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Experiences with
Mantle cell lymphoma (MCL)
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Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Mantle cell lymphoma Hope
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
Tginger61
in
Non Hodgkin's Lymphoma Friends
8 years ago
Herclon(Trastuzumab) not paid by Insurance Company by saying that"Hospitalization is not Required to take this injection,hence not paid"
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
shashishekhar
in
Breast Cancer India
7 years ago
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Advice for new lymphoma diagnosis
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
Hal2628
in
Non Hodgkin's Lymphoma Friends
7 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
8 years ago
Stem cell transplant for AML 8 yrs on
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Shazzzey
in
Leukaemia Support
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
Rituxan (Rituximab) round two three for and five
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
wotshernameagain
in
LUPUS UK
7 years ago
Act of Love
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Shelley53a
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
actemra
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
mamacline
in
PMRGCAuk
7 years ago
REJECTION OF CLAIM
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
aksingal
in
Breast Cancer India
7 years ago
My recent experience of Giant Cell Arteritis
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
marpil
in
PMRGCAuk
7 years ago
November blood test results B H on 100 thyroxine, upped to 125
These are my first private test results. I have new ones from GP this week please advise. Marked no further action according to receptionist Gp phoned last night to discuss, suggested raising a further 25 thyroxine to 150 TSH .66. (.35-5.5) T4 10.8. (10- 19.8) T3 3.3. (3.5 - 6.5) below range Vit d
These are my first private test results. I have new ones from GP this week please advise. Marked no further action according to receptionist Gp phoned last night to discuss, suggested raising a further 25 thyroxine to 150 TSH .66. (.35-5.5) T4 10.8. (10- 19.8) T3 3.3. (3.5 - 6.5) below range Vit d
miglet54
in
Thyroid UK
7 years ago
Bewildered
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Turton
in
Non Hodgkin's Lymphoma Friends
7 years ago
Yellow eyes and Red lips
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
macogola
in
Sickle Cell Society
7 years ago
My introduction
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Urine odor has changed
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
Post transplant feedback
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine and effect on stem cells
My husband, 49 yrs old, has
mantle
cell
lymphoma
. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
My husband, 49 yrs old, has
mantle
cell
lymphoma
. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
Reem-ayoub
in
Lymphoma Canada
8 years ago
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