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Experiences with
Mixed connective tissue disease (MCTD)
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MCTD Newbie - any advice about Methotrexate / PIP / PaH appreciated :-)
I have a recent diagnosis of
mctd
, with muscle inflammation, severe raynauds and hand stiffness, pulmonary hypertention and palpitations, and have been quite ill recently... with a ten day stay in hopsital for severe odema.
I have a recent diagnosis of
mctd
, with muscle inflammation, severe raynauds and hand stiffness, pulmonary hypertention and palpitations, and have been quite ill recently... with a ten day stay in hopsital for severe odema.
Hidden
in
LUPUS UK
7 years ago
Do i need a diet?
So ive been diagnosed with
MCTD
, RA,NSIP and Lung disease for about 8 months now. Ive seen my reumy almost every month and she has never metioned a diet or certain foods i cant eat. Are there certain foods i should avoid and should be eating?
So ive been diagnosed with
MCTD
, RA,NSIP and Lung disease for about 8 months now. Ive seen my reumy almost every month and she has never metioned a diet or certain foods i cant eat. Are there certain foods i should avoid and should be eating?
Jaylowdancer
in
LUPUS UK
7 years ago
Need Encouragement
After years of feeling bloated and terrible for no reason, all tests normal, I was diagnosed with Hashimoto's back in March with Thyroid antibodies with these results: TSH 2.024uIU/ml T3 Total 80 ng/ml Free T4 1.04 ng/dl After 2 months on 25mcg Levo I have these results: TSH .895uIU/ml T3 1.30 ng/ml
After years of feeling bloated and terrible for no reason, all tests normal, I was diagnosed with Hashimoto's back in March with Thyroid antibodies with these results: TSH 2.024uIU/ml T3 Total 80 ng/ml Free T4 1.04 ng/dl After 2 months on 25mcg Levo I have these results: TSH .895uIU/ml T3 1.30 ng/ml
Linzd
in
Thyroid UK
7 years ago
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Abbreviations
]...............Lymphangioleiomyomatosis
LOX
...............Liquid Oxygen
LTOT
..............Long Term Oxygen Therapy
LPR
................Laryngeal/Pharyngeal Reflux
LPM
...............litres Per Minute (oxygen dosage)
LVRS
..............Lung Volume Reduction Surgery
MCTD
]...............Lymphangioleiomyomatosis
LOX
...............Liquid Oxygen
LTOT
..............Long Term Oxygen Therapy
LPR
................Laryngeal/Pharyngeal Reflux
LPM
...............litres Per Minute (oxygen dosage)
LVRS
..............Lung Volume Reduction Surgery
MCTD
stone-UK
in
Lung Conditions Community Forum
7 years ago
Feeling confused and very down
I take Hydroxychloroquine,Mycophenolate and Amitriptylene (neuropathy) I am 73 and have
MCTD
. The other question I'd like to ask is how often on average do you 'bother' your GP ? My Rheumatologist isn't local so my GP is my joint carer. This is a bit of a a ramble so forgive me if it's muddled.
I take Hydroxychloroquine,Mycophenolate and Amitriptylene (neuropathy) I am 73 and have
MCTD
. The other question I'd like to ask is how often on average do you 'bother' your GP ? My Rheumatologist isn't local so my GP is my joint carer. This is a bit of a a ramble so forgive me if it's muddled.
bones-bones
in
LUPUS UK
7 years ago
Update!!!! Yeah!!!
2013: Discoid Lupus 2016: Pernicious Anemia 2017: Fibromyalgia and
MCTD
I know one this post may sound weird but pop pop fizz fizz oh what a relive it is to know I am finally getting diagnosed and help is on its way :)
2013: Discoid Lupus 2016: Pernicious Anemia 2017: Fibromyalgia and
MCTD
I know one this post may sound weird but pop pop fizz fizz oh what a relive it is to know I am finally getting diagnosed and help is on its way :)
Lara4228
in
LUPUS UK
7 years ago
CRT results
I have
MCTD
. I have my bloods done every 2 months as I'm on Hydroxychloroquine and Mycophenolate. My CRT is about 14...so high. Does this just indicate inflammation or could it be that I've been a bit under the weather with a cough,lack of appetite etc.
