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Mast cell activation syndrome (MCAS)
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Rls question
@Manerva im still waiting for a neurologist and my doc it has advised cold turkey in the pramiprexole. Should I be looking to get off them and into Gabapentin or maybe tramadol? My doctor wouldnt discuss either yet :( Also I've found some relief with tens on the revitive ix I purchased. For now at least
@Manerva im still waiting for a neurologist and my doc it has advised cold turkey in the pramiprexole. Should I be looking to get off them and into Gabapentin or maybe tramadol? My doctor wouldnt discuss either yet :( Also I've found some relief with tens on the revitive ix I purchased. For now at least
Omegadcuj
in
Restless Legs Syndrome
5 years ago
Just saying hi.
Hi my name is Sue. I am 59 yrs of age and have recently been diagnosed with osteoporosis. I am taking Letrozole as a 5 year treatment plan for the breast cancer i had in 2016. I am healthy really now and count my blessings, only trouble is I have got the osteoporosis I think through taking the Letrozole
Hi my name is Sue. I am 59 yrs of age and have recently been diagnosed with osteoporosis. I am taking Letrozole as a 5 year treatment plan for the breast cancer i had in 2016. I am healthy really now and count my blessings, only trouble is I have got the osteoporosis I think through taking the Letrozole
Plslsg123
in
PMRGCAuk
5 years ago
Update on Idiopathic Pulmonary Fibrosis treatment.
Just a wee update on my previous post on being diagnosed with IPF. I have now been prescribed the drug Nintenidab and Mycophenalate has been removed as it had stopped being effective. There has not been any diahorrea thank goodness! But, have had a 'rumbly tummy' ever since starting on the new med. last
Just a wee update on my previous post on being diagnosed with IPF. I have now been prescribed the drug Nintenidab and Mycophenalate has been removed as it had stopped being effective. There has not been any diahorrea thank goodness! But, have had a 'rumbly tummy' ever since starting on the new med. last
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
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Knee operation
I am due to go into hospital for knee replacement, but iam worried about how to cope with my RLS post op. The thought of my leg klcking out at night fills me with fear, any help would be great. Haydn.
I am due to go into hospital for knee replacement, but iam worried about how to cope with my RLS post op. The thought of my leg klcking out at night fills me with fear, any help would be great. Haydn.
holden47
in
Restless Legs Syndrome
5 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Jm954
Administrator
in
CLL Support
5 years ago
Feeling hopeless-pregnant with rls.
I'm not sure if I'm here to vent, get support, advice or what. It's almost 3:30am and I've been struggling to fall asleep. This is a nightly thing now during this pregnancy. I'm 28 weeks along and I'm absolutely miserable due to my legs and lack of sleep. It started early with this pregnancy and nothing
I'm not sure if I'm here to vent, get support, advice or what. It's almost 3:30am and I've been struggling to fall asleep. This is a nightly thing now during this pregnancy. I'm 28 weeks along and I'm absolutely miserable due to my legs and lack of sleep. It started early with this pregnancy and nothing
Emmarielee
in
Restless Legs Syndrome
5 years ago
Severe impaction told to use lactulose then Movicol
Hi Guys, As the title says I've finally been diagnosed (after a CT Scan and Colonoscopy) with impacted bowel. I never had a clue as I thought I was going normally everyday but was experiencing feeling of incomplete evacuation. I was advised to take lactulose 15ml twice a day for at least 6 months. I've
Hi Guys, As the title says I've finally been diagnosed (after a CT Scan and Colonoscopy) with impacted bowel. I never had a clue as I thought I was going normally everyday but was experiencing feeling of incomplete evacuation. I was advised to take lactulose 15ml twice a day for at least 6 months. I've
Devlin26
in
IBS Network
5 years ago
confused about my blood test results
my results were as follows: TSH - 1.15 miU/L (0.27-4.2) T3 - 3.15 pmol/L (3.1-6.8) T4 - 23.8 pmol/L (12-22) TA - 24.5 kiU/L (<115) TPA - 155 kiU/L (<34) I am currently on 200 mcg Levothyroxine and GP wants to test TSH to adjust it... p.s. I am also diagnosed with PA (injection every 6 weeks and doing
my results were as follows: TSH - 1.15 miU/L (0.27-4.2) T3 - 3.15 pmol/L (3.1-6.8) T4 - 23.8 pmol/L (12-22) TA - 24.5 kiU/L (<115) TPA - 155 kiU/L (<34) I am currently on 200 mcg Levothyroxine and GP wants to test TSH to adjust it... p.s. I am also diagnosed with PA (injection every 6 weeks and doing
bambuko
in
Thyroid UK
5 years ago
Novel coronavirus man-made? Lancet Journal just said 84% transmission, 15% death rate GREATER than SARS virus.
https://www.naturalhealth365.com/coronavirus-death-toll-3285.html Keep distance of at least six feet. . Middle of the article there is a link to Professor Francis Boyel's talk. Very interesting. All those people screaming the end of the world is coming. I think it's finally coming true. .
https://www.naturalhealth365.com/coronavirus-death-toll-3285.html Keep distance of at least six feet. . Middle of the article there is a link to Professor Francis Boyel's talk. Very interesting. All those people screaming the end of the world is coming. I think it's finally coming true. .
parkie13
in
Cure Parkinson's
5 years ago
General Anesthesia and Severe Brittle Asthma
Has anyone had the experience of both, had a GA yesterday was due to have a spinal but they changed it to full GA yesterday peak flow was 500, today 340 and now on steroids and antibiotics and feeling awful. Xx
Has anyone had the experience of both, had a GA yesterday was due to have a spinal but they changed it to full GA yesterday peak flow was 500, today 340 and now on steroids and antibiotics and feeling awful. Xx
Kimmy132
in
Asthma Community Forum
5 years ago
Egg transfer done!!
