Aggressive B Cell then Marginal Zone

[dbalthrop]

I wad diagnosed first with Aggressive B Cell and 2 years later Marginal Zone. I had the Chop with 6 rounds, then 2 more. I still had in bone marrow. I had 6 weekly Rituxan, then one every other month for one year. I have a PET Scan on Friday and see doct5on Monday. Has anyone had the Aggressive first?

[Judyhoneycomb]

I am on Rituxin infusions until July 2017. I did what you have been thru. I am in remission. I hope you get good news. Wishing you the best.

[dbalthrop in reply to Judyhoneycomb]

Thank you! I will let yoy know next Monday. PET scan Friday.

[Judyhoneycomb in reply to dbalthrop]

Thinking of you today and pray for good news...

[Tinkerbellcgy]

I had the aggressive Diffuse Large B Cell Lymphoma at the same time as I had indolent Follicular Lymphoma. How my symptoms presented were puzzling and made it difficult for the oncology team to definitively diagnose which ultimately led the team to treat me for the Follicular.

It wasn't until after about 6 months from the completion of 6 cycles of R-CHOP followed by two years of maintenance that it became evident that both types were present and active when I originally presented thereby creating the puzzle in trying to establish a definitive diagnosis. I have since undergone an autologous stem cell transplant for the DLBCL and just last year the Follicular relapsed. Both types of my lymphoma are currently in remission.

[Rmallow in reply to Tinkerbellcgy]

I was diagnosed with both types right away

I was given rchop then radiation to the area of the tumors

Looks like they were taken care of but concerned about something returning somewhere else from the indolent ones

Kind of confused and unsure

Anyone else have this type of program?

Randy

[Jennchap1]

I had aggressive B cell that then crossed the blood brain barrier into my CNS ( central nervous system). I am 4 months post stem cell transplant now. Jennifer

[Reem-ayoub in reply to Jennchap1]

Hi Jenn. How have you been post transplant? My husband goes in on Friday to have stem cells collected. He is currently on Filgrastim injections. Scheduled to go for the 3 week isolation beginning of May. Any feedback helps. Thanks 😊

[Jennchap1 in reply to Reem-ayoub]

Hi there:). I am doing mostly well. I had no real problems pre transplant to include transplant day and days after. However,when the side effects of the harsh chemo kicked in (of course so powerful it wipes out your immune system), I was knocked down hard. My husband stayed with me in the hospital for the whole month. I had very painful mouth sores and my gi tract suffered considerably. It made the world of difference to have him there to bring me food,I,thought I could eat, etc. everyone has different reactions of course and I hope,your husband doesn't have a hard time of,it. Even almost 5 months later, I still deal with diarrhea daily andmsome days low,energy. He will have to rest, yet slowly build back strength each day. Key for me has been to avoid people and crowds so.as to avoid any exposure to germs. Good luck!

[dbalthrop]

My PET SCAN was clear, another in 6 months.