I know fatigue is one of the most common side effects of lupron and Xtanti which I am on both. But for almost 2 years I have exercised 3-4 times a week including running a few miles followed by light lifting and stretching even some yoga. I breezed through radiation last year . I’m 48 years young with mets to my ribs spine and pelvis. My psa was undetectable for almost a year and .02 last month. I’m a single parent of 3 kids, full time job and have been very fortunate to continue life as normal as possible but in the last few weeks my energy is zapped. It’s a different kind of tired, not sleepy tired, but almost like I can tell my body is fighting something. Has anyone else felt these feelings? If so was it attributed to the cancer, or the medicine to fight the cancer? I know there is this beast in me that has been kept in check but I was wondering if these are feelings resulting from it “waking up”. I know the Dr will ultimately tell me but I’ve been able to avoid the extreme fatigue, and was wondering is this what others are feeling? I go back to check my PSA in 2 weeks.
After 21 months of feeling good, fati... - Advanced Prostate...
After 21 months of feeling good, fatigue now?
Oh yes! Fatigue syndrome hit me hard for three years. No stamina or endurance are the new me. I say it is having no t . Our driving force has been cut .. I’m five years in with 3 t. Whoo hoo! What a ride. 48 is too young for this . Being a single dad too ? Dam? I’m sorry . You are amazing ! Keep you head high !
Thank you! I am. I always give thanks to God for giving me strength every day to do all I am able. It’s just getting a little harder lately
I think the SE’s from ADT gradually build over time. I noticed a big jump in fatigue around the one year mark, where sometimes I get so dead tired, I have to take a nap. The effects seem to be amplified the first week or two after a Lupron shot. I’m taking monthly shots to try to smooth out the dosage.
Consider Ritalin. Ask your Oncologist about it. My Palliative Care Doctor prescribed it for me. It's like a cup of coffee that works all day for me. Mid day with out if I sit down I'm out. In my "before life" I couldn't fall asleep mid day EVER. I have an extended release where I manage a full day "in the game". No inadvertently falling asleep. More go if that makes sense?
Best to you!
Yes, that makes sense. Like the Aerosmith song “my get up and go must have got up and went”.....really in more ways than one.
Yes, get the same swings in fatigue and mental acuity. I’m doing intermittent ADT and this happens each cycle. I attribute it to the body learning how to react to no T; and it is NOT linear over time.
You’re doing great things for yourself and your kids by staying active, no matter how challenging. Keep up the good work and best of luck!
Some guys on the forum have been able to lower their Xtandi dose and still get the same results, but with less fatigue. There have been quite a few posts on this subject.
I was hoping staying active would be the trick but I am only 9 months in to this so maybe it's just a matter of time. Hope you find a way back to your old new normal. Let us know if you find a way to resolve it. I hate the idea of taking more pharmaceuticals myself.
I've been on eligard for darn near 3 years and fatigue has been almost the worst side effect. I'm just working 3 days a week now but the other 4 I sleep 10 or more hours a night. I can't imagine doing this with kids to take care of. You must be a strong guy. Did I mention brain fog? Must have forgotten to. God bless you.
Did you get a Corona test....we always look to the cancer.......Blue Skies
I’ve been on Lupron for over 6 years now and Xtandi for around 5. Fatigue and SE’s definitely have increased over time. I can get a great nights sleep and still have to grind through a day feeling an almost sickly type of fatigue. Be sure you’re taking Xtandi in the evening, it’s known for causing fatigue. And as Gregg said, I’ve been able to reduce the Xtandi to 2 a day instead of 4 and still have it be effective, I did this with the advice and guidance of my MO of course.
And I agree with MichaelDD’s comment regarding Ritalin, it helps greatly both with fatigue as well as cognitive issues. It’s not a cure-all for these SE’s but helps quite a bit. A good MO should be familiar with its use for cancer patients.
Ed
More power to you, I can’t imagine dealing with PCA and also looking ee kids single handed.
I am 77 and have been on Lupron, every three months, for 18 months. I definitely notice more fatigue, but I still don’t nap in afternoon and I find that, while I am weak and tire easily when I try to sprint when swimming, I can carry on routine Standing and moving around tasks throughout the day.
During the day I practice Chi Kung (Quiquong) and in the evening, I smoke or ingest pot which I find clears away the fatigue so I can enjoy doing nothing.
All the best to you.
For me, the SEs of ADT morphed considerably from week to week. For the first six mos, I was fine: hot flashed, fatigue, no libido, moodiness--all waxing and waning in intensity seemingly at random, but I felt OK. I remember going in for my second 6-mo Eligard injection with a smile on my face. 2 - 3 months later, the "moodiness" had morphed to a depression so profound I was desperately hoping to die--in my sleep, or a via a high-speed car accident. Got on antidepressants and felt fine again.
My point is that the SEs are really hard to predict, even in the same person, over even short periods of time.
I agree with the others: I can't imagine doing this and taking care of kids. You're a brick. Take care and good luck.
Thank you! I just always wonder am I dealing with side effects or am I dealing with cancer, or both? I will say that although I have a lot on my plate I am very fortunate. My kids to go with their mom every other weekend which helps. That hasnt always been the case and I work at a family dealership a mile from my house. Also my daughter is a huge help to me and her twin brothers.
I call it my "I don't shive a git" syndrome...........
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 07/05/2020 1:37 PM DST
By the way I’m the one with the 12-year-old son who Is on the autism spectrum disorder. ABA therapy has been helping thankfully but of course with no school, or much anything else he is pretty content to stay at home. We will see how he does as he has to re-enter the world. But at least for now he is doing better.
We need to start The Order of Noble Warriors composed of exceptional individuals who are raising children by themselves. fighting cancer, dealing with SEs. and doing it all without a spouse or partner.
Thank you! But I have to give all credit to God. I am very fortunate. I have the support of my family, my parents are still around, I work at a family dealership where my brother is the owner so I have flexibility and my daughter is a huge help to her twin Brothers and me. And their mom is kind of crazy so I don’t mind being single 
yes it’s a very hard but and I kids give me a reason to fight .
Interesting the guy who said he takes Ritalin.
I think another guy has said CBD oil helps him with fatigue. And my friend ( no cancer) said Vitamin A stopped him sleeping all day.
Probably the answers might be more appropriate coming from the active younger guys on this site. Your exercise regime looks good. You have kept the same exercise program despite current fatigue?? Some guys might suggest a change in diet. Has your weight stayed the same?
I’m 58, active in soccer, golf etc but with gyms only just reopening I have gained 10lbs since March and would prefer to be less than 180lbs instead of 206lbs!
I’m on Zytiga and Zoladex.
Being more active in a week helps my mood and sometimes I have to push myself to be active eg go to soccer. But after exercise always feel better. And after soccer it’s beer time with the lads!!
My weight has stayed the same. I initially lost about 12 pounds when I was diagnosed but that’s because I was too depressed to eat. I weigh 172 and I am 5-10”. I do change up the routine and run different routes and do different lifting routines every so often .
My friend, I have been on those meds for four + years. I am seventy-seven, and know fatigue and chemo brain. Like you, I appreciate those drugs even with their side effects. Your responsibility is your children. My concern is to care for my wife of fifty-seven years who is a victim of dementia. She requires my constant care, and I give it willingly and with deep love. I have no solution for fatigue, but by the grace of God and the help of our two caring adult children I am able to stay the course. Best wishes and prayers as you continue the journey. Ray
Best wishes and prayers for you too!! One day at a time
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