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Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Sculpting radiation beam spares lung cancer patients from severe, disabling complication.
For many patients with localized lung cancer (non-small-cell lung carcinoma and small cell lung carcinoma), high-dose radiation with concurrent chemotherapy is a potential cure. Yet this treatment can cause severe, acute inflammation of the esophagus (esophagitis) in about one in five patients, requiring
For many patients with localized lung cancer (non-small-cell lung carcinoma and small cell lung carcinoma), high-dose radiation with concurrent chemotherapy is a potential cure. Yet this treatment can cause severe, acute inflammation of the esophagus (esophagitis) in about one in five patients, requiring
2greys
in
Lung Conditions Community Forum
3 years ago
John Hopkins Medicine organ transplant/covid vaccine study results in mid March2021:few if any antibodies made
Curious if your transplant clinic or nephrologist contacted you about getting the covid vaccine. My spouse was told to get the Pfizer if he could get his hands on it where we live and he did and had both shots without problems. Mid March 2021 a study from John Hopkins medicine came out showing volunteers
Curious if your transplant clinic or nephrologist contacted you about getting the covid vaccine. My spouse was told to get the Pfizer if he could get his hands on it where we live and he did and had both shots without problems. Mid March 2021 a study from John Hopkins medicine came out showing volunteers
Gardner-NY
in
Kidney Transplant
3 years ago
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scared appreciate any help
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Denied Transplant due to Calcification. Need help.
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
Helpingfriend
in
Kidney Transplant
3 years ago
Anxiety and Depression - cont
Just to continue on the subject of Anxiety and Depression that I posted up earlier. I thought I’d add this snippet of news about a forthcoming online course from the people at “FutureLearn”. Like others on here, I too completed the two liver subject courses run on “FutureLearn” by the University of
Just to continue on the subject of Anxiety and Depression that I posted up earlier. I thought I’d add this snippet of news about a forthcoming online course from the people at “FutureLearn”. Like others on here, I too completed the two liver subject courses run on “FutureLearn” by the University of
Richard-Allen
in
British Liver Trust
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
67Red
in
MPN Voice
3 years ago
Scientists identify protein that could serve as a therapeutic target in lung cancer.
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
2greys
in
Lung Conditions Community Forum
3 years ago
Weigh-in Saturday for me
Well, did my weekly weigh-in today have yet to start my Med diet or quitting smoking and getting rid of sugar out of my diet. I will begin officially on 1 May as of so far 3 hours up and no smoking (using Chantix). Bout a ton of seafood but that which is approved by a Mediterranean diet, trying my best
Well, did my weekly weigh-in today have yet to start my Med diet or quitting smoking and getting rid of sugar out of my diet. I will begin officially on 1 May as of so far 3 hours up and no smoking (using Chantix). Bout a ton of seafood but that which is approved by a Mediterranean diet, trying my best
utep99
in
Weight Loss Support
3 years ago
Keytruda and Guillain Barre Syndrome
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
Ay1e5bury
in
Lung Cancer Support
3 years ago
Immunotherapy alone extended life for metastatic lung cancer patients with KRAS mutation.
Real-word evidence is suggesting, for the first time, the most beneficial treatment courses that could help extend the lives of patients with metastatic non-small cell lung cancer, according to research from the Abramson Cancer Center at the University of Pennsylvania. In a new study published online
Real-word evidence is suggesting, for the first time, the most beneficial treatment courses that could help extend the lives of patients with metastatic non-small cell lung cancer, according to research from the Abramson Cancer Center at the University of Pennsylvania. In a new study published online
2greys
in
Lung Conditions Community Forum
3 years ago
Researchers Identify Potential Targets for Novel Treatments for Lung Cancer.
Lung cancer is the most common cause of cancer deaths, accounting for about a third of all tumor-related deaths. Adenocarcinomas, a non-small cell lung cancer (NSCLC), account for about 40 percent of cancer diagnoses, but few treatments are available for the disease. A team of investigators led by Elena
Lung cancer is the most common cause of cancer deaths, accounting for about a third of all tumor-related deaths. Adenocarcinomas, a non-small cell lung cancer (NSCLC), account for about 40 percent of cancer diagnoses, but few treatments are available for the disease. A team of investigators led by Elena
2greys
in
Lung Conditions Community Forum
3 years ago
I’m here to help and support
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
NKFcommunity
in
Finding a Living Donor: From Home
3 years ago
Good news for those suffering from heart failure, you CAN recover, I DID, thanks God.
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
hf54
in
British Heart Foundation
3 years ago
Liver + Kidney Transplant + Nephrectomy is Terrifying
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
BeachLove
in
Kidney Transplant
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia Support
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
THINING SKIN AFTER KIDNEY TRANSPLANT
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
Norken
in
Kidney Transplant
3 years ago
Level of chromosomal abnormality in lung cancer may predict immunotherapy response.
Patients with non-small cell lung cancer (NSCLC) whose cancer cells have low levels of aneuploidy – an abnormal number of chromosomes – tend to respond better to immune checkpoint inhibitor drugs than patients with higher levels, Dana-Farber Cancer Institute researchers will report at the virtual AACR
Patients with non-small cell lung cancer (NSCLC) whose cancer cells have low levels of aneuploidy – an abnormal number of chromosomes – tend to respond better to immune checkpoint inhibitor drugs than patients with higher levels, Dana-Farber Cancer Institute researchers will report at the virtual AACR
2greys
in
Lung Conditions Community Forum
3 years ago
Lung Cancer Livingroom. Where I found support and info early in my diagnosis.
In the scary, early days of a lung cancer diagnosis finding hope is difficult. Learning the language around lung cancer is overwhelming. Through the Lung Cancer Living Room I learned the stories of other patients and was educated by some of the best oncologists and researchers. This is the schedule
In the scary, early days of a lung cancer diagnosis finding hope is difficult. Learning the language around lung cancer is overwhelming. Through the Lung Cancer Living Room I learned the stories of other patients and was educated by some of the best oncologists and researchers. This is the schedule
Denzie
Volunteer
in
Lung Cancer Support
3 years ago
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