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My story - so far
Hello fellow riders Thought I will update you on my status which might give some hope to newcomers and share data with others in similar positions. First a recap: Diagnosed April 2018 PSA 23 Gleason 9 , cancer escaped the capsule so no surgery for me. PET/CT PSMA found no distant/bone mets but several
Hello fellow riders Thought I will update you on my status which might give some hope to newcomers and share data with others in similar positions. First a recap: Diagnosed April 2018 PSA 23 Gleason 9 , cancer escaped the capsule so no surgery for me. PET/CT PSMA found no distant/bone mets but several
dorke
in
Advanced Prostate Cancer
4 years ago
Prednisone Caution
In January of this year, I started adding Zytiga and Prednisone to my meds. I also continued Lupron and Avodart. I also have vision/eye issues including Macular Degeneration and I have regular eye injections, and less not forget heart problems. I subscribe to a monthly publication titled "Worst Pills
In January of this year, I started adding Zytiga and Prednisone to my meds. I also continued Lupron and Avodart. I also have vision/eye issues including Macular Degeneration and I have regular eye injections, and less not forget heart problems. I subscribe to a monthly publication titled "Worst Pills
middlejoel
in
Advanced Prostate Cancer
4 years ago
Introduction
My husband had prostate cancer, Gleason9-10, after being on "watchful waiting"-i.e. waiting but no watching. ;-( (At UCLA) He had local spread by then. He had had 3 TURPS years ago for BPH but not cancer, so he couldn't have more surgery at the time of CA diagnosis.; He was treated by Chris with 5 days
My husband had prostate cancer, Gleason9-10, after being on "watchful waiting"-i.e. waiting but no watching. ;-( (At UCLA) He had local spread by then. He had had 3 TURPS years ago for BPH but not cancer, so he couldn't have more surgery at the time of CA diagnosis.; He was treated by Chris with 5 days
concernedwife--
in
Prostate Cancer Network
4 years ago
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Bouncing PSA
Bouncing PSA, it was 3.2 in fall of 2019, 3.7 in February of this year, last one in may of this year came in at 4.6. What causes it to act so erratic and it seems to be rising very slowly. Has anybody experienced this stock market fluctuation and ideas why it is doing this ? Still on 3 month lupron
Bouncing PSA, it was 3.2 in fall of 2019, 3.7 in February of this year, last one in may of this year came in at 4.6. What causes it to act so erratic and it seems to be rising very slowly. Has anybody experienced this stock market fluctuation and ideas why it is doing this ? Still on 3 month lupron
Muffin2019
in
Advanced Prostate Cancer
4 years ago
SWITCHING ADT TREATMENTS
Hello, would like to get some feedback on switching from Firmagon to Lupron. Have been on firmagon and Erleada since 8/19. I have tolerated treatment well to this point. MO wants to start lupron this month. Kind of concerned about switching to a new med when the existing one is being tolerated fairly
Hello, would like to get some feedback on switching from Firmagon to Lupron. Have been on firmagon and Erleada since 8/19. I have tolerated treatment well to this point. MO wants to start lupron this month. Kind of concerned about switching to a new med when the existing one is being tolerated fairly
Edcl
in
Advanced Prostate Cancer
4 years ago
estrogen and zitiga
Can I take estrogen patches to relieve fatigue with current meds, . Lupron ,zitiga and prednisone,PSA 0.016, test 0.1.Or stop everything and use patches onlr?
Can I take estrogen patches to relieve fatigue with current meds, . Lupron ,zitiga and prednisone,PSA 0.016, test 0.1.Or stop everything and use patches onlr?
milto27xabc
in
Advanced Prostate Cancer
4 years ago
Question about xtandi response during initial treatment :)
Hello, I hope everyone is doing well on here!! I posted awhile ago in regards to my dad who started on xtandi a month ago and Lupron 3 months ago. His initial PSA was 11 with bone mets when he was diagnosed. He just did blood work a week Ago and his PSA has dropped to 0.53, but his ALP went from 70 to
Hello, I hope everyone is doing well on here!! I posted awhile ago in regards to my dad who started on xtandi a month ago and Lupron 3 months ago. His initial PSA was 11 with bone mets when he was diagnosed. He just did blood work a week Ago and his PSA has dropped to 0.53, but his ALP went from 70 to
Maraba90
in
Advanced Prostate Cancer
4 years ago
Lupron and Prostate Cancer
I have come across statements like: Lupron can kill prostate cancer, prevent cancer cells from growing, shrink tumor, etc. I am just curious to know what fraction of cancer cells are killed by Lupron and what fraction is kept dormant while on Lupron.
