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Mast cell activation syndrome (MCAS)
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My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
5 months ago
Preparing for GP appt
Hello I have a GP appointment in a few weeks to discuss blood tests results and symptoms (tiredness, weight gain, low mood, pins and needles). Based on what I've read on this forum, it sounds like these symptoms and results could be indicative of hypothyroid, but because TSH is within range I'm unlikely
Hello I have a GP appointment in a few weeks to discuss blood tests results and symptoms (tiredness, weight gain, low mood, pins and needles). Based on what I've read on this forum, it sounds like these symptoms and results could be indicative of hypothyroid, but because TSH is within range I'm unlikely
Fb104
in
Thyroid UK
4 months ago
Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
25 days ago
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RLS AND ANTIHISTAMINES
Could someone please advise an alternative to Fexofenadine as it has an effect on my Restless legs. Since stopping this drug my RLS has gone. I have spoken to my GP (UK) they said there is not and alternative to Fexofenadine that is 'non drowsy' on prescription. Thank you. Keith
Could someone please advise an alternative to Fexofenadine as it has an effect on my Restless legs. Since stopping this drug my RLS has gone. I have spoken to my GP (UK) they said there is not and alternative to Fexofenadine that is 'non drowsy' on prescription. Thank you. Keith
Keith1231
in
Restless Legs Syndrome
5 months ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
30 days ago
Restless Legs Syndrome Market Size, Epidemiology, Analysis & Trends 2024-2034
Then there is this - https://menafn.com/1107801564/Restless-Legs-Syndrome-Market-Size-Epidemiology-Analysis-Trends-2024-2034 BROOKLYN, NY, USA, February 2, 2024 /EINPresswire / -- Restless Legs Syndrome Market Overview: The restless legs syndrome market is expected to exhibit a CAGR of 2.49% during
Then there is this - https://menafn.com/1107801564/Restless-Legs-Syndrome-Market-Size-Epidemiology-Analysis-Trends-2024-2034 BROOKLYN, NY, USA, February 2, 2024 /EINPresswire / -- Restless Legs Syndrome Market Overview: The restless legs syndrome market is expected to exhibit a CAGR of 2.49% during
RLSLearner
in
Restless Legs Syndrome
6 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
1 month ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
2 months ago
PMR AND ANASTROZOLE
I had an operation for breast cancer (Mastectomy with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets. I have been told by my surgeon that Anastrozole can give the same side effects as PMR so has delayed the start of these tablets as I was
I had an operation for breast cancer (Mastectomy with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets. I have been told by my surgeon that Anastrozole can give the same side effects as PMR so has delayed the start of these tablets as I was
GwenTheHen16
in
PMRGCAuk
6 months ago
I found this little gem today
The conclusion expressed my frustration today. The paper covers everything from nicotine to yoga, supplements etc... "In conclusion, although there are more holes than cheese in Swiss cheese, the nonpharmacologic treatments for RLS are worth considering given the limitations and partial success of
The conclusion expressed my frustration today. The paper covers everything from nicotine to yoga, supplements etc... "In conclusion, although there are more holes than cheese in Swiss cheese, the nonpharmacologic treatments for RLS are worth considering given the limitations and partial success of
WideBody
in
Restless Legs Syndrome
6 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
2 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
6 months ago
extra fluid 24 weeks
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
AngelMum1
in
Pregnancy and Parenting Support
9 months ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
my sister
These are my sisters blood she has not felt good for a while she was adamant it was not her thyroid because GP only did t4 bloods and TSh and she refused to get more detailed bloods anyways I eventually made her get them done and like I expected TPA high! Endocrinologist should give her small dose of
These are my sisters blood she has not felt good for a while she was adamant it was not her thyroid because GP only did t4 bloods and TSh and she refused to get more detailed bloods anyways I eventually made her get them done and like I expected TPA high! Endocrinologist should give her small dose of
Thyroid36
in
Thyroid UK
5 months ago
Christopher
Hi there. Thank you for letting me join the group. 6 years ago I was diagnosed with stage 5 kidney disease and am on regular dialysis. I have since developed restless leg syndrome which has got steadily worse. Pramipexole was prescribed but honestly doesn't help much. As soon as I sit down to relax it
Hi there. Thank you for letting me join the group. 6 years ago I was diagnosed with stage 5 kidney disease and am on regular dialysis. I have since developed restless leg syndrome which has got steadily worse. Pramipexole was prescribed but honestly doesn't help much. As soon as I sit down to relax it
Migennes
in
Restless Legs Syndrome
6 months ago
Bfp at home many times, but extreme low beta hcg blood test and was worried much doubt from dr but then boom! 6 to 2000's
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
Flutterbby
in
Fertility Network UK
9 months ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
1 month ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
1 month ago
Side effects of Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
davchar23
in
Restless Legs Syndrome
6 months ago
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