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Mast cell activation syndrome (MCAS)
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Tear test - normal range
I am wondering if someone can help. I am being investigated for Sjorgrens and today I had tear test however was in normal range. I have to go for lip biopsy and ultrasound on my saliva glands. My question is has anyone had normal tear test but been diagnosed with sjorgrens
I am wondering if someone can help. I am being investigated for Sjorgrens and today I had tear test however was in normal range. I have to go for lip biopsy and ultrasound on my saliva glands. My question is has anyone had normal tear test but been diagnosed with sjorgrens
Macberts
in
The Australian Sjögren's Syndrome Association
4 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
4 years ago
RLS TREATMENT: Every day I read questions and answers on this forum and I would like to share with you some of my concerns
about the replies given to the many RLS sufferers who are struggling with their medication. All medications, if you read the leaflets, have side-effects and complications and at the end of the day, we have to weigh up which ones are going to be effective for each of us individually. 1.Dopamine Agonists
about the replies given to the many RLS sufferers who are struggling with their medication. All medications, if you read the leaflets, have side-effects and complications and at the end of the day, we have to weigh up which ones are going to be effective for each of us individually. 1.Dopamine Agonists
Felicity21
in
Restless Legs Syndrome
4 years ago
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Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
4 years ago
Day 9- HCG trigger shot
Hey guys, just another quick update. I've been in a tizzy the last couple of days. When I was getting my medications, they told me not to get my Lupron trigger yet because it's only good for 14 days, after which you have to discard it, used or unused. Fast forward, after my weekend baseline ultrasound
Hey guys, just another quick update. I've been in a tizzy the last couple of days. When I was getting my medications, they told me not to get my Lupron trigger yet because it's only good for 14 days, after which you have to discard it, used or unused. Fast forward, after my weekend baseline ultrasound
Artemisan
in
Fertility Network UK
4 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
4 years ago
Augmentation & No sleep
I am in need of help please. Some of you have seen my posts before and the recommendations I have appreciated BUT now I am desperate for a decision which my doctor is unable to commit to!! I have split Ropinirole 0.25mg tablets now for 8 weeks plus and still taking a 50mg Tranadol capsule. Nothing works
I am in need of help please. Some of you have seen my posts before and the recommendations I have appreciated BUT now I am desperate for a decision which my doctor is unable to commit to!! I have split Ropinirole 0.25mg tablets now for 8 weeks plus and still taking a 50mg Tranadol capsule. Nothing works
m1946
in
Restless Legs Syndrome
4 years ago
Treatment for dry, peeling lips
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
roxanne67
in
The Australian Sjögren's Syndrome Association
4 years ago
Pain killers
I was prescribed CO-Dydramol yesterday i took one at bedtime I seemed to be awake all night. The above drug did nothing. Pain is just as bad. Will not take it again. Back to paracetamol which does the same
I was prescribed CO-Dydramol yesterday i took one at bedtime I seemed to be awake all night. The above drug did nothing. Pain is just as bad. Will not take it again. Back to paracetamol which does the same
Hidden
in
NRAS
4 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
4 years ago
Coconut water
I read a post from a while back on here about a guy that had gotten RLS when he had a nasty case of the flu. He talked about how beneficial coconut water was for his RLS. I was skeptical of course, so I looked it up. Pregnant women use it sometimes for the potassium and everything. Since it’s packed
I read a post from a while back on here about a guy that had gotten RLS when he had a nasty case of the flu. He talked about how beneficial coconut water was for his RLS. I was skeptical of course, so I looked it up. Pregnant women use it sometimes for the potassium and everything. Since it’s packed
mmjxc
in
Restless Legs Syndrome
4 years ago
Some foods tasting soapy
I started noticing certain foods tasting like perfumed soap / liquid detergent two weeks ago. First it was pork foods. Then seasame oil (so soapy it made me gag) and peanut butter. Just now I had to spit out raw pepper as it also had exact same soapy flavour. It's not pregancy but I did have my Mirena
I started noticing certain foods tasting like perfumed soap / liquid detergent two weeks ago. First it was pork foods. Then seasame oil (so soapy it made me gag) and peanut butter. Just now I had to spit out raw pepper as it also had exact same soapy flavour. It's not pregancy but I did have my Mirena
matilda-_
in
NRAS
4 years ago
Still have to completely avoid triggers while on opioids?
So, with the possibility of a hospital admittance being in my future, I’m sure they’ll want to get me on medications for my stomach that will not agree with my legs. They’ll also probably have me eating a BRAT diet. I’m scared. Last night I woke up a bunch of times and I was restless and had nothing
So, with the possibility of a hospital admittance being in my future, I’m sure they’ll want to get me on medications for my stomach that will not agree with my legs. They’ll also probably have me eating a BRAT diet. I’m scared. Last night I woke up a bunch of times and I was restless and had nothing
mmjxc
in
Restless Legs Syndrome
4 years ago
My blood results...im confused with there ranges
From medichecks TSH 1.63 mIu/L ( 0.27-4.2 ) T3 5.76 pmoI/L ( 3.1-6.8) F thyroxine 14.9 pmoI/L (12-22) Thyroglobulin antibodies >10 KIU /L ( 0 - 115) TPA 11.3 kIU/L ( 0-34) Vb12 active b12 150 pmoI/L ( 37.5 - 187.5) Folate 9.2 ug/L ( 3.89 - 19.45) Vitamin
From medichecks TSH 1.63 mIu/L ( 0.27-4.2 ) T3 5.76 pmoI/L ( 3.1-6.8) F thyroxine 14.9 pmoI/L (12-22) Thyroglobulin antibodies >10 KIU /L ( 0 - 115) TPA 11.3 kIU/L ( 0-34) Vb12 active b12 150 pmoI/L ( 37.5 - 187.5) Folate 9.2 ug/L ( 3.89 - 19.45) Vitamin
Mlj01
in
Thyroid UK
4 years ago
Le
Hello all - I saw the neurologist here in Seattle this past week about moving from Ropinirole to Buprenorphine due to augmentation. He decided I should move over to 900 mg Gabapentin before bed instead. I have been taking 300 mg of gabapentin 3 x daily for other reasons. During the discussion he
Hello all - I saw the neurologist here in Seattle this past week about moving from Ropinirole to Buprenorphine due to augmentation. He decided I should move over to 900 mg Gabapentin before bed instead. I have been taking 300 mg of gabapentin 3 x daily for other reasons. During the discussion he
B534967
in
Restless Legs Syndrome
4 years ago
Peak flow meter measurement
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Jolius
in
Asthma Community Forum
4 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
4 years ago
Rls and cannabis
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Jonyboi21
in
Restless Legs Syndrome
4 years ago
CBD and THC
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
Shumbah
in
Restless Legs Syndrome
4 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
AussieNeil
Partner
in
CLL Support
4 years ago
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