
My main condition is Adhesive Arachnoiditis. It causes severe intractable, 24/7 pain. Most MD's have never heard of it or are not familiar with it. Some think it is a fallacy, I wish! As many of you know, it has gotten much more difficult to get adequate pain meds since 2016 with the Opioid crisis
My main condition is Adhesive Arachnoiditis. It causes severe intractable, 24/7 pain. Most MD's have never heard of it or are not familiar with it. Some think it is a fallacy, I wish! As many of you know, it has gotten much more difficult to get adequate pain meds since 2016 with the Opioid crisis
Dnobkunjs
in
Pain Concern
6 years ago
Advice please.
I believe I have Fibromyalgia as I suffer from severe hand and foot pain plus balls of my feet are very painful walking, hands I can barely use in morning. I do kick my legs about but have exma so am not sure. I am taking methadone on a maintenance script for over 20 years. My symtoms have built up over
I believe I have Fibromyalgia as I suffer from severe hand and foot pain plus balls of my feet are very painful walking, hands I can barely use in morning. I do kick my legs about but have exma so am not sure. I am taking methadone on a maintenance script for over 20 years. My symtoms have built up over
Susat80
in
Fibromyalgia Action UK
6 years ago
OPIATE PAIN MEDICATIONS IN ADDITION TO THE USUAL GPA MEDS ???
As many of you know , federal and state governments in the US have severely clamped down on the prescribing of any drug in the opiate family at the same time the alcohol industry flourishes, and the medical and recreational marijuana industry is on the rise and set to financially explode in the next
As many of you know , federal and state governments in the US have severely clamped down on the prescribing of any drug in the opiate family at the same time the alcohol industry flourishes, and the medical and recreational marijuana industry is on the rise and set to financially explode in the next
Christophene47
in
Vasculitis UK
6 years ago
Amphetamine for methadone withdrawal???
What's working for me is dextroamphetamine. I've tried Gabapentin for RLS at 1000mg nightly and I have been going through hell. Was on methadone 160mg daily for 16 years for opiate addiction I got when I had cancer surgery. Over one year tapered to 25mg methadone daily then quit cold turkey. I was desperate
What's working for me is dextroamphetamine. I've tried Gabapentin for RLS at 1000mg nightly and I have been going through hell. Was on methadone 160mg daily for 16 years for opiate addiction I got when I had cancer surgery. Over one year tapered to 25mg methadone daily then quit cold turkey. I was desperate
BromazepamBrother
in
Restless Legs Syndrome
6 years ago
Antidepressant to wean off Pramipexole???
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
lbrosa
in
Restless Legs Syndrome
7 years ago
Appointment at Pain Clinic grrrr
Went to the first appt which is an info session where we were treated like complete imbeciles who knew nothing about pain, patronised and told we have to do random urine drug tests, the results of which are not on a secure database and any staff member in the hospital can access them and make assumptions
Went to the first appt which is an info session where we were treated like complete imbeciles who knew nothing about pain, patronised and told we have to do random urine drug tests, the results of which are not on a secure database and any staff member in the hospital can access them and make assumptions
Someonesmother
in
NRAS
7 years ago
My medical records
Hello all im new here and im here just to gain knowledge and help wherever i can . My first inquiry for advice is that recently i found out that i had someones medical info on my records and im concerned as during my court appeal for my PIP the Doctor on the panel asked me about being on methadone ,it
Hello all im new here and im here just to gain knowledge and help wherever i can . My first inquiry for advice is that recently i found out that i had someones medical info on my records and im concerned as during my court appeal for my PIP the Doctor on the panel asked me about being on methadone ,it
Kehydufe
in
NRAS
7 years ago
Opioid Dilemma
I suffer with Chronic pain due to Bulging Discs, Nerve Pain, Knee Pain and Arthritis. I was on Oxycontin for some time with NO addiction or dependence issues however I was referred to a pain specialist who took me off the Opioid medicine and put me on Methadone. I had issues with the Pain Specialist
I suffer with Chronic pain due to Bulging Discs, Nerve Pain, Knee Pain and Arthritis. I was on Oxycontin for some time with NO addiction or dependence issues however I was referred to a pain specialist who took me off the Opioid medicine and put me on Methadone. I had issues with the Pain Specialist
GeoffL
in
NRAS
7 years ago
Nash?
Hi I just need some support right now I will start by briefly going over my life.... As a teenager I drank alcohol very heavily and occasionally smoked weed pregnant at 19 and by 22 years old had a beautiful son and daughter alcohol intake had gone down by 24years old I was taking heroin lost everything
Hi I just need some support right now I will start by briefly going over my life.... As a teenager I drank alcohol very heavily and occasionally smoked weed pregnant at 19 and by 22 years old had a beautiful son and daughter alcohol intake had gone down by 24years old I was taking heroin lost everything
Hidden
in
British Liver Trust
7 years ago
Ragnar the drunk
Okay I was a junkie for about 3 years or something or 40 damn near and I've been drinking for about 25 and guess what I have Hep C high blood pressure I'm overweight I'm on methadone 16 years what can I expect oops I forgotcopd
Okay I was a junkie for about 3 years or something or 40 damn near and I've been drinking for about 25 and guess what I have Hep C high blood pressure I'm overweight I'm on methadone 16 years what can I expect oops I forgotcopd
Ruxrunk
in
British Liver Trust
7 years ago
Carbo Platin
Hi everyone. So Paul was in hospital for a week from last Tuesday until yesterday. This was because his pain medication was changed from MST to Methadone. The first couple of days were difficult, but now he is much better and this chronic abdominal pain - which is not cancer-related - is much better.
Hi everyone. So Paul was in hospital for a week from last Tuesday until yesterday. This was because his pain medication was changed from MST to Methadone. The first couple of days were difficult, but now he is much better and this chronic abdominal pain - which is not cancer-related - is much better.
MelaniePaul
in
Advanced Prostate Cancer
7 years ago
Couldn't Do Fourth Round Of Docetaxol: Husband Admitted To Hospital Tomorrow
Hi everyone. So today we couldn't do round 4 of Docetaxol. There was no doctor at the day ward so we are not sure what the reason was. Something was wrong with the bloods. The nurse said "liver is up so the professor wants to hold off", whatever that means. We saw the palliative care doctor, though,
Hi everyone. So today we couldn't do round 4 of Docetaxol. There was no doctor at the day ward so we are not sure what the reason was. Something was wrong with the bloods. The nurse said "liver is up so the professor wants to hold off", whatever that means. We saw the palliative care doctor, though,
MelaniePaul
in
Advanced Prostate Cancer
7 years ago
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