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Experiences with
Mixed connective tissue disease (MCTD)
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Hi
Diagnosed in 1999 with fibromyalgia but probable/possible
MCTD
Since 2003 currently on the lets wait and see carousel fun..... myositis and myalgia nos
Diagnosed in 1999 with fibromyalgia but probable/possible
MCTD
Since 2003 currently on the lets wait and see carousel fun..... myositis and myalgia nos
falling2peices
in
My Fibro Community
8 years ago
Overlap?
Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on blood test slips, he also writes
MCTD
. But a junior dr then said I had overlap syndrome with SLE. I looked that up but got even more confused with what it could be an overlap of. Any suggestions? Thanks
Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on blood test slips, he also writes
MCTD
. But a junior dr then said I had overlap syndrome with SLE. I looked that up but got even more confused with what it could be an overlap of. Any suggestions? Thanks
rosiemay
in
LUPUS UK
8 years ago
Immuran (Azathioprine )50 mg twice or Myfortic 360 mg twice daily (mycophenolate sodium )
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenolate sodium ) is better for
MCTD
or lupus and Sjogren?? any experience? i have to choose between them !
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenolate sodium ) is better for
MCTD
or lupus and Sjogren?? any experience? i have to choose between them !
Samaka
in
LUPUS UK
8 years ago
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Thinning hair because of mctd
Hello, about a year ago i was diagnosed with
mctd
and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on plaquenil and it stopped the hair to fall out.
Hello, about a year ago i was diagnosed with
mctd
and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on plaquenil and it stopped the hair to fall out.
stonehard
in
LUPUS UK
8 years ago
The Dark Side Of Coconut Oil: A Cautionary Tale For Coconut Oil Extremists.
https://bengreenfieldfitness.com/2015/12/dark-side-coconut-oil-cautionary-tale-coconut-oil-extremists/ Coconut oil, with around 90% of calories from saturated fat, 65% of which are MCTs, has been lauded as an ideal fat for cooking, ketosis, and prevention of metabolic and cardiovascular diseases. So
https://bengreenfieldfitness.com/2015/12/dark-side-coconut-oil-cautionary-tale-coconut-oil-extremists/ Coconut oil, with around 90% of calories from saturated fat, 65% of which are MCTs, has been lauded as an ideal fat for cooking, ketosis, and prevention of metabolic and cardiovascular diseases. So
cure
Administrator
in
Diabetes India
8 years ago
Stage 1 lupus?
.: he said I have stage 1 lupus aswell as my inflammatory arthiriets and
Mctd
.. I thought lupus was lupus I didn't know there was stages? Can anyone explain this in better detail to me or if anyone else has had stage 1?
.: he said I have stage 1 lupus aswell as my inflammatory arthiriets and
Mctd
.. I thought lupus was lupus I didn't know there was stages? Can anyone explain this in better detail to me or if anyone else has had stage 1?
Hidden
in
LUPUS UK
8 years ago
I am new to the site
I have been dxs (diagnoised) by several doctors with either
MCTD
, myelody splastic syndrome and lupus only to have an insurance change or a doc to leave the network or be sent to another specialist that says no. I have been sick since I was a kid and now I am in my 40's (late) lol.
I have been dxs (diagnoised) by several doctors with either
MCTD
, myelody splastic syndrome and lupus only to have an insurance change or a doc to leave the network or be sent to another specialist that says no. I have been sick since I was a kid and now I am in my 40's (late) lol.
Tink45
in
LUPUS UK
8 years ago
MCTD vs SLE
He then changed the diagnosis to SLE while commenting that a diagnosis of
MCTD
is controversial. Thing is, when I initially read up on
MCTD
, the symptoms seemed a perfect fit. SLE seems less of a match as I do not have any rashes/light sensitivity.
He then changed the diagnosis to SLE while commenting that a diagnosis of
MCTD
is controversial. Thing is, when I initially read up on
MCTD
, the symptoms seemed a perfect fit. SLE seems less of a match as I do not have any rashes/light sensitivity.
BearAble
in
LUPUS UK
8 years ago
Help with reading blood work
. - Pattern Antigen Detected Suggested Disease Association - ----------- ---------------- ----------------------------- - Homogeneous DNA(ds,ss,), High titers - SLE - (Smooth) Histone - ----------- ---------------- ----------------------------- - Speckled Sm, RNP, SCL-70, SLE,
MCTD
,Scleroderma,Sjogrens
. - Pattern Antigen Detected Suggested Disease Association - ----------- ---------------- ----------------------------- - Homogeneous DNA(ds,ss,), High titers - SLE - (Smooth) Histone - ----------- ---------------- ----------------------------- - Speckled Sm, RNP, SCL-70, SLE,
MCTD
,Scleroderma,Sjogrens
Bethjohnson1745
in
LUpus Patients Understanding and Support
8 years ago
Giving up on work?
I'm looking on giving up my job, I physically can't do it no more with my health situation, I have lupus and
Mctd
.
I'm looking on giving up my job, I physically can't do it no more with my health situation, I have lupus and
Mctd
.
