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brain spread
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
Joanie12
in
My Ovacome
1 year ago
UK and abiraterone availability
This may be old news but I just heard that Abi is finally off patent in the UK. This should mean that the NHS will now prescribe for HSPCa. (Currently restricted for this group unless you started it in Covid as alternative when chemo not possible). If it still can't be prescribed via NHS , it will now
This may be old news but I just heard that Abi is finally off patent in the UK. This should mean that the NHS will now prescribe for HSPCa. (Currently restricted for this group unless you started it in Covid as alternative when chemo not possible). If it still can't be prescribed via NHS , it will now
Proflac
in
Advanced Prostate Cancer
1 year ago
lung cancer , dysplasia, and PNI
I had surgery to remove right upper lobe for greater than 3 cm squamous cell lung cancer. Margins were free of invasive cancer but I have high grade dysplasia areas in bronchial margins and also have PNI which is peri neural invasion. They discussed you chemo for this. Anyone else’s have these things
I had surgery to remove right upper lobe for greater than 3 cm squamous cell lung cancer. Margins were free of invasive cancer but I have high grade dysplasia areas in bronchial margins and also have PNI which is peri neural invasion. They discussed you chemo for this. Anyone else’s have these things
Susie215
in
Lung Cancer Support
1 year ago
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Breast tenderness and pain
I have swollen breasts (gynecomastia) and now I am having pains at my left breast. In December 2016, I was diagnosed of prostate Cancer. From the onset, I did chemo by Taxo drug for 6 cycles. At the same time I was still taking Xtandi 120 mg every day. My PSA dropped from 117 to 5. The side effects
I have swollen breasts (gynecomastia) and now I am having pains at my left breast. In December 2016, I was diagnosed of prostate Cancer. From the onset, I did chemo by Taxo drug for 6 cycles. At the same time I was still taking Xtandi 120 mg every day. My PSA dropped from 117 to 5. The side effects
kcareer
in
Advanced Prostate Cancer
1 year ago
Confused clear cell concerns
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
Hidden
in
My Ovacome
1 year ago
Scan results
Long story short, CA125 numbers went up to 446 then came down to 361, had scan last week. Got results today, everything good, doc Happy, Tamoxifen doing it's job keeping it in check. I'm a happy relieved bunny 👯 who's going to plan a holiday to 🎉 celebrate. To everyone out there who is going through
Long story short, CA125 numbers went up to 446 then came down to 361, had scan last week. Got results today, everything good, doc Happy, Tamoxifen doing it's job keeping it in check. I'm a happy relieved bunny 👯 who's going to plan a holiday to 🎉 celebrate. To everyone out there who is going through
A1r1t
in
My Ovacome
1 year ago
lung cancer & phelgm
I was diagnosed with stage 3 in feb. 2021 and proceeded with both chemo and radiation. Wound up with 3 bouts of pneumonitis that was pretty bad. Come late 2022 a scan revealed the cancer was back and growing. I started a tougher chemo regiment with immunotherapy and completed 8 of the 12 treatments
I was diagnosed with stage 3 in feb. 2021 and proceeded with both chemo and radiation. Wound up with 3 bouts of pneumonitis that was pretty bad. Come late 2022 a scan revealed the cancer was back and growing. I started a tougher chemo regiment with immunotherapy and completed 8 of the 12 treatments
Barbara36
in
Lung Cancer Support
1 year ago
New RNA drug may be key to curing ovarian cancer
[i]TAU research team lead Prof. Dan Peer. Photo courtesy of Tel Aviv University[/i] Scientists achieve 80% survival rate in animals using a protein as an alternative to traditional treatments. In what could be a scientific breakthrough, Tel Aviv University researchers recently utilized cytoskeleton-associated
[i]TAU research team lead Prof. Dan Peer. Photo courtesy of Tel Aviv University[/i] Scientists achieve 80% survival rate in animals using a protein as an alternative to traditional treatments. In what could be a scientific breakthrough, Tel Aviv University researchers recently utilized cytoskeleton-associated
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Suggestions Please
Hi,I have clear cell OC can anyone advice best consultant in the UK who specialises in this field. My chemo not responding. TIA X
Hi,I have clear cell OC can anyone advice best consultant in the UK who specialises in this field. My chemo not responding. TIA X
Beoony
in
My Ovacome
1 year ago
PSA stabilizing to 99.30 (from 3103), should we seek additional treatment or wait?
Hello everyone and thank you for this wonderful community for giving me so many resources. My dad was initially diagnosed at a very high PSA of 3103 and he is doing triplet therapy, he is about to take his fifth docetaxel chemo dose and it seems to have stabilized to 99.30. He has bone metastases since
Hello everyone and thank you for this wonderful community for giving me so many resources. My dad was initially diagnosed at a very high PSA of 3103 and he is doing triplet therapy, he is about to take his fifth docetaxel chemo dose and it seems to have stabilized to 99.30. He has bone metastases since
Sissel25
in
Advanced Prostate Cancer
1 year ago
Had my 2nd appt with my Haematologist today
As an update from my earlier post, we are now back in Australia after 3 months in South Africa. This whole platelets thing raised its head about a month before we left. I saw the haematologist 2 days before we left in late Jan. She put me on Aspirin 100mg daily and phoned me 3 weeks later in SA with
As an update from my earlier post, we are now back in Australia after 3 months in South Africa. This whole platelets thing raised its head about a month before we left. I saw the haematologist 2 days before we left in late Jan. She put me on Aspirin 100mg daily and phoned me 3 weeks later in SA with
Pachena
in
MPN Voice
1 year ago
Chemo mucositis?
