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Stem cell replacement
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Grizly
in
MPN Voice
4 years ago
The world's first successful artificial cornea transplant restored the vision of a man who had been blind for 10 years
https://www.businessinsider.com/world-first-artificial-corneal-transplant-78-year-old-has-recovered-sight-israel?amp&utmSource=twitter&utmContent=referral&utmTerm=topbar&referrer=twitter&__twitter_impression=true
https://www.businessinsider.com/world-first-artificial-corneal-transplant-78-year-old-has-recovered-sight-israel?amp&utmSource=twitter&utmContent=referral&utmTerm=topbar&referrer=twitter&__twitter_impression=true
Farooqji
in
Cure Parkinson's
4 years ago
Has anyone received the Covid-19 Vaccine while taking Immunotherapy?
Fellow cancer patients, I have been very concerned about how my immunotherapy (Opdivo/nivolumab) might affect my body’s response to the Covid-19 vaccine. During my past year on this treatment, my immune system has “overresponded” on several occasions as can be a side-effect of the treatment. Although
Fellow cancer patients, I have been very concerned about how my immunotherapy (Opdivo/nivolumab) might affect my body’s response to the Covid-19 vaccine. During my past year on this treatment, my immune system has “overresponded” on several occasions as can be a side-effect of the treatment. Although
Jenniferroseolson
in
Lung Cancer Support
4 years ago
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I keep hope alive
I was diagnosed as lung adenocarcinoma stage 4 with EGFR in september 2020 and keep on taking erlotinib. I am ok so far. Thanks god.
I was diagnosed as lung adenocarcinoma stage 4 with EGFR in september 2020 and keep on taking erlotinib. I am ok so far. Thanks god.
gatonegro
in
The Roy Castle Lung Cancer Foundation
4 years ago
COVID 19 POSITIVE
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
Tahmed251
in
Kidney Transplant
4 years ago
Finding Support
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
WhQQpie
in
Kidney Transplant
4 years ago
Is there a difference between Collapsing Glomerulopathy and C3?
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
Nobody Wants Cancer. But a ‘Big C’ Label Has Surprising Upsides.
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
Manouche
in
MPN Voice
4 years ago
17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
Would you like to have a friendly chat with a UCL researcher about your experiences of being diagnosed with lung cancer?
[i][Happy New Year everyone. We're still recruiting to this study in case there are any new members or people who still wanted to take part] [/i] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and
[i][Happy New Year everyone. We're still recruiting to this study in case there are any new members or people who still wanted to take part] [/i] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and
georgiabellblack
in
The Roy Castle Lung Cancer Foundation
4 years ago
Cavitating lung lesion - shadow/mass
3.7cm cavitating lung lesion mid lung, this is what is written on my husbands notes after he had a chest X-ray for something else last week, he has no symptoms of a chest problem but he is a smoker whose dad died of lung cancer, he now thinks he’s about to die too as he’s constantly on DR Google. Please
3.7cm cavitating lung lesion mid lung, this is what is written on my husbands notes after he had a chest X-ray for something else last week, he has no symptoms of a chest problem but he is a smoker whose dad died of lung cancer, he now thinks he’s about to die too as he’s constantly on DR Google. Please
Lolorose
in
Lung Conditions Community Forum
4 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
4 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
4 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
4 years ago
Creatine is 1.51 really worried had transplant in 2001 its been 20 years
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
jennifer24
in
Kidney Transplant
4 years ago
Sleeping kidney after transplant
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Kwatts87
in
Kidney Transplant
4 years ago
Covid vaccine post liver transplant
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
MarthaRock
in
British Liver Trust
4 years ago
Kidney Transplant Recipient
Hi my name is Rachel I had a kidney transplant in December 2019
Hi my name is Rachel I had a kidney transplant in December 2019
Beachvibe
in
Kidney Disease
4 years ago
Needing a little short-term assistance while recovering
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
Southernfriends
in
Kidney Transplant
4 years ago
Liver Transplant
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
Braveheart65
in
British Liver Trust
4 years ago
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