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Experiences with
Mast cell activation syndrome (MCAS)
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RLS and progesterone birth control... trigger?
I was doing really well on 10/325 hydrocodone every night plus 1/2 pill of my .25 mg Requip to keep the RLS at bay. But lately, I have had a series of really bad nights (and then DAYS) when I can’t seem to get relief from my regular meds. The only thing I can think of that is different is that I got
I was doing really well on 10/325 hydrocodone every night plus 1/2 pill of my .25 mg Requip to keep the RLS at bay. But lately, I have had a series of really bad nights (and then DAYS) when I can’t seem to get relief from my regular meds. The only thing I can think of that is different is that I got
Newmomma567
in
Restless Legs Syndrome
4 years ago
IBS OR NOT?
Hi, I’ve been suffering from constipation since December but a month later having been experiencing acute aching in my bowel on lower left side. Dr was going to refer me for a scan but blood & stool samples came back normal so cancelled. At night I don’t know what to do with myself, aching spasms keeping
Hi, I’ve been suffering from constipation since December but a month later having been experiencing acute aching in my bowel on lower left side. Dr was going to refer me for a scan but blood & stool samples came back normal so cancelled. At night I don’t know what to do with myself, aching spasms keeping
Hidden
in
IBS Network
4 years ago
Reboot, reset
I have come to the slow realisation 2 years post abi that my whole life has been reset. I have learned to walk all over and gradually have relearned who i am. This feels like a knowledge of the core of who i was as im not exactly the same as i was before, ie less tolerant, less able to argue efffectively
I have come to the slow realisation 2 years post abi that my whole life has been reset. I have learned to walk all over and gradually have relearned who i am. This feels like a knowledge of the core of who i was as im not exactly the same as i was before, ie less tolerant, less able to argue efffectively
Headshrink
in
Headway
4 years ago
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NK question
Hello all! Congrats on all the good news I read :) I found out about these NK cells august 2020.. after failed FETs.. I went to an autoimmune specialist who informed me of the elevated NK cells. As a result I went on more supplements, started some extra medications 2 weeks prior to FET and weekly intralipid
Hello all! Congrats on all the good news I read :) I found out about these NK cells august 2020.. after failed FETs.. I went to an autoimmune specialist who informed me of the elevated NK cells. As a result I went on more supplements, started some extra medications 2 weeks prior to FET and weekly intralipid
LaLa1222
in
Fertility Network UK
4 years ago
Combined test & amnio
I had my 12 week scan last Tuesday. My NT measurement was 3.3mm (sonographer advised this was high side of normal range 3.5mm is classed as high) I had my combined bloods done on the same day. I recieved a phone call today from my screening midwife to advise higher risk of combined Edwards and Patau
I had my 12 week scan last Tuesday. My NT measurement was 3.3mm (sonographer advised this was high side of normal range 3.5mm is classed as high) I had my combined bloods done on the same day. I recieved a phone call today from my screening midwife to advise higher risk of combined Edwards and Patau
Tash20
in
Pregnancy and Parenting Support
4 years ago
Severe Covid infection is viral sepsis
Some of us who have been dealing with the aftermath of sepsis, septic shock & post sepsis syndrome have watched all the emphasis on long Covid and felt huge empathy for their suffering. Now we are starting to see confirmation of something that we surmised months ago. https://www.healthleadersmedia.com
Some of us who have been dealing with the aftermath of sepsis, septic shock & post sepsis syndrome have watched all the emphasis on long Covid and felt huge empathy for their suffering. Now we are starting to see confirmation of something that we surmised months ago. https://www.healthleadersmedia.com
Sepsur
in
ICUsteps
4 years ago
Thicker Neuchal Fold Translucency identified in 12 week scan
Has anyone else experienced this at their 12 week scan? The measurement is apparently accepted at 3.5mm or below and mine was 3.9mm. We have been referred to a specialist unit at another hospital next week but I'm naturally now worrying myself sick!! My consultant mentioned the risk of chromosomal abnormalities
Has anyone else experienced this at their 12 week scan? The measurement is apparently accepted at 3.5mm or below and mine was 3.9mm. We have been referred to a specialist unit at another hospital next week but I'm naturally now worrying myself sick!! My consultant mentioned the risk of chromosomal abnormalities
NE90
in
Pregnancy and Parenting Support
4 years ago
Can I give my dad Mucinex nightshift cold and flu if he has Parkinsons and takes carbidopa/levodopa?
I have given him Mucinex but don't know if this is the same and is ok to take.
I have given him Mucinex but don't know if this is the same and is ok to take.
ginag711
in
Cure Parkinson's
4 years ago
Experience with smooth endoplasmic reticulum in eggs ?
