I am fairly new to the site. I live in the US. I have been dxs (diagnoised) by several doctors with either MCTD, myelody splastic syndrome and lupus only to have an insurance change or a doc to leave the network or be sent to another specialist that says no.
I have been sick since I was a kid and now I am in my 40's (late) lol. And, I am having the same and some worsening (sx) symptoms. To make matters worse 4 out of my 5 children are all having the some of the same issues. My Middle daughter sx are proably the worse.
I know that autoimmune diseases normally run in family and it is rampid in mine; MS, diabetes, RA, Polymyositis, Fibro, Lupus, and Thyroid.
This site has been very useful to me. It helps to know that there are others who are/have gone through being misdxedor, not dx, have sx doctors have never heard of or refuse to believe the you are having and say you are depressed or stressed and tell you take this pill (Prozac ex.) and go home and rest and you will fell better in 3 months or so.
I am at wits end and full of many emotions not knowing what to do next but wait. Wait until my ANA is higher than 40 again or my wbcs or rbc are lower . Wait until myC3&4 q4 are low and all other anti marker are positive again.
Until then happens I will suffer in this body with all these crazy sx that no one can explain why they are happening other than I am faking because I read it somewhere or I imagined it.
Thank you all for the rant. This was better than my last cry.
List of current sx: most vary some are daily
*Joint* and proxmia muscle pain facial pain @ temple and below earlobe
confussion and forgetfulnes Loss of train of thought
muscle spasams/ tightness in calfs
loss of appetite/ ravinoues weight loss
night/day sweats soaks bed
*pain and burning in fingers and toes and ears daily*
numbness in various places
facial rash/ body,
Alopecia/ thinnig hair
dry eyes, skin, mouth hard time swollowing and lady parts
Ana 1:40 has been higher this is current statis
weird felling I cant explain
My body does what it want to do when it wants. Everyday it choses and say I think I will give you this and each year it adds something that can rear it ugly face anytime