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Update and 2nd opinion
Hello again, I have asked a couple questions at the beginning of this journey and it has been very helpful. I had only went to my Urologist and felt like he was not doing all that could be done. I went to UPMC--U of Pittsburg--Hillman Cancer Center--Harrisburg PA for a second opinion. I am very glad
Hello again, I have asked a couple questions at the beginning of this journey and it has been very helpful. I had only went to my Urologist and felt like he was not doing all that could be done. I went to UPMC--U of Pittsburg--Hillman Cancer Center--Harrisburg PA for a second opinion. I am very glad
JD-guy
in
Advanced Prostate Cancer
3 years ago
Why are cardiac effects different for GnRH agonists and antagonists?
I've always been troubled by the observation that GnRH agonists (like Lupron, Gosarelix, Zoladex, and Triptorelin) had a high risk of cardiotoxicity while GnRH antagonists (Firmagon and Orgovyx) did not. Why should they be different if they both lower testosterone? This RCT offers a good explanation.
I've always been troubled by the observation that GnRH agonists (like Lupron, Gosarelix, Zoladex, and Triptorelin) had a high risk of cardiotoxicity while GnRH antagonists (Firmagon and Orgovyx) did not. Why should they be different if they both lower testosterone? This RCT offers a good explanation.
Tall_Allen
in
Advanced Prostate Cancer
3 years ago
What next after chemo, neuroendocrine cancer
Neuroendocrine prostate cancer treatment Gleason 9, 4+5, prostate cancer diagnosed in 2012. Prostate and 10 lymph glands removed in January, 2013.prostate cancer found in 1 lymph gland. Rising PSA in May, 20. Scans showed bone metastasis so started Lupron. February, 20, 2017 casodex added. Casodex
Neuroendocrine prostate cancer treatment Gleason 9, 4+5, prostate cancer diagnosed in 2012. Prostate and 10 lymph glands removed in January, 2013.prostate cancer found in 1 lymph gland. Rising PSA in May, 20. Scans showed bone metastasis so started Lupron. February, 20, 2017 casodex added. Casodex
Neuroendo
in
Advanced Prostate Cancer
3 years ago
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Off label use of Mekinist (Trametinib)
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
Graham49
in
Advanced Prostate Cancer
3 years ago
Frustrated with Lupron weight gain and not being able to drop #'s
To ask or not for an ADT Vacation? Two weeks till next Med Onc. 3 month F/U. I've been on Abiraterone 250mg and Lupron 90 day inj's and Prednisone since Sept 2019. And Lupron injection again. Disappointed with: Weight gain and lack of total energy. Should I be persistent with my med oncologist June
To ask or not for an ADT Vacation? Two weeks till next Med Onc. 3 month F/U. I've been on Abiraterone 250mg and Lupron 90 day inj's and Prednisone since Sept 2019. And Lupron injection again. Disappointed with: Weight gain and lack of total energy. Should I be persistent with my med oncologist June
depotdoug
in
Advanced Prostate Cancer
3 years ago
Apalutimide begins
I begin the Apalutimide on Tuesday once it is couriered out to me. This will be in conjunction with Lupron which started April 30th. I have a follow up appointment with the MO, Dr Suo on June 23rd with genetic testing bloodwork tomorrow am and follow up PSA every month for a year. Already on Lupron,
I begin the Apalutimide on Tuesday once it is couriered out to me. This will be in conjunction with Lupron which started April 30th. I have a follow up appointment with the MO, Dr Suo on June 23rd with genetic testing bloodwork tomorrow am and follow up PSA every month for a year. Already on Lupron,
Hailwood
in
Advanced Prostate Cancer
3 years ago
I'm going to start Taxotere, what are the experiences that you guys have had with it?
I know not everyone has the same reaction, but I'm going to start Taxotere the first of May. I know these medicines supposed to last for 2 years but when I was first diagnosed I got the testosterone production halted, radiation, and started on some pills. No idea what they were. They only lasted about
I know not everyone has the same reaction, but I'm going to start Taxotere the first of May. I know these medicines supposed to last for 2 years but when I was first diagnosed I got the testosterone production halted, radiation, and started on some pills. No idea what they were. They only lasted about
FinalBossMatt
in
Advanced Prostate Cancer
3 years ago
Urologist gives me 2 years to live.....what????