I have come across statements like: Lupron can kill prostate cancer, prevent cancer cells from growing, shrink tumor, etc. I am just curious to know what fraction of cancer cells are killed by Lupron and what fraction is kept dormant while on Lupron.
dac500
in
Advanced Prostate Cancer
4 years ago
Latest PSA whilst on Abiraterone
So, only a drop to 4.1 this month with T under 3. Previous months : 4.2, 6. 6, 12.9 Been on Abiraterone since January 2020. Also on Lupron, Metformin, and Lipitor. I'm a bit concerned that I'm already at a plateau with Abiraterone. I believe that I read on HU that chemos now may get the action of Abiraterone
So, only a drop to 4.1 this month with T under 3. Previous months : 4.2, 6. 6, 12.9 Been on Abiraterone since January 2020. Also on Lupron, Metformin, and Lipitor. I'm a bit concerned that I'm already at a plateau with Abiraterone. I believe that I read on HU that chemos now may get the action of Abiraterone
dockam
in
Advanced Prostate Cancer
4 years ago
After Radiation Issues
Hello my dad had radiation to his humerus and hip area. About 6 weeks ago. He says he doesn’t notice any pain relief instead he feels more tired and same amount of pain and burning. I asked the Radiation Oncologist and urologist and they seem puzzled and said they have never heard of that? I looked at
Hello my dad had radiation to his humerus and hip area. About 6 weeks ago. He says he doesn’t notice any pain relief instead he feels more tired and same amount of pain and burning. I asked the Radiation Oncologist and urologist and they seem puzzled and said they have never heard of that? I looked at
Olivia007
in
Advanced Prostate Cancer
4 years ago
TMPRSS2 & COVID-19
{I hope this isn't too much for a Monday. My eyes used to glaze over when I saw references to serine proteases. By all means skip to the
Bottom Line
, below.} TMPRSS2 [transmembrane protease, serine 2] has been a recurrent topic in the PCa literature for a while. Close to a thousand papers reference
{I hope this isn't too much for a Monday. My eyes used to glaze over when I saw references to serine proteases. By all means skip to the
Bottom Line
, below.} TMPRSS2 [transmembrane protease, serine 2] has been a recurrent topic in the PCa literature for a while. Close to a thousand papers reference
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Docetaxal treatment #2 upcoming.
Well one down 5 more treatments to go, number 2 on the 13th. My white blood count is currently at one it's down from pre chemo numbers, to be expected according to my m.o, I requested neulasta on the next go around. Hair coming out in clumps despite cooling cap oh well who loves us baby. Kojak reference
Well one down 5 more treatments to go, number 2 on the 13th. My white blood count is currently at one it's down from pre chemo numbers, to be expected according to my m.o, I requested neulasta on the next go around. Hair coming out in clumps despite cooling cap oh well who loves us baby. Kojak reference
Costarica1961
in
Advanced Prostate Cancer
4 years ago
Xgeva experiences
Hello all. I've posted a few times and read religiously the information given on this forum. I now have arrived at the Docetaxel stage of my cancer. Erleada, Casodex, Xtandi, Zoladex, Lupron. All have failed and my PSA is still rising. It recently went above 4. I am doing chemo for 10 sessions every
Hello all. I've posted a few times and read religiously the information given on this forum. I now have arrived at the Docetaxel stage of my cancer. Erleada, Casodex, Xtandi, Zoladex, Lupron. All have failed and my PSA is still rising. It recently went above 4. I am doing chemo for 10 sessions every
dpowellnt
in
Advanced Prostate Cancer
4 years ago
Weight training Supplement
I find some weight training gives me energy. I am 73 and my legs are shot . I have been on Lupron for three years . So I pump light weights . My question is what would be a good supplement to my light weight training ? Without advancing my stage four cancer . Thank you for any input .
