This is a picture of me on a cruise with my family. We went to the Canary Islands in June.
I use ambulatory oxygen but I took it off for the photo while I waiting to go on the Bumper cars. I had to go in the car with my husband because I took the oxygen off and I would be very breathless walking across to the car.
Before I went on the cruise I had a ulcer in my left eye because of dry eyes due to Sjogren syndrome and I was also waiting to have Rituximab when I return from the cruise (which I have had now). I have damaged lungs (Pulmonary Fibrosis) caused by the lupus or MCTD.
The reason for this post is to say there is no reason to give up just because we have been diagnosed with a chronic disorder. If you have the energy always strive to look your best.
When I go to see my GP or Consultants I always try to look my best and they complement me because they know how ill I am. My GP always say 'no one would believe how ill you are by just looking at you so well done Charmaine for looking so beautiful in her photo.