Hidden
in
LUPUS UK
8 years ago
Confused?? lupus or mixed connective tissue disease
) anyway im confused my blood tests show my anti chromatin antibodies, sm/RNP and RNP a antibodies are all sky hi, does this mean lupus or
mctd
, i was diagnosed 4 years ago at 24 its taking me a long time to accept this and just when i am accepting this dam!!!
) anyway im confused my blood tests show my anti chromatin antibodies, sm/RNP and RNP a antibodies are all sky hi, does this mean lupus or
mctd
, i was diagnosed 4 years ago at 24 its taking me a long time to accept this and just when i am accepting this dam!!!
irishgirl13
in
LUPUS UK
8 years ago
Please help...
I now have
MCTD
, lupus, osphagitis, hiatus hernia, scleritis and intercranial hypertension. I am still on the following meds - steroids, omeprazole, ranitidine, acetazolamide, folic acid and now inject methotrexate 15mg once weekly.
I now have
MCTD
, lupus, osphagitis, hiatus hernia, scleritis and intercranial hypertension. I am still on the following meds - steroids, omeprazole, ranitidine, acetazolamide, folic acid and now inject methotrexate 15mg once weekly.
tashacapes
in
LUPUS UK
8 years ago
1st Rheumatology Appointment?
So she said maybe Lupus or
MCTD
. I was actually thankful that I got in rarely quick for this appointment. I've read that it's taken very long for some people. So my main question is how did your first appointment go? And was it long after you were diagnosed?
So she said maybe Lupus or
MCTD
. I was actually thankful that I got in rarely quick for this appointment. I've read that it's taken very long for some people. So my main question is how did your first appointment go? And was it long after you were diagnosed?
Whelp529
in
LUPUS UK
8 years ago
Is this kind of leg pain normal?
I was diagnosed with
MCTD
in August. Right now I am in between rheumy's. I am on hyroxychloroquine, gabapentin for the pain, and a water pill to help with the edema.
I was diagnosed with
MCTD
in August. Right now I am in between rheumy's. I am on hyroxychloroquine, gabapentin for the pain, and a water pill to help with the edema.
anniew1004
in
LUPUS UK
8 years ago
Linda has pointed out cold pressed virgin avocado oil for frying with, it has a high smoke point. I need to check out the prices now.
Ok checked the prices, seems to be about double the price of my virgin cold pressed coconut oil. It is for sale on ebay via Argos, so will stick to my coconut oil. I know that Linda has issues with the MCTs in it though. So here is the link:- http://superfoodprofiles.com/avocado-oil-online
Ok checked the prices, seems to be about double the price of my virgin cold pressed coconut oil. It is for sale on ebay via Argos, so will stick to my coconut oil. I know that Linda has issues with the MCTs in it though. So here is the link:- http://superfoodprofiles.com/avocado-oil-online
langdocienne
in
Thyroid UK
8 years ago
Mctd
I have had
mctd
for over 20 yrs now lots of ups and downs . Sometimes don't care anymore , started on thyroid treatment and testosterone injections seems to help with strength and tiredness . Still deal with overheating and hives . Thanks for listening
I have had
mctd
for over 20 yrs now lots of ups and downs . Sometimes don't care anymore , started on thyroid treatment and testosterone injections seems to help with strength and tiredness . Still deal with overheating and hives . Thanks for listening
Crager
in
Lung Conditions Community Forum
9 years ago
White eyebrow!
I started Hydroxychloroquine in September as at that time thought to be
MCTD
- now undifferentiated inflammatory arthritis, ? Psoriatic arthritis, but posting here as you have experience of Hydroxychloroquine. My left eyebrow is turning white. And my hair at hairline. Has anyone else had this?
I started Hydroxychloroquine in September as at that time thought to be
MCTD
- now undifferentiated inflammatory arthritis, ? Psoriatic arthritis, but posting here as you have experience of Hydroxychloroquine. My left eyebrow is turning white. And my hair at hairline. Has anyone else had this?
mirren
in
LUPUS UK
9 years ago
White eyebrow!
I started Hydroxychloroquine in September as at that time thought to be
MCTD
- now undifferentiated inflammatory arthritis, ? Psoriatic arthritis, but posting here as some of you have experience of Hydroxychloroquine.
I started Hydroxychloroquine in September as at that time thought to be
MCTD
- now undifferentiated inflammatory arthritis, ? Psoriatic arthritis, but posting here as some of you have experience of Hydroxychloroquine.
mirren
in
NRAS
9 years ago
Burning feet.
I was put on Hydroxychloroquine during a period when I was suspected
MCTD
, was a bit worried when they went back to PsA but I've been on it since September and no psoriasis ane its made a big difference to my fatigue and concentration, and until last two weeks, my joints.
I was put on Hydroxychloroquine during a period when I was suspected
MCTD
, was a bit worried when they went back to PsA but I've been on it since September and no psoriasis ane its made a big difference to my fatigue and concentration, and until last two weeks, my joints.
mirren
in
Beyond Psoriasis
9 years ago
South West - rheumatologist
I live in the south west and wondered if anyone has had goo experiences with anyone in the area in relation to
mctd
/ lupus. Any help appreciated.
I live in the south west and wondered if anyone has had goo experiences with anyone in the area in relation to
mctd
/ lupus. Any help appreciated.
C101
in
LUPUS UK
9 years ago
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