Search
Search
About
Log in
Join
Experiences with
Mixed connective tissue disease (MCTD)
Posts
Communities
332 public posts
Filter results
Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
5 months ago
new normal blood tests
For years, even after diagnosis changed to primary sjogrens, then
MCTD
/ overlap ctd my inflammation and other blood tests were elevated. Now I’m definitively diagnosed with antibody positive systemic sclerosis and get Mycophenolate, Iloprost and Losartan amongst others.
For years, even after diagnosis changed to primary sjogrens, then
MCTD
/ overlap ctd my inflammation and other blood tests were elevated. Now I’m definitively diagnosed with antibody positive systemic sclerosis and get Mycophenolate, Iloprost and Losartan amongst others.
OldTed60
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
MCT Oil
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
Hidden
in
Thyroid UK
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Frustrated
Last year I was finally diagnosed with
MCTD
and Fybromyalgia. It was such a relief ar first because I had thought I was losing my mind...
Last year I was finally diagnosed with
MCTD
and Fybromyalgia. It was such a relief ar first because I had thought I was losing my mind...
Mctd
in
LUPUS UK
1 year ago
Rhumotolgy no more
Hi History I was diagnosed with
MCTD
. Was told it is a mild form. Lupus markers and inflammation is slightly elevated so was given hydroxychloroquine to take. Fast forward 6 months and had a bad reaction to hydroxychloroquine....extreme itching of skin. So was told to drop to 200mg.
Hi History I was diagnosed with
MCTD
. Was told it is a mild form. Lupus markers and inflammation is slightly elevated so was given hydroxychloroquine to take. Fast forward 6 months and had a bad reaction to hydroxychloroquine....extreme itching of skin. So was told to drop to 200mg.
Awwy
in
LUPUS UK
2 years ago
Has any hypothyroidism or Hashimotos patient tried apillean weight loss supplement?
It can cost £50 to £100 per small tub in some places but it's selling but you can make this yourself at home. Alternatively according to this female doctor I spoke to at pub She said"You can use coffee instead of guarana, you can use nori seaweed if tolerated or kelp or tiny amount of wakame or if
It can cost £50 to £100 per small tub in some places but it's selling but you can make this yourself at home. Alternatively according to this female doctor I spoke to at pub She said"You can use coffee instead of guarana, you can use nori seaweed if tolerated or kelp or tiny amount of wakame or if
Shineyhappypeople
in
Thyroid UK
1 year ago
Lupus or Mixed Connective Tissue disease? 🤔
Lupus or
MCTD
, the outcome is the same……. just rubbish. But we all know only too well about that. Hope you all have a peaceful and enjoyable Christmas 🎄and a happy and as healthy as possible 2023. Sue x
Lupus or
MCTD
, the outcome is the same……. just rubbish. But we all know only too well about that. Hope you all have a peaceful and enjoyable Christmas 🎄and a happy and as healthy as possible 2023. Sue x
Susieliz39
in
LUPUS UK
2 years ago
confused
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
Chimama
in
Kidney Disease
1 year ago
Belimimab and mumps
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
solo99
in
LUPUS UK
2 years ago
Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?
Onwards & upwards for 2023🙏 My daughter with
MCTD
was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Onwards & upwards for 2023🙏 My daughter with
MCTD
was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Wangpaupau
in
NRAS
2 years ago
Update from previous post...
Previously I mentioned i am being treated for
MCTD
on hydroxychloroquine. I started itching especially after showering and in general feels like I'm on fire some days.
Previously I mentioned i am being treated for
MCTD
on hydroxychloroquine. I started itching especially after showering and in general feels like I'm on fire some days.
Awwy
in
LUPUS UK
2 years ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
pain control
hi what is the best pain control for
Mctd
?
hi what is the best pain control for
Mctd
?
Sandrakee
in
LUPUS UK
2 years ago
A lifetime…and still no diagnosis.
M.E.. 20 years back, after dry eyes, dry mouth, skin lesion etc. a rheumatologist said I was ‘fine’, but my G.P. thought Sögren’s and
MCTD
. 2012: diagnosed hypothyroid. Now, luckily retired, but like to be busy, yet some tasks still put me on my back for days.
M.E.. 20 years back, after dry eyes, dry mouth, skin lesion etc. a rheumatologist said I was ‘fine’, but my G.P. thought Sögren’s and
MCTD
. 2012: diagnosed hypothyroid. Now, luckily retired, but like to be busy, yet some tasks still put me on my back for days.
BlueMoon65
in
LUPUS UK
2 years ago
58 Male, Hashimoto's and MCTD
More recently diagnosed with
MCTD
due to severe fatigue and exercise intolerance along with severe muscle weakness. I was unable to walk 500 feet, or even stand up from a chair. I work on aircraft and would make it halfway across the hangar and have to lie down on the floor for 2 hours.
More recently diagnosed with
MCTD
due to severe fatigue and exercise intolerance along with severe muscle weakness. I was unable to walk 500 feet, or even stand up from a chair. I work on aircraft and would make it halfway across the hangar and have to lie down on the floor for 2 hours.
Cujet
in
LUPUS UK
2 years ago
Finding a cause for my Vertigo
Throughout this period I’ve also suffered AI symptoms which my rheumatologist originally diagnosed as SLE but later felt was more
MCTD
. The return of this symptom has me revisiting that stressful time and wondering if I might not have MS after all?
Throughout this period I’ve also suffered AI symptoms which my rheumatologist originally diagnosed as SLE but later felt was more
MCTD
. The return of this symptom has me revisiting that stressful time and wondering if I might not have MS after all?
nwfrugalista
in
My MSAA Community
2 years ago
Keto, Eggs and PD Meds
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
jeeves19
in
Cure Parkinson's
2 years ago
Work and Lupus, MCTD recovering from covid
Hello, Has anyone else experienced Covid with Lupus and
MCTD
and tried going back to work too early after testing negative for Covid then signed off by GP, work now pressuring asking by text “are you any better?”
Hello, Has anyone else experienced Covid with Lupus and
MCTD
and tried going back to work too early after testing negative for Covid then signed off by GP, work now pressuring asking by text “are you any better?”
Geeforce99
in
LUPUS UK
2 years ago
MDS is Doubling down on nutrition and lifestyle
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
LeharLover62
in
Cure Parkinson's
2 years ago
HCQ: do we need to pay more attention to serious ocular side effects!👆
lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations of our eyes before we take this drug often for SLE, DLE, SCLE,
MCTD
lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations of our eyes before we take this drug often for SLE, DLE, SCLE,
MCTD
Betty909090
in
LUPUS UK
2 years ago
1
2
3
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
LUPUS UK
154 results
Scleroderma & Raynaud's UK (SRUK)
34 results
Cure Parkinson's
24 results
View top 10 communities
Sort by
Most Relevant
Newest