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Mast cell activation syndrome (MCAS)
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Plaquenil and dry mouth
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
5 years ago
More help please
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
wairoa36
in
Restless Legs Syndrome
5 years ago
Desperate for sleep.
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
Nevermind61
in
Restless Legs Syndrome
5 years ago
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Felcainide vs. Tikosyn
I've been on flecainide since my ablation in July, 2017. I still continue to have episodes of afib and aflutter which can last a few minutes to a few days. My cardiologist would like me to switch to tikosyn but is leaving the decision up to my EP. I'll be seeing my EP soon and would like to discuss
I've been on flecainide since my ablation in July, 2017. I still continue to have episodes of afib and aflutter which can last a few minutes to a few days. My cardiologist would like me to switch to tikosyn but is leaving the decision up to my EP. I'll be seeing my EP soon and would like to discuss
JudyMarieC
in
AF Association
5 years ago
Gp review after b12 stopped
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Twinklesthecat
in
Pernicious Anaemia Society
5 years ago
Small sores that will not go!
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Jooby59
in
CLL Support
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
update on my Homeopathic remedy treatment
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
km5yx7
in
PMRGCAuk
5 years ago
Does Neupogen wash help thin lining?
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Bagpuss07
in
Fertility Network UK
5 years ago
Need face-face expert information & support?
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Itchy rash more
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Daffodilia
in
PMRGCAuk
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Does Plaquenil Hydroxychloroquine) help with Sjorgens
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
Miamigirl305
in
The Australian Sjögren's Syndrome Association
5 years ago
Sjogrens
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
Miamigirl305
in
Hughes Syndrome APS Forum
5 years ago
Putting things in perspective
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
shueswim
in
Advanced Prostate Cancer
5 years ago
Methadone
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
bedith6
in
Restless Legs Syndrome
5 years ago
Clinical Utility of Chromosomal Microarray in Richter's Transformation
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Jm954
Administrator
in
CLL Support
5 years ago
Magnesium deficiency, PPIs & RLS - shock revelation!
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
Chancery
in
Restless Legs Syndrome
5 years ago
Started Buprenorphine 😴
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Shumbah
in
Restless Legs Syndrome
5 years ago
I'm New - Boyfriend has EDS
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Usako
in
Ehlers-Danlos Support UK
5 years ago
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