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EMG and NCT tests query
after over 2 years of waiting to be referred, i finally have an appt with neurophysology for EMG and NCT tests but they have booked the appt at 8.30 in the morning. thing is that the symptoms of awful burning/frozen sensation which iniatially were only in my right foot (started about 6 years ago at
after over 2 years of waiting to be referred, i finally have an appt with neurophysology for EMG and NCT tests but they have booked the appt at 8.30 in the morning. thing is that the symptoms of awful burning/frozen sensation which iniatially were only in my right foot (started about 6 years ago at
Crochet_fan
in
Neuropathy Support
5 months ago
starting dosage of levothyroxine. GP ignoring Endocrinologist recommendation
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
Kaatse
in
Thyroid UK
8 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
4 months ago
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constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
4 months ago
I'd like peoples experiences of gabapentin please
5 spinal fractures, a cyst on the lower spine and blood cancer. Hospital asked my GP to discuss stronger pain relief. He changed my pain patches to fentanyl 12 And also sent gabapentin 100 there was no patient information leaflet in the gabapentin, just a label on the box saying to take 1 the first day
5 spinal fractures, a cyst on the lower spine and blood cancer. Hospital asked my GP to discuss stronger pain relief. He changed my pain patches to fentanyl 12 And also sent gabapentin 100 there was no patient information leaflet in the gabapentin, just a label on the box saying to take 1 the first day
MCW22
in
Bone Health and Osteoporosis UK
5 months ago
Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
4 months ago
RAI thyroid hyperthyroidism relapse
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
BlueLike
in
Thyroid UK
5 months ago
Gastro oesophageal reflux
I’ve had RLS for decades, and have been taking codeine 30mg for a few years which I think helps - not sure if it’s just a placebo effect. However, I also have reflux for which I was taking Omeprazole 10mg on which I was symptom-free. Several months ago I discovered that Omeprazole worsens RLS, so I stopped
I’ve had RLS for decades, and have been taking codeine 30mg for a few years which I think helps - not sure if it’s just a placebo effect. However, I also have reflux for which I was taking Omeprazole 10mg on which I was symptom-free. Several months ago I discovered that Omeprazole worsens RLS, so I stopped
Embroiderer
in
Restless Legs Syndrome
5 months ago
Another trip to A&E
back in A&E last night.didn’t go by ambulance,my son took me. First they “forgot” to do my bloods so I waited 5 hours for my first results, I had morphine and I had some codeine with me. my ecg was fine and bloods came back ok. All the doctors and nurses were really nice and said a few times my Angina
back in A&E last night.didn’t go by ambulance,my son took me. First they “forgot” to do my bloods so I waited 5 hours for my first results, I had morphine and I had some codeine with me. my ecg was fine and bloods came back ok. All the doctors and nurses were really nice and said a few times my Angina
Jenzhearts
in
British Heart Foundation
5 months ago
Gabapentin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
Coeso
in
Restless Legs Syndrome
5 months ago
Graves and Carbimazole update
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
ElleBee99
in
Thyroid UK
5 months ago
Horrific mornings
Just a rant really in case anyone has similar experience. Every morning, without fail, is a nightmare. Regardless of the previous day and how I feel when I go to bed I wake with pain from nasty to severe to excruciating and need to expel the alien before I can think off getting out, by which time however
Just a rant really in case anyone has similar experience. Every morning, without fail, is a nightmare. Regardless of the previous day and how I feel when I go to bed I wake with pain from nasty to severe to excruciating and need to expel the alien before I can think off getting out, by which time however
XDjames
in
IBS Network
5 months ago
Thyroid Genetic Panel - Results
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
irishmary78
in
Thyroid UK
9 months ago
Vasospastic angina pain relief
Hi folks, Just wondering if anyone has been prescribed decent pain relief to take at home instead of having to call an ambulance? I’ve been admitted 5 times in the last 14 months with severe pain due to VSA which the GTN didn’t touch. Mine can last almost all day and go on for several days at a time
Hi folks, Just wondering if anyone has been prescribed decent pain relief to take at home instead of having to call an ambulance? I’ve been admitted 5 times in the last 14 months with severe pain due to VSA which the GTN didn’t touch. Mine can last almost all day and go on for several days at a time
Wildswimmer73
in
British Heart Foundation
5 months ago
is this neuropathy?
As explained in previous posts I have two spinal fractures from X-ray January. Pain still bad and osteoporosis nurse pressed me to get stronger painkillers. Last week GP gave me 30mg codeine, taking with paracetamol but only slightly improved things. Pain is unpredictable, suddenly excruciating, shooting
As explained in previous posts I have two spinal fractures from X-ray January. Pain still bad and osteoporosis nurse pressed me to get stronger painkillers. Last week GP gave me 30mg codeine, taking with paracetamol but only slightly improved things. Pain is unpredictable, suddenly excruciating, shooting
Japsquar
in
PMRGCAuk
5 months ago
t3 Monotherapy
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Jimjamio
in
Thyroid UK
5 months ago
cutaneous vassculitis
good morning everyone. I have had a very painful flare since April last year. My rheumy has started me on asathioprine 50mg again and 10mg prednisolone. It has presented with v painful ulcers on both my feet and ankles and neuropathy . Has anyone any tips re topical creams I use oilatum at present
good morning everyone. I have had a very painful flare since April last year. My rheumy has started me on asathioprine 50mg again and 10mg prednisolone. It has presented with v painful ulcers on both my feet and ankles and neuropathy . Has anyone any tips re topical creams I use oilatum at present
Lovsterlover
in
Vasculitis UK
5 months ago
Rheumatology second opinion appointment
Hello everyone, so my husband had his second opinion with another NHS rheumatologist yesterday (same hospital), and I'd really appreciate people's thoughts on some of the things he said, as follows: 1) The pain, stiffness, heat and swelling across my husband's knuckles and proximal joints (both hands
Hello everyone, so my husband had his second opinion with another NHS rheumatologist yesterday (same hospital), and I'd really appreciate people's thoughts on some of the things he said, as follows: 1) The pain, stiffness, heat and swelling across my husband's knuckles and proximal joints (both hands
RosyrosyD
in
NRAS
5 months ago
T3 Trial continued
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Rambling9
in
Thyroid UK
5 months ago
Is it ok to take painkillers with Prednisolone?
I have recently had probable PMR diagnosis and am on day 2 of week’s trial on 15mg prednisolone. Too early to see if it’s having effect but had partially sleepless 1st night and PMR symptoms worse than ever this morning plus slight headache (but that could be lack of sleep). Before GP confirmed my suspicions
I have recently had probable PMR diagnosis and am on day 2 of week’s trial on 15mg prednisolone. Too early to see if it’s having effect but had partially sleepless 1st night and PMR symptoms worse than ever this morning plus slight headache (but that could be lack of sleep). Before GP confirmed my suspicions
Preposterous
in
PMRGCAuk
5 months ago
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