PV Jak2 positive d/x in 2004. Regular venous sections for approx 7 yrs then veins did a Houdini act so was put on Hydroxy and we’ve been daily companions ever since.
I experience extreme fatigue….asleep by 9pm and awake at 7am so 10hrs is my norm….I’m really not good fun at parties. Latest stuff going on: seems I have a couple of hitchhikers in the guise of cysts on my liver and my right kidney but deemed non suspicious and best left alone. But the one that’s really getting on my nerves is the blurry vision. Not all the time….I can see fine to type this but it comes and goes throughout the day. Had glasses sorted but still happening. I’m aware that a side effect of regular chemo is blurry vision. Anyone else experiencing same and is it the PV or the Hydroxy? Tia x