have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although I exercise daily I struggle to loose weight .
my other bug bear is a nose that runs like a tap more so am .
think I read somewhere the coating they use in levothyroxine can cause runny nose.
last question would dearly love to try natural thyroxine but not sure if it’s safe to buy online . Anybody know where I can get it ??
looking forward to your replies
Annie
Written by
annie123
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I had RAI thyroid ablation for Graves back in 2005 and deeply regret this treatment - details on my Profile page - just press the icon alongside my name and this should take you to all I've ever written on this forum.
A fully functioning working thyroid would be supporting you on a daily basis with trace elements of T1. T2 and calcitonin + a measure of T3 at around 10 mcg + a measure of T4 at around 100 mcg - with T3 said to be around 4 times more powerful than T4:
The thyroid is a major gland responsible for full body synchronisation from your physical stamina through to your mental emotional, psychological and spiritual well being - your inner central heating system and your metabolism, and living without a thyroid post RAI thyroid ablation ' no walk in the park ' that mainstream medical would have you believe.
I was refused both T3 and NDT by the NHS in early 2018 and now self medicate Natural Desiccated Thyroid and am much improved - is this the treatment option you are thinking about taking ?
Natural Desiccated Thyroid contains all the same known hormones as that of the human thyroid gland and derived from pig thyroids, dried and ground down into tablets and referred to as grains.
The NHS prescribes both leading brands of desiccated thyroid extract - Armour and Efra but getting a new patient prescription on the NHS now very rare - though of course this was the original and very successful treatment for hypothyroidism for over 100 years, before Big Pharma launched it's synthetic T3 and T4 options on the back of NDT and went about claiming market share towards the end half of the last century.
Just for reference - in case you haven't seen the most recent research :-
Looking back at your blood test from some years ago it is very obvious that you had a conversion problem and running with a very low T3 :
I see you trialled T3 - did this help or didn't it suit you ?
I see you asked previously for details about obtaining NDT - did you follow through with this ?
No thyroid hormone works well until your core strength vitamins and minerals are up and maintained at optimal levels - so you might like to get your ferritin, folate, B12 and vitamin D in preparation for switching treatment options and we can advise where optimal needs to be as some NHS ranges are too wide to even be sensible
All things Graves Disease - elaine-moore.com - I only found Elaine's books and website around 10 years post RAI - but still found her research and suggestions on living with Graves of some help and quite why RAI thyroid ablation is still a first line treatment - and for some the only option - in what we perceive to be a health care setting - simply beyond me :
Just incase you're of a certain age, I had a constant runny nose, although it definitely started before I was diagnosed with Graves and had Rai. Dr's said Hayfeaver and rhinitis.. It certainly got worse the older I got. Then I started Hrt and it literally disappeared within a month and I've rarely had a runny nose since. Miracle cure! 😁
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Horrible burning wood smell in my nose
Constant all over body aches 
Nose bleeds 
Constant sore throat...
Ammonia smell in my nose.
