Search
Search
About
Log in
Join
Experiences with
Medium chain acyl dehydrogenase deficiency
Posts
Communities
4,479 public posts
Filter results
Having a bad day
How come when u plan to go out for the day ur stomach always plays up. I have been constapated for weeks so decided to go shopping and have afew hours out but oh no the dreaded diarrhoea decided to start this morning so I have had a day in pain and depressed 😔 even the Imodium didn't help today wish
How come when u plan to go out for the day ur stomach always plays up. I have been constapated for weeks so decided to go shopping and have afew hours out but oh no the dreaded diarrhoea decided to start this morning so I have had a day in pain and depressed 😔 even the Imodium didn't help today wish
3443Ness
in
IBS Network
3 years ago
Adding good news
Hi all. I thought I would pop in and share some good news. I have refused to take all the drugs that have been offered to me. But even experimentation with lower levels of hydrocodone and OxyContin have been uncomfortable enough that I refused to go in the opioid direction. What has worked for me and
Hi all. I thought I would pop in and share some good news. I have refused to take all the drugs that have been offered to me. But even experimentation with lower levels of hydrocodone and OxyContin have been uncomfortable enough that I refused to go in the opioid direction. What has worked for me and
Marlayna
in
Restless Legs Syndrome
3 years ago
Confused Low urine creatinine & proteinuria
I am a 75 years old male unofficially diagnosed Stage 3A (blood work and symptoms). Family history great maternal grandmother diagnosed at 75 died at 77 with Acute Interstitial Nephritis, her brother died 71 acute kidney failure. Maternal grandmother died 81 and mother died 78 with chronic kidney disease
I am a 75 years old male unofficially diagnosed Stage 3A (blood work and symptoms). Family history great maternal grandmother diagnosed at 75 died at 77 with Acute Interstitial Nephritis, her brother died 71 acute kidney failure. Maternal grandmother died 81 and mother died 78 with chronic kidney disease
lakeheadguy
in
Kidney Disease
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Landmark study shows simple salt swap could prevent millions of deaths each year
Replacing table salt with a reduced-sodium, added-potassium ‘salt substitute’ significantly reduces rates of stroke, heart attack and death, according to the results of one of the largest dietary intervention studies ever conducted. Presented at a ‘hotline session’ at the European Society of Cardiology
Replacing table salt with a reduced-sodium, added-potassium ‘salt substitute’ significantly reduces rates of stroke, heart attack and death, according to the results of one of the largest dietary intervention studies ever conducted. Presented at a ‘hotline session’ at the European Society of Cardiology
2greys
in
Lung Conditions Community Forum
3 years ago
Acute Kidney Injury - Recovery
Hi There, My first post here though have been monitoring the site since May and got some very useful info so thanks all. I just wanted to ask if anyone has a similar experience to me can offer thier experience. My Situation: 50 yo male suddenly felt Ill (tired, lost voice, no sleep, fatigue, confusion
Hi There, My first post here though have been monitoring the site since May and got some very useful info so thanks all. I just wanted to ask if anyone has a similar experience to me can offer thier experience. My Situation: 50 yo male suddenly felt Ill (tired, lost voice, no sleep, fatigue, confusion
Danoco
in
Kidney Disease
3 years ago
Sodium Butyrate: Conflicting Studies
So I read one study from 2021 that said Sodium Butyrate was good for PD, lowered inflammation, and improved symptoms and then read another from 2020 that said Sodium Butyrate increases inflammation and makes PD symptoms worse. I have e-mailed both teams for an explanation. I put the abstracts side by
So I read one study from 2021 that said Sodium Butyrate was good for PD, lowered inflammation, and improved symptoms and then read another from 2020 that said Sodium Butyrate increases inflammation and makes PD symptoms worse. I have e-mailed both teams for an explanation. I put the abstracts side by
Bolt_Upright
in
Cure Parkinson's
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
Sodium Butyrate: Neuroprotective effects of short-chain fatty acids in MPTP induced mice model of Parkinson's disease 2021
https://pubmed.ncbi.nlm.nih.gov/33905875/ Gut microbial metabolites, SCFAs, were related with the occurrence and development of Parkinson's disease (PD). But the effects of different short-chain fatty acids (SCFAs) on PD and involving mechanisms are still undefined. In this study we evaluate the effects
https://pubmed.ncbi.nlm.nih.gov/33905875/ Gut microbial metabolites, SCFAs, were related with the occurrence and development of Parkinson's disease (PD). But the effects of different short-chain fatty acids (SCFAs) on PD and involving mechanisms are still undefined. In this study we evaluate the effects
Bolt_Upright
in
Cure Parkinson's
3 years ago
What to expect when starting Movicol & sodium picosulphate. Will child be able to go out and play sport’s
On day 2 of following plan. Had 12 sachets of movicol day 1 and 10 today. Poos runny, what happens next? Is sports a bad idea???