I have
MCTD
. I have my bloods done every 2 months as I'm on Hydroxychloroquine and Mycophenolate. My CRT is about 14...so high. Does this just indicate inflammation or could it be that I've been a bit under the weather with a cough,lack of appetite etc.
bones-bones
in
LUPUS UK
7 years ago
The Vanishing Diagnosis - UCTD?
Suspected
MCTD
, so she sent me to the rheumatologist. Rheumy thought I might have UCTD, not
MCTD
. That lab work came back all negative! Rheumy could not detect the mitral valve prolapse, although 2 previous docs had done so.
Suspected
MCTD
, so she sent me to the rheumatologist. Rheumy thought I might have UCTD, not
MCTD
. That lab work came back all negative! Rheumy could not detect the mitral valve prolapse, although 2 previous docs had done so.
RxMe
in
LUPUS UK
7 years ago
Is MCTD Lupus or Lupus related?
He diagnosed me with intestinal pulmonary fibrosis caused by the
mctd
. But he says i dont have lupus. Im confused cause im taking meds for lupus from my reumotologist and whenever i look up
mctd
it redirects me to lupus pages.
He diagnosed me with intestinal pulmonary fibrosis caused by the
mctd
. But he says i dont have lupus. Im confused cause im taking meds for lupus from my reumotologist and whenever i look up
mctd
it redirects me to lupus pages.
Jaylowdancer
in
LUPUS UK
7 years ago
Breathing issues and hot steam?
I'm from the Lupus uk forum as I have some kind of
MCTD
/sjogrens auto immune disorder going on. Lately though I have been found to have something called air trapping and small airway inflammation. It was found on a HRCT although my LFT's are fine.
I'm from the Lupus uk forum as I have some kind of
MCTD
/sjogrens auto immune disorder going on. Lately though I have been found to have something called air trapping and small airway inflammation. It was found on a HRCT although my LFT's are fine.
Georgie-girl
in
Lung Conditions Community Forum
7 years ago
I could cry.....
I have been struggling for so long as my Respiratory Dr and my Rheumatologist (I have
MCTD
and Raynauds) have done everything to try to get things under control and improve the breathlessness. I'm usually quite stoic but this has truly knocked me for six. Thanks for listening.
I have been struggling for so long as my Respiratory Dr and my Rheumatologist (I have
MCTD
and Raynauds) have done everything to try to get things under control and improve the breathlessness. I'm usually quite stoic but this has truly knocked me for six. Thanks for listening.
Bronagh2015
in
Lung Conditions Community Forum
7 years ago
Supplement reaction - please help!
hi, has anyone ever had a bad reaction to any of the following: Collagen powder (hydrolysed) Soy free sunflower Phosphatidylserine used for bringing down cortisol levels Holy Basil MCT Oil ??? Only because i've recently introduced all of these in the last couple of weeks ad yesterday my cheek bones
hi, has anyone ever had a bad reaction to any of the following: Collagen powder (hydrolysed) Soy free sunflower Phosphatidylserine used for bringing down cortisol levels Holy Basil MCT Oil ??? Only because i've recently introduced all of these in the last couple of weeks ad yesterday my cheek bones
purplejuicy
in
Thyroid UK
7 years ago
VITAMIN B
I have
MCTD
and Sjogren's and wonder if this would help. I don't go out when the sun is shining in the summer. I am having a flare at the moment and feel pretty grim. Any suggestions on dosage and which brand is best. Thanks a lot.
