As an update from my earlier post, we are now back in Australia after 3 months in South Africa.
This whole platelets thing raised its head about a month before we left.
I saw the haematologist 2 days before we left in late Jan. She put me on Aspirin 100mg daily and phoned me 3 weeks later in SA with the mutation results that I had the JAK2 mutation.
I had blood taken the day after we got home and my platelets haven’t really gone up during our time abroad. I will get my BMB done under twilight sedation in a week.
I’ll then see the specialist in a month to see what information it gives.
I told her today I was hesitant to take a chemo drug tho she explained it pretty well to my Husband and I. She said it is not really like main stream chemotherapy and the small risk is worth it to give me a good quality hopefully long life free from a debilitating stroke etc.
After reading up information while we were away, I must confess it was hard to deviate my mind from taking chemo drugs and what may be ahead. It is a rare condition, tho amazingly my SIL has ET too tho she has no mutation.
My SIL told me how she was told to wear disposable gloves each time she took the pills (she said she just tips hers into the lid and then into her mouth, that way she doesn’t touch them) and I read the article about taking care with interaction with others. Tho the information the doc gave me today on the drug here didn’t make such an issue of handling the pills or bodily fluids.
So my husband and I are feeling more at ease tonight 😊
#Hydrea