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Mast cell activation syndrome (MCAS)
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Tramadol and Gabapentin?
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
Springfiel1
in
Restless Legs Syndrome
1 year ago
22pagents22
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
22pagets22
in
Fibromyalgia Action UK
1 year ago
Weaning off high dose Pramipexole
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
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Going off Horizont help
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
wantokporo
in
Restless Legs Syndrome
1 year ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
10 months ago
my dad isn’t waking up
hi my dad is an 62 years old diabetic patient he had an left middle cerebral artery stroke He was normal at the beginning and had TPA and everything was absolutely normal he was about to have mechanical thrombectomy but then he felt dizzy and the doctors recommended a craniotomy decompression
hi my dad is an 62 years old diabetic patient he had an left middle cerebral artery stroke He was normal at the beginning and had TPA and everything was absolutely normal he was about to have mechanical thrombectomy but then he felt dizzy and the doctors recommended a craniotomy decompression
Jomanahj
in
ICUsteps
1 year ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
1 year ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
10 months ago
Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
mcg-woo
in
Pernicious Anaemia Society
1 year ago
Hypothetical question re Pramipexole
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Graham3196
in
Restless Legs Syndrome
1 year ago
Me again
Hi all, Hope everyone is as well as can be 😊 Still not sure if I'm posting in the right place but you guys have always been so helpful 💕 Found out this week that the lip biopsy I had done did not have any sjorgrens syndrome showing which is what they were initially looking for, however the new rheumatologist
Hi all, Hope everyone is as well as can be 😊 Still not sure if I'm posting in the right place but you guys have always been so helpful 💕 Found out this week that the lip biopsy I had done did not have any sjorgrens syndrome showing which is what they were initially looking for, however the new rheumatologist
Haylz2109
in
LUPUS UK
1 year ago
magnesium
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
RLSKaren
in
Restless Legs Syndrome
1 year ago
Ropinirole reduction
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
21years
in
Restless Legs Syndrome
1 year ago
A wonderful GP
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
Loopylegs
in
Restless Legs Syndrome
1 year ago
Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread.
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
cesanon
in
Advanced Prostate Cancer
11 months ago
HELP PLEASE
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
milly-22
in
Restless Legs Syndrome
1 year ago
Methadone adjustment/Horizant
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
wantokporo
in
Restless Legs Syndrome
1 year ago
systemic sclerosis
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
sessull
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Buprenorphine and nausea
I will be switching from methadone to buprenorphine. How common is nausea as a side effect? Does it go away over time? My doctor gave me 60 anti-nausea pills, but insurance hasn't approved my switch to buprenorphine yet. Just wondering what to anticipate. I asked to change because of some cognitive
I will be switching from methadone to buprenorphine. How common is nausea as a side effect? Does it go away over time? My doctor gave me 60 anti-nausea pills, but insurance hasn't approved my switch to buprenorphine yet. Just wondering what to anticipate. I asked to change because of some cognitive
ratfancy
in
Restless Legs Syndrome
1 year ago
Long Covid
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
wairoa36
in
Restless Legs Syndrome
1 year ago
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