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Experiences with
Medium chain acyl dehydrogenase deficiency
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When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
4 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
4 months ago
Diagnosis= mild kidney atrophy
Hi, I am not new to Health Ulocked but new to this community. I recently had an ultra sound of the kidneys and it indicated that I have mild atrophy of the kidneys. Right kidney Size: 8.2 x 4.7 x 4.3cm the left measures e: 9.6 x 3.0 x 4.6cm. My eGFR ranges from 60-64. I have not been able to find much
Hi, I am not new to Health Ulocked but new to this community. I recently had an ultra sound of the kidneys and it indicated that I have mild atrophy of the kidneys. Right kidney Size: 8.2 x 4.7 x 4.3cm the left measures e: 9.6 x 3.0 x 4.6cm. My eGFR ranges from 60-64. I have not been able to find much
Merny5
in
Kidney Disease
2 months ago
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Nosebleeds and thyroid / blood test query / going private
Hi there :) You were all so helpful when I was first diagnosed with hypothyroidism last year, and I was hoping I could trouble you all with another question. - My levothyroxine was raised to 75mg a day in February based on my NHS blood test (TSH 5.91 mU/L, free T4 15.8pmol/L). - Not really sure if
Hi there :) You were all so helpful when I was first diagnosed with hypothyroidism last year, and I was hoping I could trouble you all with another question. - My levothyroxine was raised to 75mg a day in February based on my NHS blood test (TSH 5.91 mU/L, free T4 15.8pmol/L). - Not really sure if
Fweb
in
Thyroid UK
2 months ago
I have RLS and recently updated iron labs revealed the following: Ferritin=59.2ng/mL & Transferrin Saturation = 53%.
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
DTache
in
Restless Legs Syndrome
4 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
4 months ago
Cold and IBS
I just developed a really bad cough I know I got it from my grandson and his brother got it and then his mum, now I have it, it's a dry cough and my throat is like sandpaper but everytime I cough I have to rush to the bathroom it only happens in the evening after dinner, just pooping little bits, I suffer
I just developed a really bad cough I know I got it from my grandson and his brother got it and then his mum, now I have it, it's a dry cough and my throat is like sandpaper but everytime I cough I have to rush to the bathroom it only happens in the evening after dinner, just pooping little bits, I suffer
Linedanceing
in
IBS Network
3 months ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Ttck1825
in
British Liver Trust
3 months ago
Iron deficiency
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
50568789
in
Restless Legs Syndrome
4 months ago
Can low iron cause intolerance to thyroxine?
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
GreenTealSeal
in
Thyroid UK
4 months ago
Prague/Berlin and a bigggg medal
I've been taking part in the Superhalf series of half marathons since last year. When the date for Prague was announced, I signed up. Then a few days later, the Berlin date came up...and it was taking place 24 hours later. Oh, eeek. So after ummibg and ahhing, I decided to do them. Yeah, back to back
I've been taking part in the Superhalf series of half marathons since last year. When the date for Prague was announced, I signed up. Then a few days later, the Berlin date came up...and it was taking place 24 hours later. Oh, eeek. So after ummibg and ahhing, I decided to do them. Yeah, back to back
Teresa1632
Half Marathon
in
Fun Beyond 10K & Race Support
3 months ago
to much to handle
Right now I’m trying to support everyone in the family and not fall apart myself. My sister has just started chemotherapy for breast cancer. The day after her first treatment she ended up in the hospital for 4 1/2 days because her sodium levels dropped so low. We initially thought she had a stroke.
Right now I’m trying to support everyone in the family and not fall apart myself. My sister has just started chemotherapy for breast cancer. The day after her first treatment she ended up in the hospital for 4 1/2 days because her sodium levels dropped so low. We initially thought she had a stroke.
Bookreader91
in
Anxiety and Depression Support
3 months ago
Movicol
I took 2 imodium 2 days ago and now Ive got cramps (I very rarely take imodium) can I now take movicol? I have ibs mixed any advice would be much appreciated?
I took 2 imodium 2 days ago and now Ive got cramps (I very rarely take imodium) can I now take movicol? I have ibs mixed any advice would be much appreciated?
Hollings
in
IBS Network
3 months ago
Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?
MO, Primary care, and other nurses are working hard to rollout why my sodium level is low (128) last. My first guess was lactulose. I stopped for one week and will recheck the level and schedule another appointment. Also, a Google search found many users reported that heavy use of lactulose
MO, Primary care, and other nurses are working hard to rollout why my sodium level is low (128) last. My first guess was lactulose. I stopped for one week and will recheck the level and schedule another appointment. Also, a Google search found many users reported that heavy use of lactulose
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
Famotidine
I have been on 20mg of Famotidine for about a year, over the past 6 months while taking Famotidine I seem to have developed heartburn has any one else suffered with heartburn while on Famotidine? I was on Omeprazole previously for nearly 3 years without any problems but a blood test revealed low sodium
I have been on 20mg of Famotidine for about a year, over the past 6 months while taking Famotidine I seem to have developed heartburn has any one else suffered with heartburn while on Famotidine? I was on Omeprazole previously for nearly 3 years without any problems but a blood test revealed low sodium
Phed
in
PMRGCAuk
3 months ago
citalopram sudden withdrawal
i was prescribed 20 mg citalopram by my gp when my husband had a stroke in 2017, due to anxiety. I was recently rushed into Intensive Care for dangerously low sodium levels. Citalopram is one of the drugs causing this, along with omeprazole and ramipril. The hospital immediately stopped these 3 medications
i was prescribed 20 mg citalopram by my gp when my husband had a stroke in 2017, due to anxiety. I was recently rushed into Intensive Care for dangerously low sodium levels. Citalopram is one of the drugs causing this, along with omeprazole and ramipril. The hospital immediately stopped these 3 medications
Laxido21
in
Anxiety and Depression Support
3 months ago
Iron panel values - average and RLS indicated.
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
fritz34
in
Restless Legs Syndrome
5 months ago
Blood test result - iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Lindsayf
in
Thyroid UK
5 months ago
Help with blood results
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Lindsayf
in
Pernicious Anaemia Society
5 months ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
3 months ago
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