So, after a nail biting anxious few days after egg collection, I now have a 5AA embaby on board😬🙏😊. I have another good quality embie going in the freezer. Will find out in the morning if I have two more to go in the freezer so fingers crossed! Good luck to all you ladies whatever stage of IVF you
So, after a nail biting anxious few days after egg collection, I now have a 5AA embaby on board😬🙏😊. I have another good quality embie going in the freezer. Will find out in the morning if I have two more to go in the freezer so fingers crossed! Good luck to all you ladies whatever stage of IVF you
Hidden
in
Fertility Network UK
5 years ago
Trilogy and restless legs
Trilogy has been on my list of medications for the past few months. I need it for COPD. Shortly after beginning therapy my restless legs kicked in with a vengeance. It seems like it's every night, mornings too. Discontinuing Trilogy it's not an option. Has anyone else experienced this problem? My doctor
Trilogy has been on my list of medications for the past few months. I need it for COPD. Shortly after beginning therapy my restless legs kicked in with a vengeance. It seems like it's every night, mornings too. Discontinuing Trilogy it's not an option. Has anyone else experienced this problem? My doctor
Foxden6915
in
Restless Legs Syndrome
5 years ago
Buserelin shortage?
Hi all. I’ve been told by my clinic there’s a national shortage of buserelin sub cut so I have to do the nasal sprays. This is a nightmare for me as I have a very high pressure job with loads of meetings every day so taking the spray on time is going to be really difficult. Plus it means I’ll have to
Hi all. I’ve been told by my clinic there’s a national shortage of buserelin sub cut so I have to do the nasal sprays. This is a nightmare for me as I have a very high pressure job with loads of meetings every day so taking the spray on time is going to be really difficult. Plus it means I’ll have to
JoP32
in
Fertility Network UK
5 years ago
Opinions on Clomiphene?
Due to the fact and I have Pcos and I don’t ovulate often, my gp referred me to a specialist. Looking at my blood tests, my husband’s semen result and the fact I got pregnant last year, he said it doesn’t look like I have a problem conceiving and it’s just due to ovulation not occurring every month.
Due to the fact and I have Pcos and I don’t ovulate often, my gp referred me to a specialist. Looking at my blood tests, my husband’s semen result and the fact I got pregnant last year, he said it doesn’t look like I have a problem conceiving and it’s just due to ovulation not occurring every month.
FrancyItaly
in
Fertility Network UK
5 years ago
Mast Cell Activation Syndrome
Has anyone been diagnosed with this? If so. What has helped the most? Thanks in advance.
Has anyone been diagnosed with this? If so. What has helped the most? Thanks in advance.
Stm252
in
Behçet's UK
5 years ago
Any info on RLS and Chronic Kidney Disease?
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
ArtHanger
in
Restless Legs Syndrome
5 years ago
DESPERATE FOR HELP
This is my 8th day of withdrawal from ropinirole. My doctor is unavailable and if I go to the ER they'll think I'm looking for a cheap high. I could use some reasonable advice. I am now taking 1 mg of Ropinirole in the afternoon and another in the evening for 3 more days and then 1 mg . Then 1 at
This is my 8th day of withdrawal from ropinirole. My doctor is unavailable and if I go to the ER they'll think I'm looking for a cheap high. I could use some reasonable advice. I am now taking 1 mg of Ropinirole in the afternoon and another in the evening for 3 more days and then 1 mg . Then 1 at
sweetiepye
in
Restless Legs Syndrome
5 years ago
Your experience of Steroids and metphormin in IVF FET cycle
Hi ladies I’ve had my 5th embryo transfer in the beginning of January and I was gobsmacked when I got a BFP. Unfortunately we had scan today and I’ve miscarried at week 6/7. I have 4 frozen embryos left but am losing hope. Don’t know what to do as don’t know if it’s a fail due to chromosomal abnormality
Hi ladies I’ve had my 5th embryo transfer in the beginning of January and I was gobsmacked when I got a BFP. Unfortunately we had scan today and I’ve miscarried at week 6/7. I have 4 frozen embryos left but am losing hope. Don’t know what to do as don’t know if it’s a fail due to chromosomal abnormality
Hope-and-faith
in
Fertility Network UK
5 years ago
Pramiprexole worsening my RLS?
Long story but will do my best to sumarize :) I come to this forum out of desperation to get some decent sleep. Since becoming healthier and losing 3st (now 18.0st) I have found I have RLS, originally i was put on .088 1 tablet a night, which within 3 months increased to 3 tablets a night and 3 in
Long story but will do my best to sumarize :) I come to this forum out of desperation to get some decent sleep. Since becoming healthier and losing 3st (now 18.0st) I have found I have RLS, originally i was put on .088 1 tablet a night, which within 3 months increased to 3 tablets a night and 3 in
Omegadcuj
in
Restless Legs Syndrome
5 years ago
FET cancelled 😭
Hey everyone I am new to here but been reading lots of comments etc about FET After having an ectopic and three miscarriages I couldn’t wait to start my Ivf It’s been such a long journey I had to do a freeze all because I was High risk of OHSS ! The timing wasn’t great I couldn’t start straight away
Hey everyone I am new to here but been reading lots of comments etc about FET After having an ectopic and three miscarriages I couldn’t wait to start my Ivf It’s been such a long journey I had to do a freeze all because I was High risk of OHSS ! The timing wasn’t great I couldn’t start straight away
Cmc2020
in
Fertility Network UK
5 years ago
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