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I was diagnosed with bilateral toxic nodules causing hyperthyroidism in Sept 22. I responded well to treatment and now take 5mg Carbimazole every other day. My endo is now pushing for definitive treatment. RAI is not an option for me and stopping meds clearly won’t work. Removing an otherwise healthy
I was diagnosed with bilateral toxic nodules causing hyperthyroidism in Sept 22. I responded well to treatment and now take 5mg Carbimazole every other day. My endo is now pushing for definitive treatment. RAI is not an option for me and stopping meds clearly won’t work. Removing an otherwise healthy
Platypus8
in
Thyroid UK
3 months ago
Opioids
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
RLSdaily
in
Restless Legs Syndrome
4 months ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
4 months ago
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OH sudden increase in TSH 14 years after Radioactive iodine treatment
Hi,OH (65) has been feeling really fatigued the last few months, also really feeling the cold. Treated with radioactive iodine 14 years ago and been on 100mg of levothyroxine ever since. He had a prostatectomy last June and we had put the tiredness down to that. A recent blood test has put his TSH
Hi,OH (65) has been feeling really fatigued the last few months, also really feeling the cold. Treated with radioactive iodine 14 years ago and been on 100mg of levothyroxine ever since. He had a prostatectomy last June and we had put the tiredness down to that. A recent blood test has put his TSH
Vickyswift
in
Thyroid UK
4 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Stress - I ignored the obvious ...
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
Predderman2020
in
PMRGCAuk
4 months ago
Graves disease and Pregnancy
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Candice197
in
Thyroid UK
4 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
4 months ago
Post Thyroidectomy and a confused GP
TSH 8.19 mIU/L (0.570 - 3.600) 251.5% Free T4 (fT4) 12.4 pmol/L (≤ 14) My results are as above , had a call from my GP who doesn’t understand my test results and is referring me to an endo. I’m post RAI (2006) post thyroidectomy (March 2024) on 125 micrograms Levo daily. Pre thyroidectomy I was
TSH 8.19 mIU/L (0.570 - 3.600) 251.5% Free T4 (fT4) 12.4 pmol/L (≤ 14) My results are as above , had a call from my GP who doesn’t understand my test results and is referring me to an endo. I’m post RAI (2006) post thyroidectomy (March 2024) on 125 micrograms Levo daily. Pre thyroidectomy I was
PittyKitty
in
Thyroid UK
4 months ago
Urgently seeking pain management tips
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a couple of separate posts, so this does not become convoluted, but my most immediate need is finding some resolution for the increasing pain I am
13plus
in
SHARE Metastatic Breast Cancer
4 months ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
4 months ago
Problems with Teva?
Hi I am new on here. Never done this before. I have graves disease which was treated with radioactive iodine in 2013. Since then I have been taking Accord Levothyroxine with no problems. Two months ago the pharmacy gave me Teva I didn't think anything of it. Since then I have gradually become very ill
Hi I am new on here. Never done this before. I have graves disease which was treated with radioactive iodine in 2013. Since then I have been taking Accord Levothyroxine with no problems. Two months ago the pharmacy gave me Teva I didn't think anything of it. Since then I have gradually become very ill
Timmyroo
in
Thyroid UK
4 months ago
Help please
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
Liseann
in
Endometriosis UK
5 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
4 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
4 months ago
help with gp
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
hi everyone. I was diagnosed with fibromyalgia a couple of years ago and initially just told to take paracetamol and pace myself by my gp. Early 2023 I saw my gp as my pain was so bad I was off work. I wasn’t sleeping and was prescribed amitriptalyne 10-20 mg each night and my gp made a referral to the
NannaMillie21
in
Fibromyalgia Action UK
5 months ago
A study supporting long term AntiThyroid Drug usage (useful for any patients feeling pushed into having RAI/ Thyroidectomy)
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
tattybogle
in
Thyroid UK
4 months ago
steroid injection for back pain with pain team?
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
Louiseelaine
in
Stanmore Young Spine Group
5 months ago
Tinnitus louder than usual
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
I had inflammation in my right ear with headache, doctor gave me Otomize, but the headache was still there, went back to the doctor told me to see a pharmacist, they gave me nurofen, didn’t help, went back to the doctor again, they gave me antibiotics and codeine, this seemed to make my headaches worse
Laineysim51
in
Tinnitus UK
5 months ago
RAI POST THYROID CANCER
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
ADouble
in
Thyroid UK
4 months ago
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