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Experiences with
Mixed connective tissue disease (MCTD)
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CRT results
I have
MCTD
. I have my bloods done every 2 months as I'm on Hydroxychloroquine and Mycophenolate. My CRT is about 14...so high. Does this just indicate inflammation or could it be that I've been a bit under the weather with a cough,lack of appetite etc.
I have
MCTD
. I have my bloods done every 2 months as I'm on Hydroxychloroquine and Mycophenolate. My CRT is about 14...so high. Does this just indicate inflammation or could it be that I've been a bit under the weather with a cough,lack of appetite etc.
bones-bones
in
LUPUS UK
7 years ago
Is MCTD Lupus or Lupus related?
He diagnosed me with intestinal pulmonary fibrosis caused by the
mctd
. But he says i dont have lupus. Im confused cause im taking meds for lupus from my reumotologist and whenever i look up
mctd
it redirects me to lupus pages.
He diagnosed me with intestinal pulmonary fibrosis caused by the
mctd
. But he says i dont have lupus. Im confused cause im taking meds for lupus from my reumotologist and whenever i look up
mctd
it redirects me to lupus pages.
Jaylowdancer
in
LUPUS UK
7 years ago
The Vanishing Diagnosis - UCTD?
Suspected
MCTD
, so she sent me to the rheumatologist. Rheumy thought I might have UCTD, not
MCTD
. That lab work came back all negative! Rheumy could not detect the mitral valve prolapse, although 2 previous docs had done so.
Suspected
MCTD
, so she sent me to the rheumatologist. Rheumy thought I might have UCTD, not
MCTD
. That lab work came back all negative! Rheumy could not detect the mitral valve prolapse, although 2 previous docs had done so.
RxMe
in
LUPUS UK
7 years ago
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Breathing issues and hot steam?
I'm from the Lupus uk forum as I have some kind of
MCTD
/sjogrens auto immune disorder going on. Lately though I have been found to have something called air trapping and small airway inflammation. It was found on a HRCT although my LFT's are fine.
I'm from the Lupus uk forum as I have some kind of
MCTD
/sjogrens auto immune disorder going on. Lately though I have been found to have something called air trapping and small airway inflammation. It was found on a HRCT although my LFT's are fine.
Georgie-girl
in
Lung Conditions Community Forum
7 years ago
I could cry.....
I have been struggling for so long as my Respiratory Dr and my Rheumatologist (I have
MCTD
and Raynauds) have done everything to try to get things under control and improve the breathlessness. I'm usually quite stoic but this has truly knocked me for six. Thanks for listening.
I have been struggling for so long as my Respiratory Dr and my Rheumatologist (I have
MCTD
and Raynauds) have done everything to try to get things under control and improve the breathlessness. I'm usually quite stoic but this has truly knocked me for six. Thanks for listening.
Bronagh2015
in
Lung Conditions Community Forum
7 years ago
Supplement reaction - please help!
hi, has anyone ever had a bad reaction to any of the following: Collagen powder (hydrolysed) Soy free sunflower Phosphatidylserine used for bringing down cortisol levels Holy Basil MCT Oil ??? Only because i've recently introduced all of these in the last couple of weeks ad yesterday my cheek bones
hi, has anyone ever had a bad reaction to any of the following: Collagen powder (hydrolysed) Soy free sunflower Phosphatidylserine used for bringing down cortisol levels Holy Basil MCT Oil ??? Only because i've recently introduced all of these in the last couple of weeks ad yesterday my cheek bones
purplejuicy
in
Thyroid UK
7 years ago
VITAMIN B
I have
MCTD
and Sjogren's and wonder if this would help. I don't go out when the sun is shining in the summer. I am having a flare at the moment and feel pretty grim. Any suggestions on dosage and which brand is best. Thanks a lot.
I have
MCTD
and Sjogren's and wonder if this would help. I don't go out when the sun is shining in the summer. I am having a flare at the moment and feel pretty grim. Any suggestions on dosage and which brand is best. Thanks a lot.
bones-bones
in
LUPUS UK
7 years ago
Mixed connective tissue disease
I now have
MCTD
apparently .....after being diagnosed with Sjogren's about ten years ago. The muscles in my legs and arms feel weak now and I've got a walking stick and a blue badge.
I now have
MCTD
apparently .....after being diagnosed with Sjogren's about ten years ago. The muscles in my legs and arms feel weak now and I've got a walking stick and a blue badge.
bones-bones
in
LUPUS UK
7 years ago
Hello my Friends, my Warriors
I have been a true warrior most of my life, I have
MCTD
/Mixed Connective Tissue Disease/Lupus, RA degenerative arthritis, inflammatory all joints. I am here to learn from others as you can learn from me.
I have been a true warrior most of my life, I have
MCTD
/Mixed Connective Tissue Disease/Lupus, RA degenerative arthritis, inflammatory all joints. I am here to learn from others as you can learn from me.
Treenuh
in
Cure Arthritis Community
7 years ago
Mini flares?
Hey everyone, I was diagnosed with SLE and RA and
MCTD
about 4 months ago. I have mini flares from the RA once in awhile but they see to go away after a few hours of rest and pain killers. On Wednesday however, my whole back, shoulder, arms, and neck Spasmed all day.
