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Mantle cell lymphoma (MCL)
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Cause of Hot Flashes?
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?
Steve2002
in
PMRGCAuk
7 years ago
Its been a while hello all
Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into gory details but if you would like to know more here is my blog http://beckyb8.wixsite.com/stemcelltransplant As far as blood clotting goes they are still unsure
Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into gory details but if you would like to know more here is my blog http://beckyb8.wixsite.com/stemcelltransplant As far as blood clotting goes they are still unsure
beckyb
in
Hughes Syndrome APS Forum
7 years ago
GIANT CELL TEMPORAL ARTERITIS AND THE LINK TO SEIZURES
It is 4 years plus since I was diagnosed with GCA [double vision etc,etc] and 2 years ago when down to 1mg of Prednisolone I had a relapse. I'm down to 2.5 mg of Pred now and continuing with a slow reduction. However, last year I had a seizure and had three more since. There is a research paper by P.L.Silbert
It is 4 years plus since I was diagnosed with GCA [double vision etc,etc] and 2 years ago when down to 1mg of Prednisolone I had a relapse. I'm down to 2.5 mg of Pred now and continuing with a slow reduction. However, last year I had a seizure and had three more since. There is a research paper by P.L.Silbert
Richard2012
in
PMRGCAuk
7 years ago
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MF and bone marrow transplant
Had another hospital appointment today and to our shock and horror Steve is now going to be fast tracked for a bone marrow transplant. His symptoms have increased and his blasts have gone from o% to 5% in three months. We still haven't seen an mpn specialist and I'm starting to lose patience with the
Had another hospital appointment today and to our shock and horror Steve is now going to be fast tracked for a bone marrow transplant. His symptoms have increased and his blasts have gone from o% to 5% in three months. We still haven't seen an mpn specialist and I'm starting to lose patience with the
afonog
in
MPN Voice
7 years ago
Aggressive B Cell then Marginal Zone
I wad diagnosed first with Aggressive B Cell and 2 years later Marginal Zone. I had the Chop with 6 rounds, then 2 more. I still had in bone marrow. I had 6 weekly Rituxan, then one every other month for one year. I have a PET Scan on Friday and see doct5on Monday. Has anyone had the Aggressive first
I wad diagnosed first with Aggressive B Cell and 2 years later Marginal Zone. I had the Chop with 6 rounds, then 2 more. I still had in bone marrow. I had 6 weekly Rituxan, then one every other month for one year. I have a PET Scan on Friday and see doct5on Monday. Has anyone had the Aggressive first
dbalthrop
in
Non Hodgkin's Lymphoma Friends
7 years ago
Cancer Back again
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
CarenR
in
Non Hodgkin's Lymphoma Friends
7 years ago
Blood results concerns
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
momof12
in
CLL Support
7 years ago
#Sickle cell Strong
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
Anzy
in
Sickle Cell Society
7 years ago
Need a little clarity..T cell histiocyte rich B cell lymphoma
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
1Anj1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Tocilizumab
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Tonylynn
in
PMRGCAuk
7 years ago
multiple sclerosis and sickle cell trait
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
shestlouis
in
Sickle Cell Society
7 years ago
Bendamustine/Rituxan
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
mejiae
in
CLL Support
7 years ago
CLL / P17 with Mutation
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
evetom
in
CLL Support
7 years ago
The fight of my life
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
oncloudnine
in
Non Hodgkin's Lymphoma Friends
7 years ago
PMR - Would appreciate feedback.
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
hiandri
in
PMRGCAuk
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Mantle cell lymphoma Hope
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
Tginger61
in
Non Hodgkin's Lymphoma Friends
7 years ago
Herclon(Trastuzumab) not paid by Insurance Company by saying that"Hospitalization is not Required to take this injection,hence not paid"
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
shashishekhar
in
Breast Cancer India
7 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
7 years ago
Advice for new lymphoma diagnosis
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
Hal2628
in
Non Hodgkin's Lymphoma Friends
7 years ago
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