Had another hospital appointment today and to our shock and horror Steve is now going to be fast tracked for a bone marrow transplant. His symptoms have increased and his blasts have gone from o% to 5% in three months.
We still haven't seen an mpn specialist and I'm starting to lose patience with the progression of care here. I've been asking to see a specialist since initial diagnosis and have got nowhere. I'm not a shy, retiring little flower so god knows how people who are cope.
A different support group has expressed surprise that the 5% has been enough to precipitate the rush to transplant so I think we need to see a specialist like yesterday.
I'm going to see if we can get a one off referral to Claire Harrison although not hopeful as we live in Wales.