Hey everyone, I was diagnosed with SLE and RA and
MCTD
about 4 months ago. I have mini flares from the RA once in awhile but they see to go away after a few hours of rest and pain killers. On Wednesday however, my whole back, shoulder, arms, and neck Spasmed all day.
Jaylowdancer
in
LUPUS UK
7 years ago
Mitral Valve Regurgitation anyone??
Hello all, I've just turned 50 and have
MCTD
, raynauds, sjrogrens, asthma and mild COPD. Today I received a letter from my consultant saying my ECG showed this and she is arranging further investigations. Does anyone have any info or advice?
Hello all, I've just turned 50 and have
MCTD
, raynauds, sjrogrens, asthma and mild COPD. Today I received a letter from my consultant saying my ECG showed this and she is arranging further investigations. Does anyone have any info or advice?
Bronagh2015
in
Lung Conditions Community Forum
7 years ago
Mitral Valve Regurgitation anyone??
Hello everyone, I've just turned 50 and I have
MCTD
, raynauds, sjrogrens and asthma and I've just received a letter from my Rheumy saying my last ECG showed this. At the moment it's mild and she wants to do other investigations. Anyone else have this? What happens next?
Hello everyone, I've just turned 50 and I have
MCTD
, raynauds, sjrogrens and asthma and I've just received a letter from my Rheumy saying my last ECG showed this. At the moment it's mild and she wants to do other investigations. Anyone else have this? What happens next?
Bronagh2015
in
LUPUS UK
7 years ago
Hope it's okay to post here .
I have posted all over the forums but today I found out I have
MCTD
and inflammatory arthritis with joint damage . My Rheumy was so kind and helpful . I'm feeling very detached though as this has been building for years with one rheumy saying it was in my head ! Is this detached feeling normal ?
I have posted all over the forums but today I found out I have
MCTD
and inflammatory arthritis with joint damage . My Rheumy was so kind and helpful . I'm feeling very detached though as this has been building for years with one rheumy saying it was in my head ! Is this detached feeling normal ?
Balletmum71
in
LUPUS UK
8 years ago
Lupus CTD AND URETHRAL/ bladder problems??
Hi there just a quick question to anyone suffering from Lupus CTD
MCTD
OR UCTD. I suffer from undifferentiated connective tissue disease . Amongst many weird symptoms repeated UTI's have been the bane of my life for the past 18 months .
Hi there just a quick question to anyone suffering from Lupus CTD
MCTD
OR UCTD. I suffer from undifferentiated connective tissue disease . Amongst many weird symptoms repeated UTI's have been the bane of my life for the past 18 months .
Cherrywerry
in
LUPUS UK
8 years ago
Hi
Diagnosed in 1999 with fibromyalgia but probable/possible
MCTD
Since 2003 currently on the lets wait and see carousel fun..... myositis and myalgia nos
Diagnosed in 1999 with fibromyalgia but probable/possible
MCTD
Since 2003 currently on the lets wait and see carousel fun..... myositis and myalgia nos
falling2peices
in
My Fibro Community
8 years ago
Overlap?
Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on blood test slips, he also writes
MCTD
. But a junior dr then said I had overlap syndrome with SLE. I looked that up but got even more confused with what it could be an overlap of. Any suggestions? Thanks
Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on blood test slips, he also writes
MCTD
. But a junior dr then said I had overlap syndrome with SLE. I looked that up but got even more confused with what it could be an overlap of. Any suggestions? Thanks
rosiemay
in
LUPUS UK
8 years ago
Immuran (Azathioprine )50 mg twice or Myfortic 360 mg twice daily (mycophenolate sodium )
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenolate sodium ) is better for
MCTD
or lupus and Sjogren?? any experience? i have to choose between them !
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenolate sodium ) is better for
MCTD
or lupus and Sjogren?? any experience? i have to choose between them !
Samaka
in
LUPUS UK
8 years ago
Thinning hair because of mctd
Hello, about a year ago i was diagnosed with
mctd
and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on plaquenil and it stopped the hair to fall out.
Hello, about a year ago i was diagnosed with
mctd
and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on plaquenil and it stopped the hair to fall out.
stonehard
in
LUPUS UK
8 years ago
The Dark Side Of Coconut Oil: A Cautionary Tale For Coconut Oil Extremists.
https://bengreenfieldfitness.com/2015/12/dark-side-coconut-oil-cautionary-tale-coconut-oil-extremists/ Coconut oil, with around 90% of calories from saturated fat, 65% of which are MCTs, has been lauded as an ideal fat for cooking, ketosis, and prevention of metabolic and cardiovascular diseases. So
https://bengreenfieldfitness.com/2015/12/dark-side-coconut-oil-cautionary-tale-coconut-oil-extremists/ Coconut oil, with around 90% of calories from saturated fat, 65% of which are MCTs, has been lauded as an ideal fat for cooking, ketosis, and prevention of metabolic and cardiovascular diseases. So
cure
Administrator
in
Diabetes India
8 years ago
Stage 1 lupus?
.: he said I have stage 1 lupus aswell as my inflammatory arthiriets and
Mctd
.. I thought lupus was lupus I didn't know there was stages? Can anyone explain this in better detail to me or if anyone else has had stage 1?
.: he said I have stage 1 lupus aswell as my inflammatory arthiriets and
Mctd
.. I thought lupus was lupus I didn't know there was stages? Can anyone explain this in better detail to me or if anyone else has had stage 1?
Hidden
in
LUPUS UK
8 years ago
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