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Experiences with
Mantle cell lymphoma (MCL)
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Rituxan (Rituximab) round two three for and five
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
wotshernameagain
in
LUPUS UK
7 years ago
Act of Love
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Shelley53a
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
actemra
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
mamacline
in
PMRGCAuk
7 years ago
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REJECTION OF CLAIM
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
aksingal
in
Breast Cancer India
7 years ago
My recent experience of Giant Cell Arteritis
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
marpil
in
PMRGCAuk
7 years ago
November blood test results B H on 100 thyroxine, upped to 125
These are my first private test results. I have new ones from GP this week please advise. Marked no further action according to receptionist Gp phoned last night to discuss, suggested raising a further 25 thyroxine to 150 TSH .66. (.35-5.5) T4 10.8. (10- 19.8) T3 3.3. (3.5 - 6.5) below range Vit d
These are my first private test results. I have new ones from GP this week please advise. Marked no further action according to receptionist Gp phoned last night to discuss, suggested raising a further 25 thyroxine to 150 TSH .66. (.35-5.5) T4 10.8. (10- 19.8) T3 3.3. (3.5 - 6.5) below range Vit d
miglet54
in
Thyroid UK
7 years ago
Bewildered
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Turton
in
Non Hodgkin's Lymphoma Friends
7 years ago
Yellow eyes and Red lips
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
macogola
in
Sickle Cell Society
7 years ago
My introduction
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Urine odor has changed
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
Post transplant feedback
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine and effect on stem cells
My husband, 49 yrs old, has
mantle
cell
lymphoma
. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
My husband, 49 yrs old, has
mantle
cell
lymphoma
. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
Reem-ayoub
in
Lymphoma Canada
8 years ago
Gastroenterologist says a positive IFA & Parietal Cell antibody result does not mean I have P.A. ?! HELP & advice please
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Barry1955
in
Pernicious Anaemia Society
7 years ago
Trying Something New
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
Cynt-ann53
in
Sickle Cell Society
7 years ago
Autologous stem cell transplantation
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Bhlool
in
LSN
7 years ago
Hi! I'm new.
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
MsMindy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Platelet count going down
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
budm
in
CLL Support
7 years ago
sickle cell traits problems
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
lavette40
in
Sickle Cell Society
7 years ago
Anyone taking Rifampicin?
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
butterflyEi
in
PBC Foundation
7 years ago
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