5 years Stage 4

[S42019]

Just joined

I have been taking 1000mg Zytiga with prednisone 5mg 2x day for about 2 years. I also get Lupron shots every 6 months. Radiation about 5 years ago. Also had Immunotherapy about 1 year ago small drop in PSA & testosterone.

[Hidden]

Welcome 5 years stage 4 just like me . Congrats ! I did imrt about 5 years ago myself . I haven’t done immunotherapy though . I’m on tak-700 stopping my adrenal production . I did Lupron until an orchiectomy 9-17 allowed me to stop the shots . Take care

[Magnus1964]

Welcome, hope you are doing well. Glad you found us. There's a lot of years of experience here. Any questions or guidance is here for the asking.

[konichiwa12]

Welcome to the group! How has your PSA been throughout the treatment? I am also on 1000mg Zytiga and 10mg Prednisolone daily since December last year. My PSA dropped from 4.87 to 2.06/2.68/2.8/2.95/2.73/2.89 and yesterday 3.18. I am waiting to hear from Onco as to whether that change is significant or not. It is good that it has worked for 2 years for you.

[Gunnershome]

Welcome. Wonderful to here positive news!!! 👍Can I ask what immunotherapy you had/are having? Gleason score too? My husband has stage 4, Gleason 10.

[Wings-of-Eagles]

Welcome to the forum! What else can you add about your history? Check out the recent timely posts by Tall Allen about Advanced PC. Just click on to his name and follow him and his posts. Also a lot of great guys here and above that replied to you that you should "follow".

By "following" you can get e-mail updates when they post, if you list your e-mail in your profile.

I also am almost 6 years in remission on the same doses of Zytiga, and Prednisone and Xgeva every 3 months. My DX was Stage 4 with 4 bone mets. Three Gl 4+3=7 core samples at biopsy in 2012. Keep the faith!

Wings aka Dan in So Cal

[CalBear74]

Do you understand I hope that 1000 mg a day of zytiga can be reduced to 250 mg if you take it with a low fat meal such as low fat yogurt in the morning. Further cost savings is available if you purchase the generic version Yonsa. See GoodRX for coupons, like Costco, Which greatly reduce costs.

If you do a Google search you will find references to the clinical trial that demonstrated the superiority of the low fat meal option and the resulting savings for patients.

[j-o-h-n]

Greetings S42019.

Would you be kind enough to let us know Your age? Location? Treatment Center? Treatments to date? Scores psa/gleason? Doctor(s) name(s)? All info is voluntary but it helps us help you and helps us too. Thank you!!! If you respond you may want to add that data to your home page for your use and for other members to view.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 07/11/2020 3:06 PM DST