After chemo session #5 I thought I had bronchitis; coughing up very thick mucus from down deep in the chest, but it cleared up in about 10 days, and is back again after chemo #6, so I'm guessing it's chemo induced mucositis. Anyone have tips for dealing with this beyond salt/baking-soda mouth washes
After chemo session #5 I thought I had bronchitis; coughing up very thick mucus from down deep in the chest, but it cleared up in about 10 days, and is back again after chemo #6, so I'm guessing it's chemo induced mucositis. Anyone have tips for dealing with this beyond salt/baking-soda mouth washes
Gl448
in
Advanced Prostate Cancer
1 year ago
Enzalutamide plus leuprolide reduces risk of metastasis in nonmetastatic HSPC men-from Urology Times, 29 Apr 2023
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Balsam01
in
Advanced Prostate Cancer
1 year ago
Hydroxy & blurry vision
PV Jak2 positive d/x in 2004. Regular venous sections for approx 7 yrs then veins did a Houdini act so was put on Hydroxy and we’ve been daily companions ever since. I experience extreme fatigue….asleep by 9pm and awake at 7am so 10hrs is my norm….I’m really not good fun at parties. Latest stuff going
PV Jak2 positive d/x in 2004. Regular venous sections for approx 7 yrs then veins did a Houdini act so was put on Hydroxy and we’ve been daily companions ever since. I experience extreme fatigue….asleep by 9pm and awake at 7am so 10hrs is my norm….I’m really not good fun at parties. Latest stuff going
Polly-PV
in
MPN Voice
1 year ago
HER2 and ER positive breast cancer
I tripped over in the garden and fractured 2 ribs; while in hospital scans showed lesions; was referred to breast clinic and the cancer was found. I was originally scheduled for a lumpectomy but they found the HER2 & ER positive, so now chemo and targeted therapy followed by surgery and radiotherapy.
I tripped over in the garden and fractured 2 ribs; while in hospital scans showed lesions; was referred to breast clinic and the cancer was found. I was originally scheduled for a lumpectomy but they found the HER2 & ER positive, so now chemo and targeted therapy followed by surgery and radiotherapy.
lyndab52
in
My Breast Cancer Community
1 year ago
Re: Taxotere chemo after post surgery IMRT
Has anyone received Taxotere chemotherapy after post surgery radiation? My son age 50 was diagnosed last summer with PC tertiary 5 pattern. First post surgery PSA was 20. PSMA pet showed some invasion to pelvic lymph nodes no where else. Put on Lupron , generic Zytiga and prednisone and given 6 weeks
Has anyone received Taxotere chemotherapy after post surgery radiation? My son age 50 was diagnosed last summer with PC tertiary 5 pattern. First post surgery PSA was 20. PSMA pet showed some invasion to pelvic lymph nodes no where else. Put on Lupron , generic Zytiga and prednisone and given 6 weeks
Cactus297
in
Advanced Prostate Cancer
1 year ago
First post!
Hello. Not posted before and feeling nervous! I was diagnosed in 10/22 with HGSOC stage 3 after only a couple of weeks of symptoms. I am being cared for by an amazing team and after finishing 6 rounds of chemotherapy I had surgery on 24/4/23. Complete faith in my surgeon. At surgery they could not remove
Hello. Not posted before and feeling nervous! I was diagnosed in 10/22 with HGSOC stage 3 after only a couple of weeks of symptoms. I am being cared for by an amazing team and after finishing 6 rounds of chemotherapy I had surgery on 24/4/23. Complete faith in my surgeon. At surgery they could not remove
Kamloops
in
My Ovacome
1 year ago
radiation fibrosis and lymphedema
Hello! On January 27th I completed 4 weeks of whole breast radiation plus 4 weeks of a radiation boost to the site of my most recent lumpectomy. Now three months later I have developed pockets of lymphedema under my arm, and also fibrosis (scar tissue) from the radiation. It is very painful. I am seeing
Hello! On January 27th I completed 4 weeks of whole breast radiation plus 4 weeks of a radiation boost to the site of my most recent lumpectomy. Now three months later I have developed pockets of lymphedema under my arm, and also fibrosis (scar tissue) from the radiation. It is very painful. I am seeing
Clematis1017
in
SHARE Breast Cancer Support
1 year ago
Pain at base of abdomen with stage 4 HGSOC.
I’ve had HGSOC stage 4 since April 2021. I was never offered surgery and I’ve just begun 6/8 sessions of Caelyx as third line chemo. I have a pain/ache at the base of my abdomen, it comes when I sit down and stand up and I also have it at night when I wake up to use the toilet. It’s alleviated slightly
I’ve had HGSOC stage 4 since April 2021. I was never offered surgery and I’ve just begun 6/8 sessions of Caelyx as third line chemo. I have a pain/ache at the base of my abdomen, it comes when I sit down and stand up and I also have it at night when I wake up to use the toilet. It’s alleviated slightly
Guilane
in
My Ovacome
1 year ago
Help with blood results please
I have not posted for a long time as I gave been battling breast cancer .treatments are over and I am looking at vitamins etc..recent blood test is horrifying but been told all within range..pure piffle!! I KNOW THEY ARE NOT..as follows:- TSH...0.45 ( 0.30-4.50) FT3...4.0. (3.1-6.8) FT4.. 19.8.
I have not posted for a long time as I gave been battling breast cancer .treatments are over and I am looking at vitamins etc..recent blood test is horrifying but been told all within range..pure piffle!! I KNOW THEY ARE NOT..as follows:- TSH...0.45 ( 0.30-4.50) FT3...4.0. (3.1-6.8) FT4.. 19.8.
Hurtlocker
in
Thyroid UK
1 year ago
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