I find some weight training gives me energy. I am 73 and my legs are shot . I have been on Lupron for three years . So I pump light weights . My question is what would be a good supplement to my light weight training ? Without advancing my stage four cancer . Thank you for any input .
Sun1115
in
Advanced Prostate Cancer
4 years ago
Xtandi not working?
Started Xtandi a month ago after my PSA went to 8.3 almost a year after radiation and Lupron every three months also started casodex prior to Xtandi. Had second opinion from another Oncologist and said this was the right course to take and suggested have PSA in a month. Had PSA last week and PSA has
Started Xtandi a month ago after my PSA went to 8.3 almost a year after radiation and Lupron every three months also started casodex prior to Xtandi. Had second opinion from another Oncologist and said this was the right course to take and suggested have PSA in a month. Had PSA last week and PSA has
Scootman
in
Advanced Prostate Cancer
4 years ago
Advice concerning treatment and supplements
Hi again! I am struggling to find posts about what kind of ADT-treatment that could be least harmful to my husband who has got coronary heart disease. He is on babyaspirin, atorvastatin and metoprolol. He has got a rising PSA and 2 lymph node mets. We will ask for radiation of these. I have heard that
Hi again! I am struggling to find posts about what kind of ADT-treatment that could be least harmful to my husband who has got coronary heart disease. He is on babyaspirin, atorvastatin and metoprolol. He has got a rising PSA and 2 lymph node mets. We will ask for radiation of these. I have heard that
tasmanien13
in
Advanced Prostate Cancer
4 years ago
Lupron/Radiation Treatment and Autoimmunity
Given that older people (I'm 70) are more exposed to COVID, how would radiation and 2 years of Lupron and Casodex affect my autoimmunity, given few other chronic conditions?
Given that older people (I'm 70) are more exposed to COVID, how would radiation and 2 years of Lupron and Casodex affect my autoimmunity, given few other chronic conditions?
brooklynb
in
Prostate Cancer Network
4 years ago
When to stop taking calcium after stopping Lupron?
I was wondering when it was OK to stop taking calcium supplements after stopping Lupron? I have no issues with taking D3K2, but I am concerned that there are some current studies that show that this actually has no effect on bone density and actually at large doses can cause problems with prostate cancer
I was wondering when it was OK to stop taking calcium supplements after stopping Lupron? I have no issues with taking D3K2, but I am concerned that there are some current studies that show that this actually has no effect on bone density and actually at large doses can cause problems with prostate cancer
SooHwa99
in
Advanced Prostate Cancer
4 years ago
Study shows Lupron lowers chances of getting the Wuhan virus. Only four out of 5,273 PCx patients on ADT got covid and none of them died.
Prof. Andrea Alimonti and team looked at more than 9000 patients with confirmed COVID-19 infection in Veneto, Italy; they also used data on all cancer patients in the region for comparison. Among all prostate cancer patients, only 4 out of 5,273 men on ADT developed COVID-19 infection. None of the men
Prof. Andrea Alimonti and team looked at more than 9000 patients with confirmed COVID-19 infection in Veneto, Italy; they also used data on all cancer patients in the region for comparison. Among all prostate cancer patients, only 4 out of 5,273 men on ADT developed COVID-19 infection. None of the men
GeorgeGlass
in
Advanced Prostate Cancer
4 years ago
Question on Bicalutamide Withdrawal
There is evidence that when you are on Lupron and Bicalutamide for metastatic prostate cancer and your PSA starts rising, stopping Bicalutamide may, in some cases, lead to drop in PSA. In my case, I was on Lupron + Bicalutamide for one year for metastatic prostate cancer. My PSA dropped from 4.48 to
There is evidence that when you are on Lupron and Bicalutamide for metastatic prostate cancer and your PSA starts rising, stopping Bicalutamide may, in some cases, lead to drop in PSA. In my case, I was on Lupron + Bicalutamide for one year for metastatic prostate cancer. My PSA dropped from 4.48 to
dac500
in
Advanced Prostate Cancer
4 years ago
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