Search
Search
About
Log in
Join
Experiences with
Mepron
Posts
Communities
4,300 public posts
Filter results
What do you think?
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
docbulldog
in
Advanced Prostate Cancer
7 months ago
Break from ADT or not?
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Simonapo
in
Advanced Prostate Cancer
7 months ago
Lupron and prostate cancer
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
rolex1951
in
Advanced Prostate Cancer
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update on appointment with professor Hughes
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
Griggser
in
PMRGCAuk
6 days ago
Update day 6 - Treatment fir Richter’s Transformation
Finally had my stat MRI 24 hours after the reaction. In this hospital stat is anytime within 24 hours of order written. MRI did not show tissue swelling or changes in neck and throat and the nodes have shrunk a little. Chest x-ray was normal, but did show another enlarging node on the right close to
Finally had my stat MRI 24 hours after the reaction. In this hospital stat is anytime within 24 hours of order written. MRI did not show tissue swelling or changes in neck and throat and the nodes have shrunk a little. Chest x-ray was normal, but did show another enlarging node on the right close to
ReneeSusan
in
CLL Support
7 days ago
Recurrence after prostatectomy
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
Fred312
in
Advanced Prostate Cancer
7 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
7 months ago
bicalutamide no longer as effective?
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
kreg001
in
Advanced Prostate Cancer
7 months ago
My trajectory after a "vacation" and a new metastasis
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
Istomin
in
Advanced Prostate Cancer
7 months ago
PSA Dropped after 22 days of Zytiga
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
dac500
in
Advanced Prostate Cancer
7 months ago
What is reco diet to take abi with food?
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
jackwfrench
in
Advanced Prostate Cancer
7 months ago
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
7 months ago
Bowel side effects
I began Lupron and Abi+Pred in 6/22. I did 33 whole pelvic radiation treatments in July and August of '22. Ever since, my bowel habits have been unpredictable. From constipation to loose. However, about 3 months ago I started having a lot of mucous in my BM's. Now, it is sometime mixed with bright
I began Lupron and Abi+Pred in 6/22. I did 33 whole pelvic radiation treatments in July and August of '22. Ever since, my bowel habits have been unpredictable. From constipation to loose. However, about 3 months ago I started having a lot of mucous in my BM's. Now, it is sometime mixed with bright
jmarsh
in
Advanced Prostate Cancer
7 months ago
I am back! In need of your excellent advice...
After successfully reducing to zero pred last autumn, the symptoms began to reappear. After advice about how to deal with a flare I increased the dose (to 15mg), but that didn't seem to help. Then I was given a depo-medrone injection, with the advice that it would last a couple of months and hopefully
After successfully reducing to zero pred last autumn, the symptoms began to reappear. After advice about how to deal with a flare I increased the dose (to 15mg), but that didn't seem to help. Then I was given a depo-medrone injection, with the advice that it would last a couple of months and hopefully
Sarnano
in
PMRGCAuk
2 months ago
Side Effects at 1 year
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
TMcgee
in
Advanced Prostate Cancer
7 months ago
Does Veozah help
Looking for relief from horrible hot flashes from Lupron
Looking for relief from horrible hot flashes from Lupron
Bonehead1171
in
Advanced Prostate Cancer
7 months ago
Several Peeing Wake Ups Nightly
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Yzinger
in
Advanced Prostate Cancer
7 months ago
Abiraterone edema management
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
Derf4223
in
Advanced Prostate Cancer
7 months ago
Enzalutamide + Lupron
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
VanHalen84
in
Advanced Prostate Cancer
7 months ago
leg cramps after Lupron oxybutinin
leg cramps. After my third 3month Lipton shot and after starting oxybutinin er, i am having cramps and pain in back of left leg. Totally able to do treadmill and the elliptical but if I have to go up a flight of stairs, the leg cramps just kill me. Anyone had any similar experiences?
leg cramps. After my third 3month Lipton shot and after starting oxybutinin er, i am having cramps and pain in back of left leg. Totally able to do treadmill and the elliptical but if I have to go up a flight of stairs, the leg cramps just kill me. Anyone had any similar experiences?
Photographerhere
in
Prostate Cancer Network
7 months ago
1
...
16
17
18
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3413 results
Prostate Cancer Network
181 results
Endometriosis UK
109 results
View top 10 communities
Sort by
Most Relevant
Newest