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update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
1 day ago
Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
9 days ago
Pregablin update
Today I had my review for my iron levels, I'll give you the short version.They were 179 in November post iron infusion and now at 101. I explained I had to double my dose of pregabalin as 150mg wasn't working g ,yet 200mg had previously been too much but now wasn't working ,so I was now taking 300mg
Today I had my review for my iron levels, I'll give you the short version.They were 179 in November post iron infusion and now at 101. I explained I had to double my dose of pregabalin as 150mg wasn't working g ,yet 200mg had previously been too much but now wasn't working ,so I was now taking 300mg
Baz33
in
Restless Legs Syndrome
1 month ago
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Length of gabapentin
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
senders
in
Restless Legs Syndrome
1 month ago
Severe Restless Leg
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Gette1274
in
Restless Legs Syndrome
1 month ago
Gabapentin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
Coeso
in
Restless Legs Syndrome
1 month ago
Cold Turkey Update
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
welschrispy
in
Restless Legs Syndrome
1 month ago
Botox Injections to relieve RLS
Viewers, I am contemplating Botox injections to relieve the RLS spasms at night. Has any of the members tried this method? It was mentioned to me at one time at Barrow Institute in Phoenix by a neurologist, but it was not carried through. I asked my current neurologist at Banner Research Institute
Viewers, I am contemplating Botox injections to relieve the RLS spasms at night. Has any of the members tried this method? It was mentioned to me at one time at Barrow Institute in Phoenix by a neurologist, but it was not carried through. I asked my current neurologist at Banner Research Institute
vikkitennis
in
Restless Legs Syndrome
2 months ago
Buprenorphine/Naloxone (Suboxone)
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Cashews
in
Restless Legs Syndrome
2 months ago
Methadone
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Lespenney
in
Restless Legs Syndrome
3 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
4 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
4 months ago
what to do? Take .25mg Pramipexole and 7.5mg zopiclone for 2 or 3 nights? Or not?
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Rayme
in
Restless Legs Syndrome
4 months ago
My story
I'm 35 on Christmas day. I was diagnosed with MS at age 16. I've been on pain meds and benzos ever since. Currently I'm on 140mg of methadone, 4mg/daily of clonazepam, muscle relaxers, Lyrica, and numerous other medications. When I get admitted to the hospital the nurses always say "wow, you're on alot
I'm 35 on Christmas day. I was diagnosed with MS at age 16. I've been on pain meds and benzos ever since. Currently I'm on 140mg of methadone, 4mg/daily of clonazepam, muscle relaxers, Lyrica, and numerous other medications. When I get admitted to the hospital the nurses always say "wow, you're on alot
Benny88
in
Anxiety and Depression Support
4 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
4 months ago
Success Story (so far, anyway)
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
buzzin247
in
Restless Legs Syndrome
4 months ago
One Small Setback...
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
vikkitennis
in
Restless Legs Syndrome
4 months ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
5 months ago
RLS Absence and Clarification
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
vikkitennis
in
Restless Legs Syndrome
5 months ago
To Infuse or not to Infuse
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
DesertOasis
in
Restless Legs Syndrome
6 months ago
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