On day 2 of following plan. Had 12 sachets of movicol day 1 and 10 today. Poos runny, what happens next? Is sports a bad idea???
HHod
in
ERIC
3 years ago
Help with blood test results
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Shenow
in
Thyroid UK
3 years ago
Low BMI, fatigue, and PA?
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
still_elsewhere
in
Pernicious Anaemia Society
3 years ago
Some questions answered, some answers questioned, and Chemotherapy scheduled.
I exchanged emails with the MO over the weekend regarding the combination trials of Docetaxel and Radium 223. Below is a portion of the exchange. Part 1 explains why there was no treatment for 90 days. Part 2 the Medical Oncologist paragraph talks about his familiarity with the Docetaxel/Radium 223
I exchanged emails with the MO over the weekend regarding the combination trials of Docetaxel and Radium 223. Below is a portion of the exchange. Part 1 explains why there was no treatment for 90 days. Part 2 the Medical Oncologist paragraph talks about his familiarity with the Docetaxel/Radium 223
Philly13
in
Advanced Prostate Cancer
3 years ago
Thursday 9/9/2021 was D for Decision Day--Locked and Loaded for Chemotherapy
I met with the oncologist and ran through my agenda efficiently. He was patient and spent a reasonable amount of time answering questions. As time went on, he suggested that the top 2 options, for the moment, were chemotherapy and radium 223. The oncologist said there isn’t a rush to begin, with no evidence
I met with the oncologist and ran through my agenda efficiently. He was patient and spent a reasonable amount of time answering questions. As time went on, he suggested that the top 2 options, for the moment, were chemotherapy and radium 223. The oncologist said there isn’t a rush to begin, with no evidence
Philly13
in
Advanced Prostate Cancer
3 years ago
Levothyroxine sodium pentahydrate tablets - formulation considerations
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Worrying upper abdomen pain
Hello, this is my first post and I am a little nervous about it. Where do I begin? I was diagnosed with Diverticular problems 20 years ago. I had upper abdomen pain and urgent diarrhoea at the time. It settled down and I got used to it and carried on as best I could. 8 years ago it changed and saw the
Hello, this is my first post and I am a little nervous about it. Where do I begin? I was diagnosed with Diverticular problems 20 years ago. I had upper abdomen pain and urgent diarrhoea at the time. It settled down and I got used to it and carried on as best I could. 8 years ago it changed and saw the
MrsG5
in
IBS Network
3 years ago
Preparation for Treatment Decisions 90 Days after Immunotherapy Stopped.
When I ran a business, I always prepared an agenda. I find that taking the time to write things down and review them sets the agenda and keeps meetings moving in a positive direction while avoiding the possibility that something important gets lost. The week before last, I exercised moderately a few
When I ran a business, I always prepared an agenda. I find that taking the time to write things down and review them sets the agenda and keeps meetings moving in a positive direction while avoiding the possibility that something important gets lost. The week before last, I exercised moderately a few
Philly13
in
Advanced Prostate Cancer
3 years ago
Trehalose as a promising therapeutic candidate for the treatment of Parkinson's disease - 2019
Hats off to sunvox for having mentioned Trehalose a few times in these forums https://healthunlocked.com/ataxia-uk/posts/135094988/oral-ingestion-of-trehalose.-a-human-clinical-trial I did my own searching and found Trehalose as a promising therapeutic candidate for the treatment of Parkinson's disease
Hats off to sunvox for having mentioned Trehalose a few times in these forums https://healthunlocked.com/ataxia-uk/posts/135094988/oral-ingestion-of-trehalose.-a-human-clinical-trial I did my own searching and found Trehalose as a promising therapeutic candidate for the treatment of Parkinson's disease
Bolt_Upright
in
Cure Parkinson's
3 years ago
Can it take up to 3 months to feel benefit of iron infusion?
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
oceanred
in
Restless Legs Syndrome
3 years ago
Cirrhosis and dealing with salt & sugar cravings
Hello, I have (3 mths ago) been officially confirmed by fibroscan & ultrasound with F4 Cirrhosis. Unknown to me, or not taking liver disease seriously, I have had pretty bad liver problems for at least 6 years. To be honest, I am still trying to get my mind around it. A few months ago, I was quite
Hello, I have (3 mths ago) been officially confirmed by fibroscan & ultrasound with F4 Cirrhosis. Unknown to me, or not taking liver disease seriously, I have had pretty bad liver problems for at least 6 years. To be honest, I am still trying to get my mind around it. A few months ago, I was quite
Cazza_BDA
in
British Liver Trust
3 years ago
Advice please
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
loutomaio
in
Thyroid UK
3 years ago
1
...
57
58
59
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
1458 results
Pernicious Anaemia Society
390 results
IBS Network
355 results
View top 10 communities
Sort by
Most Relevant
Newest