I have really amazing news which I want to share with everyone!
I am one year hospital admissions free! #Sicklestrong
As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of problems such as painful crisis, organ damage and organ failure, extreme fatigue, strokes, swelling of extremities, bacterial infection and may lead to death.
Through the years I have struggled with having sickle-cell, there has been many ups and downs, bouts of depression in dealing with a life long illness but it has taught me many lessons, some hard but always necessary in making me the person that I am today and despite not realising it at the time I am grateful for everything I have been through.
It is a credit to all I have learnt and the support system around me that has kept me out of hospital this year. In my lifetime there has never been a full year without me being admitted to hospital, every year since I was born I am admitted to hospital five or six times a year from one to six weeks at a time.
I had enough of always being sick and I have tried different things throughout the years. But last year I decided to try something different subtle. I kept meditating, I tried to eat a little healthier but the main thing I have changed is drinking alkaline water. It has revolutionised my life, I drink four litres of it every day and it works! It really works. I am not saying I have not been sick for a year, I still get daily pain, and ‘mini-crisis’ every few months but the really bad crisis that I used to get has gone. I know it is not forever but I have enjoyed a year without once having to deal with that level of pain and I am beyond grateful. I am looking forward to more healthier days ahead.
Life after a Sickle Cell Crisis
I have full blown sickle cell and i lose hope a lot
Sickle cell trait but leg pains
I'm the same, found out I had sickle cell at 6 months old and was in hospital quite a lot...but as I got older I learned to deal with my pain!
Along the years my pain was so serious, I had 5 strokes, 5 fits etc but I'm still here through god giving me the strength!!!
Now my pain is less and I've not been in hospital for 2/3 years!!!
I'm eating healthy with I never did before, I'm do excersise to live longer!!!
I'm proud of who I am and I'm proud of my sickle cell!!!
Well done, it is definitely possible. I have Sickle cell, I am 35 years old married with 2 kids. I have not been admitted to hospital with a Sickle crisis since the age of 6 years old. I definitely still have pain but manage it on my own. I have had my spleen removed and have had surgery for a rare tumour which thankfully wasn't malignant.
I have learnt to self medicate and catch the pain before it becomes worse. My network of friends and family are brilliant but keeping on top of your fluids, drinking water mainly, keeping warm and exercising regularly are my mantra to staying healthy.
It is possible but have learnt to understand that there's different levels of Sickle Crisis. It's all about your lifestyle and mind frame in dealing with it. I hope there are many more of us out there attempting to beat Sickle cell.