I have
MCTD
and Sjogren's and wonder if this would help. I don't go out when the sun is shining in the summer. I am having a flare at the moment and feel pretty grim. Any suggestions on dosage and which brand is best. Thanks a lot.
bones-bones
in
LUPUS UK
7 years ago
Mixed connective tissue disease
I now have
MCTD
apparently .....after being diagnosed with Sjogren's about ten years ago. The muscles in my legs and arms feel weak now and I've got a walking stick and a blue badge.
I now have
MCTD
apparently .....after being diagnosed with Sjogren's about ten years ago. The muscles in my legs and arms feel weak now and I've got a walking stick and a blue badge.
bones-bones
in
LUPUS UK
8 years ago
Hello my Friends, my Warriors
I have been a true warrior most of my life, I have
MCTD
/Mixed Connective Tissue Disease/Lupus, RA degenerative arthritis, inflammatory all joints. I am here to learn from others as you can learn from me.
I have been a true warrior most of my life, I have
MCTD
/Mixed Connective Tissue Disease/Lupus, RA degenerative arthritis, inflammatory all joints. I am here to learn from others as you can learn from me.
Treenuh
in
Cure Arthritis Community
8 years ago
Mini flares?
Hey everyone, I was diagnosed with SLE and RA and
MCTD
about 4 months ago. I have mini flares from the RA once in awhile but they see to go away after a few hours of rest and pain killers. On Wednesday however, my whole back, shoulder, arms, and neck Spasmed all day.
Hey everyone, I was diagnosed with SLE and RA and
MCTD
about 4 months ago. I have mini flares from the RA once in awhile but they see to go away after a few hours of rest and pain killers. On Wednesday however, my whole back, shoulder, arms, and neck Spasmed all day.
Jaylowdancer
in
LUPUS UK
8 years ago
Mitral Valve Regurgitation anyone??
Hello all, I've just turned 50 and have
MCTD
, raynauds, sjrogrens, asthma and mild COPD. Today I received a letter from my consultant saying my ECG showed this and she is arranging further investigations. Does anyone have any info or advice?
Hello all, I've just turned 50 and have
MCTD
, raynauds, sjrogrens, asthma and mild COPD. Today I received a letter from my consultant saying my ECG showed this and she is arranging further investigations. Does anyone have any info or advice?
Bronagh2015
in
Lung Conditions Community Forum
8 years ago
Mitral Valve Regurgitation anyone??
Hello everyone, I've just turned 50 and I have
MCTD
, raynauds, sjrogrens and asthma and I've just received a letter from my Rheumy saying my last ECG showed this. At the moment it's mild and she wants to do other investigations. Anyone else have this? What happens next?
Hello everyone, I've just turned 50 and I have
MCTD
, raynauds, sjrogrens and asthma and I've just received a letter from my Rheumy saying my last ECG showed this. At the moment it's mild and she wants to do other investigations. Anyone else have this? What happens next?
Bronagh2015
in
LUPUS UK
8 years ago
Hope it's okay to post here .
I have posted all over the forums but today I found out I have
MCTD
and inflammatory arthritis with joint damage . My Rheumy was so kind and helpful . I'm feeling very detached though as this has been building for years with one rheumy saying it was in my head ! Is this detached feeling normal ?
I have posted all over the forums but today I found out I have
MCTD
and inflammatory arthritis with joint damage . My Rheumy was so kind and helpful . I'm feeling very detached though as this has been building for years with one rheumy saying it was in my head ! Is this detached feeling normal ?
Balletmum71
in
LUPUS UK
8 years ago
Lupus CTD AND URETHRAL/ bladder problems??
Hi there just a quick question to anyone suffering from Lupus CTD
MCTD
OR UCTD. I suffer from undifferentiated connective tissue disease . Amongst many weird symptoms repeated UTI's have been the bane of my life for the past 18 months .
Hi there just a quick question to anyone suffering from Lupus CTD
MCTD
OR UCTD. I suffer from undifferentiated connective tissue disease . Amongst many weird symptoms repeated UTI's have been the bane of my life for the past 18 months .
Cherrywerry
in
LUPUS UK
8 years ago
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