So let me tell you my story and ask for your thoughts. Diagnosed September 2020 with PC Gleason 4x4=8 on 12 cores out of 14. PSA was 43 which is what triggered everything. Just turned 59. No symptoms, only caught on routine physical. Never been to the doctor before for any condition. (daughter asked
So let me tell you my story and ask for your thoughts. Diagnosed September 2020 with PC Gleason 4x4=8 on 12 cores out of 14. PSA was 43 which is what triggered everything. Just turned 59. No symptoms, only caught on routine physical. Never been to the doctor before for any condition. (daughter asked
Bradblue
in
Advanced Prostate Cancer
3 years ago
Advice on Treating Liver and Lymph Node Mets
Hi Everyone, I was diagnosed with PC that spread to my regional lymph nodes and liver in October, 2019. I have been on Lurpon/Eligard from the beginning with six cycles of chemo from November 2019 to March 2020. My oncologist added Zytiga and prednisone on top of Lupron immediately after I finished chemo
Hi Everyone, I was diagnosed with PC that spread to my regional lymph nodes and liver in October, 2019. I have been on Lurpon/Eligard from the beginning with six cycles of chemo from November 2019 to March 2020. My oncologist added Zytiga and prednisone on top of Lupron immediately after I finished chemo
Eddy-Merckx
in
Advanced Prostate Cancer
3 years ago
When your PSA start raising up is that means your castrate resistant?
Hi Everyone, I'm proud wife of DarkEnergy, my husband darkEnergy Diagnosed stage4 metastasis with PSA 1000+ was August 2018, after 3 months of Zytiga, Lupron plus he added chemo to it he's psa became undetectable to 0.02 , two years later my husband decided to stopped ADT to see what kind of cancer
Hi Everyone, I'm proud wife of DarkEnergy, my husband darkEnergy Diagnosed stage4 metastasis with PSA 1000+ was August 2018, after 3 months of Zytiga, Lupron plus he added chemo to it he's psa became undetectable to 0.02 , two years later my husband decided to stopped ADT to see what kind of cancer
CaseydelaTor
in
Advanced Prostate Cancer
3 years ago
Does Firmagon injection scar tissue go away? How long does it take?
After about 8 months of Firmagon monthly injections in my belly area, I switched 3 months ago to Lupron injections in my “love handles.” I switched to preserve remaining belly sites not made lumpy by Firmagon for my insulin pump ports—insulin injection plus Continuous Glucose Monitoring (CGM). I insert
After about 8 months of Firmagon monthly injections in my belly area, I switched 3 months ago to Lupron injections in my “love handles.” I switched to preserve remaining belly sites not made lumpy by Firmagon for my insulin pump ports—insulin injection plus Continuous Glucose Monitoring (CGM). I insert
happycamperguy
in
Advanced Prostate Cancer
3 years ago
Adaptive Therapy as it applies to the treatment of cancer: Part One - A Personal Perspective
This is a multipart post. The part herein is a general introduction to the concept of Adaptive Therapy as it applies to the treatment of cancer. The subsequent post(s) is(are) about recent research efforts that model the theory and provide clinical evidence of it's efficacy for PCa. Linked below is
This is a multipart post. The part herein is a general introduction to the concept of Adaptive Therapy as it applies to the treatment of cancer. The subsequent post(s) is(are) about recent research efforts that model the theory and provide clinical evidence of it's efficacy for PCa. Linked below is
cujoe
in
Fight Prostate Cancer
3 years ago
Ultralong down regulation for endometriosis
Has anyone had long lasting side effects after long down regulation to prepare for fet with endometriosis (ie 3 months lupron /zoladex /synarel etc)
Has anyone had long lasting side effects after long down regulation to prepare for fet with endometriosis (ie 3 months lupron /zoladex /synarel etc)
Mj1986
in
Fertility Network UK
3 years ago
Orchiectomy - Are you happy with the results?
