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Mantle cell lymphoma (MCL)
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Has anyone here had bone marrow transplant for lupus?
fragorosvar
in
LUPUS UK
11 years ago
On a lighter note...........How did the tradition of putting a fairy on top of the Christmas tree start?
I so enjoyed reading pinkpig99's lovely poem yesterday (or was it the day before?... the days all run into one another!) that I was thinking about it, while I was lying in bed wide awake, and I was reminded of a joke I was told a few years ago. Now I must warn all of you that I was never very good
I so enjoyed reading pinkpig99's lovely poem yesterday (or was it the day before?... the days all run into one another!) that I was thinking about it, while I was lying in bed wide awake, and I was reminded of a joke I was told a few years ago. Now I must warn all of you that I was never very good
Saskia
in
Fibromyalgia Action UK
11 years ago
Physical activity and hematological malignancies... decreased risk...significant in CLL
Physical Activity (PA) and CLL ...large study There was a decreased risk of hematologic malignancies associated with Physical Activity. These associations were strongest for myeloid neoplasms for the highest tertile of all PA, for the highest tertile of moderate/high-intensity. There were also
Physical Activity (PA) and CLL ...large study There was a decreased risk of hematologic malignancies associated with Physical Activity. These associations were strongest for myeloid neoplasms for the highest tertile of all PA, for the highest tertile of moderate/high-intensity. There were also
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
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Big Brother (or is that Big Pharma?) strikes again
This morning I checked my supply of my winter standby of Echinacea, and decided it was time to buy some more. To my horror the price from my usual supplier has rocketed, so I checked other sites only to discover that the same high prices applied, and on none of the sites was it now called straightforward
This morning I checked my supply of my winter standby of Echinacea, and decided it was time to buy some more. To my horror the price from my usual supplier has rocketed, so I checked other sites only to discover that the same high prices applied, and on none of the sites was it now called straightforward
Hidden
Administrator
in
Thyroid UK
11 years ago
Happy birthday to me
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
sulka
in
Cure Parkinson's
11 years ago
People experiences.
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
Genital dermatitis
Hi All, Over 2 years ago I had a bad bout of genital dermatitis which cleared up very quickly after using betnovate. I've been a bit stressed recently and it has come back. I've got a new tube of betnovate but it is not working as quickly as before. Has anyone had this and do you have any recommendations
Hi All, Over 2 years ago I had a bad bout of genital dermatitis which cleared up very quickly after using betnovate. I've been a bit stressed recently and it has come back. I've got a new tube of betnovate but it is not working as quickly as before. Has anyone had this and do you have any recommendations
Corrosion
in
LUPUS UK
11 years ago
So what is a Neutropenic Diet? Why should we follow it post treatment?
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Is there anyone who'se had a stem cell transplant prepared to help me?
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
honeycombe3
in
Cure Parkinson's
11 years ago
How does this work?
This is a place where you can log things. You might be asking yourself, ‘What kind of things?’. Well, really anything relating to how lymphoma affects your life. So, you can write about anything from how lymphoma impacts your family life to the side effects of certain drugs to how it makes you feel
This is a place where you can log things. You might be asking yourself, ‘What kind of things?’. Well, really anything relating to how lymphoma affects your life. So, you can write about anything from how lymphoma impacts your family life to the side effects of certain drugs to how it makes you feel
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
12 years ago
Any ladies had a TVT mesh sling fitted for stress incontinence?
Just wondering whether any ladies out there have had a mesh sling fitted as a bladder repair. I had my Johnson & Johnson's Gynecare Mesh fitted in 2003 and it was taken off the market this year. One of the safety concerns is that the chemicals in the material of the mesh might leach into the body and
Just wondering whether any ladies out there have had a mesh sling fitted as a bladder repair. I had my Johnson & Johnson's Gynecare Mesh fitted in 2003 and it was taken off the market this year. One of the safety concerns is that the chemicals in the material of the mesh might leach into the body and
viv112
in
Hughes Syndrome APS Forum
12 years ago
Blood
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
alyj
in
LUPUS UK
12 years ago
Another new finding !
Key Player in Parkinson's Disease Neuron Loss Pinpointed ScienceDaily (Oct. 19, 2012) — By reprogramming skin cells from Parkinson's disease patients with a known genetic mutation, researchers at the Salk Institute for Biological jjStudies have identified damage to neural stem cells as a powerful player
Key Player in Parkinson's Disease Neuron Loss Pinpointed ScienceDaily (Oct. 19, 2012) — By reprogramming skin cells from Parkinson's disease patients with a known genetic mutation, researchers at the Salk Institute for Biological jjStudies have identified damage to neural stem cells as a powerful player
Hidden
in
Cure Parkinson's
12 years ago
Mylofibrosis
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
tissi
in
MPN Voice
12 years ago
He forgets and she reminds me
Bit of this Man in a bad mood hasn't brought the address or his phone and can only vaguely remember the instructions of how to get there. We start at the bottom of the dead end, where there is a young girl schooling a horse. And work our way up the lane. 2 men have no idea either but invite himself
Bit of this Man in a bad mood hasn't brought the address or his phone and can only vaguely remember the instructions of how to get there. We start at the bottom of the dead end, where there is a young girl schooling a horse. And work our way up the lane. 2 men have no idea either but invite himself
nedd
in
Pain Concern
12 years ago
Please help PMRGCAuk raise money for GCA research!
Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run on a shoestring and our shoestring is wearing a bit thin! We desperately need money to help us continue our work. This month, Jennifer from the East Anglia support group and I are doing the Carrots Night Walk around
Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run on a shoestring and our shoestring is wearing a bit thin! We desperately need money to help us continue our work. This month, Jennifer from the East Anglia support group and I are doing the Carrots Night Walk around
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
has anyone had lumps in neck , swollen lymph nodes that dont hurt and if so was it lupus or lymphoma.
AlisonE
in
LUPUS UK
12 years ago
My first attempt at baking gluten free bread in a machine - help needed pls!
I have been cooking gluten free, dairy free food for over a year now but never had the nerve to try and make my own bread. Until now. My mother in law has a bread machine and offered to lend it to me, as we have all had problems getting hold of the 'nice' Genius bread in the supermarkets of late. We
I have been cooking gluten free, dairy free food for over a year now but never had the nerve to try and make my own bread. Until now. My mother in law has a bread machine and offered to lend it to me, as we have all had problems getting hold of the 'nice' Genius bread in the supermarkets of late. We
Feedingmyintolerantchild
in
Gluten Free Guerrillas
12 years ago
Extreme tiredness, low ferritin - both myself and daughter
Well I could not believe it when the hospital in London said that both of our levels are very low hence why I fall asleep so suddenly and my daughter saying how extremely tired she is put it down to A levels but they said low ferritin. Looking at our results it says about low Haemcrit, high red cell
Well I could not believe it when the hospital in London said that both of our levels are very low hence why I fall asleep so suddenly and my daughter saying how extremely tired she is put it down to A levels but they said low ferritin. Looking at our results it says about low Haemcrit, high red cell
daisy11
in
Hughes Syndrome APS Forum
12 years ago
MF BMT (SCT) Transplant Survivor
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
MFBMT2011
in
MPN Voice
12 years ago
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