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Mantle cell lymphoma (MCL)
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Interesting Question for the Psychiatrists and Geneticists Out There
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
strawbjt
in
CHADD's Adult ADHD Support
6 years ago
Rituximab
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
My wife and APS - Looking for help
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
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Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Feelsolow
in
CLL Support
6 years ago
HG and platelet number for starting therapy
My doctor recommended me that chemotherapy should be started because my number of hemoglobin went down less than 11.0 g/dl (it is international criterion for starting therapy) to 10.8 g/dl. However, I do not want to start therapy now. I want to ask a question to especially someone who has experience
My doctor recommended me that chemotherapy should be started because my number of hemoglobin went down less than 11.0 g/dl (it is international criterion for starting therapy) to 10.8 g/dl. However, I do not want to start therapy now. I want to ask a question to especially someone who has experience
Miee
in
CLL Support
6 years ago
10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Crime: Pastor With 5 SS Children Receives Judgment July 6
For the past 6 years, Pastor Abel Olukayode Adewale, 57, has been embroiled in legal tussles against one of Nigeria’s biggest and most powerful banks. The whole saga began on March 5 2012, when the Apostolic Church pastor received an alert for the sum of N1 million on his account with Wema Bank Plc.
For the past 6 years, Pastor Abel Olukayode Adewale, 57, has been embroiled in legal tussles against one of Nigeria’s biggest and most powerful banks. The whole saga began on March 5 2012, when the Apostolic Church pastor received an alert for the sum of N1 million on his account with Wema Bank Plc.
sicklecellnews
in
Sickle Cell Society
6 years ago
Well got my results back and I guess this explains alot 🤦🏼♀️
Sorry for the lighting, if you cant see it it says 96.6 for parietal cell antibody range 0.0 - 24.9 Thank you for pointing me in the right direction. Im not sure if this qualifies me as auto immune gastritis but thankfully we have discovered this.
Sorry for the lighting, if you cant see it it says 96.6 for parietal cell antibody range 0.0 - 24.9 Thank you for pointing me in the right direction. Im not sure if this qualifies me as auto immune gastritis but thankfully we have discovered this.
JennaShi
in
Thyroid UK
6 years ago
SCT just got real.
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
KAS8
in
CLL Support
6 years ago
left shoulder hurting again
been on pred since oct 2016, 40 to start, then tapered well to 10 up til august 2017, rheu my wanted to keep me at that dose of 10 until into new year 2018, as my son who was diagnosed with multiple myeloma was having stem cell transplant in jan 2018, she said with the additional stress, did not want
been on pred since oct 2016, 40 to start, then tapered well to 10 up til august 2017, rheu my wanted to keep me at that dose of 10 until into new year 2018, as my son who was diagnosed with multiple myeloma was having stem cell transplant in jan 2018, she said with the additional stress, did not want
arvine
in
PMRGCAuk
6 years ago
The Bloodline with LLS ------------------------------------ A PODCAST FOR PATIENTS AND CAREGIVERS
http://www.lls.org/ [i]( a USA base organization but the links and audio programs etc. should work world wide- Len)[/i] Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as Alicia Patten
http://www.lls.org/ [i]( a USA base organization but the links and audio programs etc. should work world wide- Len)[/i] Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as Alicia Patten
lankisterguy
Volunteer
in
CLL Support
6 years ago
Muscle heaviness .
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Dewdrop456
in
PMRGCAuk
6 years ago
Low b12, paretial antibodies negative, is it PA?
Hi all 👋🏼 Please bear with me, this is my first time posting. After a loooong time of feel tired beyond belief, low mood, gastro issues and irregular periods (is that a low b12 thing???) my dr tested my b12. My serum levels came back as 126 and my active b12 was 27. I’ve just finished the 6 loading
Hi all 👋🏼 Please bear with me, this is my first time posting. After a loooong time of feel tired beyond belief, low mood, gastro issues and irregular periods (is that a low b12 thing???) my dr tested my b12. My serum levels came back as 126 and my active b12 was 27. I’ve just finished the 6 loading
Emmy2018
in
Pernicious Anaemia Society
6 years ago
Treatment for Mantle Cell Lymphoma
This study addresses treatment options for the two types of MCL : https://jamanetwork.com/journals/jamaoncology/article-abstract/2673838?redirect=true
This study addresses treatment options for the two types of MCL : https://jamanetwork.com/journals/jamaoncology/article-abstract/2673838?redirect=true
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
I feel sad and alone
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
mnonchan
in
Lung Conditions Community Forum
6 years ago
Dovetailing
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Angiejnz
in
PMRGCAuk
6 years ago
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Yay good bones
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Angiejnz
in
PMRGCAuk
6 years ago
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
kay7954
in
PMRGCAuk
6 years ago
Eejit!!!!
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Hidden
in
PMRGCAuk
6 years ago
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