Hi fertility friends ! I just had my first egg collection on Saturday and managed to get two mature eggs . Both apparently contained smooth endoplasmic reticulum . One of these was fertilised and we are just waiting to see what sort of embryo it makes. The embryologist didn’t tell me what this meant
Hi fertility friends ! I just had my first egg collection on Saturday and managed to get two mature eggs . Both apparently contained smooth endoplasmic reticulum . One of these was fertilised and we are just waiting to see what sort of embryo it makes. The embryologist didn’t tell me what this meant
Gatarra
in
Fertility Network UK
4 years ago
Coke helps - very strange
I've had RLS for almost 20 years. I take Pramipexole and it totally works. But, yesterday, I learned something new. I have never, never had caffeine any time after noon because it makes me jumpy and I don't sleep. (I don't sleep well anyway, so the caffeine meant I didn't sleep at all). But, yesterday
I've had RLS for almost 20 years. I take Pramipexole and it totally works. But, yesterday, I learned something new. I have never, never had caffeine any time after noon because it makes me jumpy and I don't sleep. (I don't sleep well anyway, so the caffeine meant I didn't sleep at all). But, yesterday
kittyknitter
in
Restless Legs Syndrome
4 years ago
Has anyone experienced this?
I am tapering ropinirole from 4 mg by .25 mg and last night went down to 2.75 mg. I did not have any augmentation and have had an easy time with the tapering. I, also, tapered my clonazepam down from .5 mg to ,25 mg by January 19th and I am temporarily staying at .25 .I have been taking 100 mg of gabapentin
I am tapering ropinirole from 4 mg by .25 mg and last night went down to 2.75 mg. I did not have any augmentation and have had an easy time with the tapering. I, also, tapered my clonazepam down from .5 mg to ,25 mg by January 19th and I am temporarily staying at .25 .I have been taking 100 mg of gabapentin
SueJohnson
in
Restless Legs Syndrome
4 years ago
Doyens Honeycomb Retinal Dystrophy also known as Famillia Dominant Drusen
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
Jazzywoman
in
Macular Society
4 years ago
About the vaccines from a rheumy webinar (on Sjoegrens but a/i is a/i) (and an add-on about dry eyes, blinking and blurry vision)
https://www.bssa.uk.net/live/news/news70.asp?fbclid=IwAR0m3FwKuA20IIFLbX7G3CO5UVZOCxs4EzzsN3Rl_L7s54VjeXvq_M1DcRg To save you watching the entire thing, skip to about 51 mins (almost at the end) which is where she talks about the vaccines and how we should have them. She also comments about what she
https://www.bssa.uk.net/live/news/news70.asp?fbclid=IwAR0m3FwKuA20IIFLbX7G3CO5UVZOCxs4EzzsN3Rl_L7s54VjeXvq_M1DcRg To save you watching the entire thing, skip to about 51 mins (almost at the end) which is where she talks about the vaccines and how we should have them. She also comments about what she
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
Something good for pain between shoulders
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
Daffodilia
in
PMRGCAuk
4 years ago
Glutamate triggers!
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
wantokporo
in
Restless Legs Syndrome
4 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
4 years ago
Hot water bottles
Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I think I am every day the same as moment. Have spent last few days cwtched up to hot water bottles and electric blanket only thing that seems to keep pain to a minimum along with paracetamol. Even thou we have snow in wales at
Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I think I am every day the same as moment. Have spent last few days cwtched up to hot water bottles and electric blanket only thing that seems to keep pain to a minimum along with paracetamol. Even thou we have snow in wales at
Hidden
in
PMRGCAuk
4 years ago
Targinact working
I have been on Targinact for 2 weeks in conjunction with Gabapentin & Ropinirole - it's been transformational , with no more standing up swaying during the evening plus I am sleeping much better now. I would say 95% gone. I hope it's not temporary as that was my experience with Ropinirole years back
I have been on Targinact for 2 weeks in conjunction with Gabapentin & Ropinirole - it's been transformational , with no more standing up swaying during the evening plus I am sleeping much better now. I would say 95% gone. I hope it's not temporary as that was my experience with Ropinirole years back
joepublic
in
Restless Legs Syndrome
4 years ago
Covid: How a £20 gadget could save lives
Not sure if this has already been posted but thought it was very interesting. Link to BBC site below. One of the mysteries of Covid-19 is why oxygen levels in the blood can drop to dangerously low levels without the patient noticing. It is known as "silent hypoxia". As a result, patients have been arriving
Not sure if this has already been posted but thought it was very interesting. Link to BBC site below. One of the mysteries of Covid-19 is why oxygen levels in the blood can drop to dangerously low levels without the patient noticing. It is known as "silent hypoxia". As a result, patients have been arriving
Bcol
in
PMRGCAuk
4 years ago
Is Amitryptiline contra indicated with Pred?
Sadly, Co-codamol only worked for two nights. Then I remembered that I had been prescribed Ami with Morphine Sulphate when I had a herniated disc. It was still in date and for the last two nights I took it at 8pm , as I had done before , light off at 12MD and slept through until 9am. That may not
Sadly, Co-codamol only worked for two nights. Then I remembered that I had been prescribed Ami with Morphine Sulphate when I had a herniated disc. It was still in date and for the last two nights I took it at 8pm , as I had done before , light off at 12MD and slept through until 9am. That may not
merril
in
PMRGCAuk
4 years ago
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