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Experiences with
Mixed connective tissue disease (MCTD)
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Belimimab and mumps
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
solo99
in
LUPUS UK
1 year ago
confused
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
Chimama
in
Kidney Disease
1 year ago
Has any hypothyroidism or Hashimotos patient tried apillean weight loss supplement?
It can cost £50 to £100 per small tub in some places but it's selling but you can make this yourself at home. Alternatively according to this female doctor I spoke to at pub She said"You can use coffee instead of guarana, you can use nori seaweed if tolerated or kelp or tiny amount of wakame or if
It can cost £50 to £100 per small tub in some places but it's selling but you can make this yourself at home. Alternatively according to this female doctor I spoke to at pub She said"You can use coffee instead of guarana, you can use nori seaweed if tolerated or kelp or tiny amount of wakame or if
Shineyhappypeople
in
Thyroid UK
10 months ago
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Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?
Onwards & upwards for 2023🙏 My daughter with
MCTD
was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Onwards & upwards for 2023🙏 My daughter with
MCTD
was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Wangpaupau
in
NRAS
1 year ago
Update from previous post...
Previously I mentioned i am being treated for
MCTD
on hydroxychloroquine. I started itching especially after showering and in general feels like I'm on fire some days.
Previously I mentioned i am being treated for
MCTD
on hydroxychloroquine. I started itching especially after showering and in general feels like I'm on fire some days.
Awwy
in
LUPUS UK
1 year ago
pain control
hi what is the best pain control for
Mctd
?
hi what is the best pain control for
Mctd
?
Sandrakee
in
LUPUS UK
2 years ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
A lifetime…and still no diagnosis.
M.E.. 20 years back, after dry eyes, dry mouth, skin lesion etc. a rheumatologist said I was ‘fine’, but my G.P. thought Sögren’s and
MCTD
. 2012: diagnosed hypothyroid. Now, luckily retired, but like to be busy, yet some tasks still put me on my back for days.
M.E.. 20 years back, after dry eyes, dry mouth, skin lesion etc. a rheumatologist said I was ‘fine’, but my G.P. thought Sögren’s and
MCTD
. 2012: diagnosed hypothyroid. Now, luckily retired, but like to be busy, yet some tasks still put me on my back for days.
BlueMoon65
in
LUPUS UK
2 years ago
58 Male, Hashimoto's and MCTD
More recently diagnosed with
MCTD
due to severe fatigue and exercise intolerance along with severe muscle weakness. I was unable to walk 500 feet, or even stand up from a chair. I work on aircraft and would make it halfway across the hangar and have to lie down on the floor for 2 hours.
More recently diagnosed with
MCTD
due to severe fatigue and exercise intolerance along with severe muscle weakness. I was unable to walk 500 feet, or even stand up from a chair. I work on aircraft and would make it halfway across the hangar and have to lie down on the floor for 2 hours.
Cujet
in
LUPUS UK
2 years ago
Finding a cause for my Vertigo
Throughout this period I’ve also suffered AI symptoms which my rheumatologist originally diagnosed as SLE but later felt was more
MCTD
. The return of this symptom has me revisiting that stressful time and wondering if I might not have MS after all?
Throughout this period I’ve also suffered AI symptoms which my rheumatologist originally diagnosed as SLE but later felt was more
MCTD
. The return of this symptom has me revisiting that stressful time and wondering if I might not have MS after all?
nwfrugalista
in
My MSAA Community
2 years ago
Work and Lupus, MCTD recovering from covid
Hello, Has anyone else experienced Covid with Lupus and
MCTD
and tried going back to work too early after testing negative for Covid then signed off by GP, work now pressuring asking by text “are you any better?”
Hello, Has anyone else experienced Covid with Lupus and
MCTD
and tried going back to work too early after testing negative for Covid then signed off by GP, work now pressuring asking by text “are you any better?”
Geeforce99
in
LUPUS UK
2 years ago
Keto, Eggs and PD Meds
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
jeeves19
in
Cure Parkinson's
1 year ago
HCQ: do we need to pay more attention to serious ocular side effects!👆
lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations of our eyes before we take this drug often for SLE, DLE, SCLE,
MCTD
lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations of our eyes before we take this drug often for SLE, DLE, SCLE,
MCTD
Betty909090
in
LUPUS UK
2 years ago
MDS is Doubling down on nutrition and lifestyle
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
LeharLover62
in
Cure Parkinson's
2 years ago
University of Cambridge research survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
Jo-Goode
Administrator
in
Myositis UK
2 years ago
Please take part in this patient survey from the University of Cambridge if you haven't already!
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Mycophenolate and possible Covid
I’m on the maximum dose and yes a bit symptomatic but then it’s hard to tell as always am ie dry cough silent reflux headaches flu like sniffles due to weather and hay fever etc Have scleroderma/
MCTD
/ Sjogrens so will ask this on lupus site too as more people there so thought best to ask on both.
I’m on the maximum dose and yes a bit symptomatic but then it’s hard to tell as always am ie dry cough silent reflux headaches flu like sniffles due to weather and hay fever etc Have scleroderma/
MCTD
/ Sjogrens so will ask this on lupus site too as more people there so thought best to ask on both.
OldTed60
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Rheumatology patient survey from the University of Cambridge and patient groups
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (
MCTD
) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Thyroid Hormone Transporters in a Human Placental Cell Model
There has long been the received wisdom that T3 does not cross the placenta. I am not aware this has been proved in any level of detail. This paper appears to make that look wrong. Indeed, it appears to identify specific pharmaceutical agents which directly and significantly affect T3 transport
There has long been the received wisdom that T3 does not cross the placenta. I am not aware this has been proved in any level of detail. This paper appears to make that look wrong. Indeed, it appears to identify specific pharmaceutical agents which directly and significantly affect T3 transport
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Is Marine Collagen a good idea? Is it helpful?
Hi, having
MCTD
with Lupus and RA, now quite bad arthritis too. My
MCTD
etc is well managed on the Mtx and Hydroxichloroquin. I have thought of taking Marine Collagen, perhaps it with help with the arthritic joint pain ? Has anyone any advice on this ?
Hi, having
MCTD
with Lupus and RA, now quite bad arthritis too. My
MCTD
etc is well managed on the Mtx and Hydroxichloroquin. I have thought of taking Marine Collagen, perhaps it with help with the arthritic joint pain ? Has anyone any advice on this ?
Taweet
in
LUPUS UK
2 years ago
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