I have seen some comments on this site about those of you who have had an Orchiectomy. No more Lupron. I have been on Lupron for 2 1/2 years. Just completed my 4th infusion of Docetaxel, 2 more to go. Question - for those of you who have had an Orchiectomy, are you happy you did it? Any complications
I have seen some comments on this site about those of you who have had an Orchiectomy. No more Lupron. I have been on Lupron for 2 1/2 years. Just completed my 4th infusion of Docetaxel, 2 more to go. Question - for those of you who have had an Orchiectomy, are you happy you did it? Any complications
Hidden
in
Advanced Prostate Cancer
3 years ago
Lupron - How do you do it...
Oh my word, I've first got to say I am so thankful for finding this forum where I can finally learn somethings and also ask some questions... One of my questions is how in the world do so many pay for LUPRON? I mean, I have good insurance but even with that one injection still costs me $475 out of my
Oh my word, I've first got to say I am so thankful for finding this forum where I can finally learn somethings and also ask some questions... One of my questions is how in the world do so many pay for LUPRON? I mean, I have good insurance but even with that one injection still costs me $475 out of my
RMHFlorida
in
Prostate Cancer And Gay Men
3 years ago
Starting ADT
So, after prostatectomy in 2013 and SRT in 2015, my psa continues to climb. The last 6 month rise was from 0.82 to 1.80. A bone scan found no mets; an abdominal/pelvic CT scan showed "some small lymph nodes are noted in the right iliac chain measuring up to 10-11 mm", the size of the nodes being
So, after prostatectomy in 2013 and SRT in 2015, my psa continues to climb. The last 6 month rise was from 0.82 to 1.80. A bone scan found no mets; an abdominal/pelvic CT scan showed "some small lymph nodes are noted in the right iliac chain measuring up to 10-11 mm", the size of the nodes being
ekirkland
in
Advanced Prostate Cancer
3 years ago
A Return To Normal?
Guys, I can’t put into words how supportive this group of warriors has been on this journey. After 40 months of being sick and tired of being tired I’m searching for a new path for an improved quality of life. I’m a young 66 year old who loves to hike, golf and ride my motorcycle. I’m contemplating having
Guys, I can’t put into words how supportive this group of warriors has been on this journey. After 40 months of being sick and tired of being tired I’m searching for a new path for an improved quality of life. I’m a young 66 year old who loves to hike, golf and ride my motorcycle. I’m contemplating having
3putt
in
Advanced Prostate Cancer
3 years ago
PSMA scan
so my husband had CT scan and Bone scan at UCSF November & December. All clear. First Lupron injection Jan 11, and started Abiraterone Mar 9th. Plan is for Brachytherapy at UCSF then 25 External beam. Had a PSMA scan Monday with a PSA 0.8 Radiation Oncologist had this to say: I am out on vacation
so my husband had CT scan and Bone scan at UCSF November & December. All clear. First Lupron injection Jan 11, and started Abiraterone Mar 9th. Plan is for Brachytherapy at UCSF then 25 External beam. Had a PSMA scan Monday with a PSA 0.8 Radiation Oncologist had this to say: I am out on vacation
JWPMP
in
Advanced Prostate Cancer
3 years ago
Cannot take antioxidants during radiotherapy
My first run on Lupron a year ago had been debilitating making it very difficult for me to do my work as a software developer. I ended up going off Lupron following that first shot. In January of this year, I went back on Lupron but I found ways to fight the fatigue and brain fog with a combination
My first run on Lupron a year ago had been debilitating making it very difficult for me to do my work as a software developer. I ended up going off Lupron following that first shot. In January of this year, I went back on Lupron but I found ways to fight the fatigue and brain fog with a combination
Mascouche
in
Advanced Prostate Cancer
3 years ago
Anyone using Dr. Scott Tagawa in NYC @ Cornell?
Hello everyone, Interested to find others that have been going to Dr. Scott Tagawa @ Cornell in NYC. My cancer is at a new turning point. My PSA has been on a slow rising for at least 10 months now, from undetectable to, as of last month 3.3. I was on Zytiga 2.5 years , Lupron since chemo (ended 11/
Hello everyone, Interested to find others that have been going to Dr. Scott Tagawa @ Cornell in NYC. My cancer is at a new turning point. My PSA has been on a slow rising for at least 10 months now, from undetectable to, as of last month 3.3. I was on Zytiga 2.5 years , Lupron since chemo (ended 11/
esmitee
in
Advanced Prostate Cancer
3 years ago
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