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CLL RELAPSE.. LATEST TREATMENTS AVAILABLE
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
theoptimistduo
in
CLL Support
2 years ago
Doctor says its dangerous to take carbimazol for long time and advise RAI considering its less harmful...
I just saw today my doctor and asked her why I can not continue my treatment with carbimazol(I feel good but just have big goiter) She insisted that taking carbimazol for life is not posible, that I will have the complications with heart because of it. Is it true? (I was taking 5mg ,now she wants
I just saw today my doctor and asked her why I can not continue my treatment with carbimazol(I feel good but just have big goiter) She insisted that taking carbimazol for life is not posible, that I will have the complications with heart because of it. Is it true? (I was taking 5mg ,now she wants
femme12000
in
Thyroid UK
2 years ago
MY COVID, HOSPITAL, LOW SODIUM, Vaccines
Dear all, I’m 57, ET. Was harmed by the Pfizer vaccine (veins and Vagus Nerve) and after a year, do not count as vaccinated. I was treated for these problem with bioresonance and the Quint system which finally gave me my brain and energy back. Covid hit my family: My husband 60 is vaccinated 3x. My
Dear all, I’m 57, ET. Was harmed by the Pfizer vaccine (veins and Vagus Nerve) and after a year, do not count as vaccinated. I was treated for these problem with bioresonance and the Quint system which finally gave me my brain and energy back. Covid hit my family: My husband 60 is vaccinated 3x. My
Anag
in
MPN Voice
2 years ago
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Cryo ablation report + 3weeks on (all OK!)
As promised here’s a follow up on my PVI cryoablation (for context leading up to this see my last post (AFib saved my life) Hopefully this helps balance out some of the not so good experiences that have been are more frequently reported PROCEDURE My Cryoablation was on 18th May undertaken by Dr
As promised here’s a follow up on my PVI cryoablation (for context leading up to this see my last post (AFib saved my life) Hopefully this helps balance out some of the not so good experiences that have been are more frequently reported PROCEDURE My Cryoablation was on 18th May undertaken by Dr
Towne
in
AF Association
2 years ago
Is it common to get chest pains with thyroid problems?
I saw a post today from someone who was having chest pain with their thyroid problem and was wondering if my pain could indicate I have the same. I have been in A&E today for the second time in 10 days with ongoing short, sharp pain on the left hand side of my chest with palpitations. Last week they
I saw a post today from someone who was having chest pain with their thyroid problem and was wondering if my pain could indicate I have the same. I have been in A&E today for the second time in 10 days with ongoing short, sharp pain on the left hand side of my chest with palpitations. Last week they
MrsSuzuki
in
Thyroid UK
2 years ago
Iodine as a potential endocrine disruptor-a role of oxidative stress
Am somewhat surprised by this substantial paper on iodine - deficiency and excess are both addressed. As well as protection from radioactive iodine. They claim: [i]Universal awareness that iodine is a potential EDC would make consumers more careful regarding their diet and what they supplement in tablets
Am somewhat surprised by this substantial paper on iodine - deficiency and excess are both addressed. As well as protection from radioactive iodine. They claim: [i]Universal awareness that iodine is a potential EDC would make consumers more careful regarding their diet and what they supplement in tablets
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Advice on the treatment
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
femme12000
in
Thyroid UK
2 years ago
Supplements
Am I still able to take my supplements containing iodine 150mcg and tyrosine 500 mg when now thyroid glandular?
Am I still able to take my supplements containing iodine 150mcg and tyrosine 500 mg when now thyroid glandular?
Zebedee28
in
Thyroid UK
2 years ago
Graves' Ophthalmopathy in the Setting of Primary Hypothyroidism
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Family planning treatment advice
I am planning on trying to get pregnant in the next year or so. I don't know if it's best to have Radioactive Iodine treatment before hand or stick with medication, taking in to consideration the risks associated with each treatment. My thyroid levels at the moment are stable on 5mg carbamizole. I have
I am planning on trying to get pregnant in the next year or so. I don't know if it's best to have Radioactive Iodine treatment before hand or stick with medication, taking in to consideration the risks associated with each treatment. My thyroid levels at the moment are stable on 5mg carbamizole. I have
TrashPanda31
in
Graves Disease Support
2 years ago
SOB relief
Hi, I'm new to this site, in my mid-60's with bronchiectasis and an FEV1 of around 40%. I'm just wondering if anyone has experience of being given something like a mild version of oramorph to relieve the discomfort of ongoing dyspnea, or at what stage that becomes possible ? At the moment I have to use
Hi, I'm new to this site, in my mid-60's with bronchiectasis and an FEV1 of around 40%. I'm just wondering if anyone has experience of being given something like a mild version of oramorph to relieve the discomfort of ongoing dyspnea, or at what stage that becomes possible ? At the moment I have to use
Maturin371
in
Lung Conditions Community Forum
2 years ago
Mirapexin
I'm embarrassed to say but I'm back on mirapexin after months of coming off it. I know it's wrong but I'm feeling human again. I know I will augment but I hope that maybe the new DA will be ready soon. I took 0.09mgs for 7days plus 100mgs pregabalin. Ive slept all night like a long. No Kratom, extra
I'm embarrassed to say but I'm back on mirapexin after months of coming off it. I know it's wrong but I'm feeling human again. I know I will augment but I hope that maybe the new DA will be ready soon. I took 0.09mgs for 7days plus 100mgs pregabalin. Ive slept all night like a long. No Kratom, extra
Memmy
in
Restless Legs Syndrome
2 years ago
Hyperthyroid and TED - Is Thyroidectomy the only answer?
Hi All, I am in US and I was diagnosed with Graves back in Dec of 2017. I have been on Methimazole since then and my dose needs to be adjusted regularly as my thyroid levels keeps fluctuating. I went on quite a low dose as low as 2.5 mg from 30 mg back in 2021 and looked like I might get into remission
Hi All, I am in US and I was diagnosed with Graves back in Dec of 2017. I have been on Methimazole since then and my dose needs to be adjusted regularly as my thyroid levels keeps fluctuating. I went on quite a low dose as low as 2.5 mg from 30 mg back in 2021 and looked like I might get into remission
Missxyz
in
Thyroid UK
2 years ago
Post-ropinerole aches?
Hi. I “was” an RLS sufferer. On ropinerole. Augmented. So after seeing loads of chats about DAs, I’ve come off it - I followed my doctor’s prescribed steps, gradually reducing to nothing about a month ago. I also concentrated on upping my ferritin from the last measured value of 81. I was on codeine
Hi. I “was” an RLS sufferer. On ropinerole. Augmented. So after seeing loads of chats about DAs, I’ve come off it - I followed my doctor’s prescribed steps, gradually reducing to nothing about a month ago. I also concentrated on upping my ferritin from the last measured value of 81. I was on codeine
RiverDanceLegs
in
Restless Legs Syndrome
2 years ago
Reducing dose
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
thyroidnodules
in
Thyroid UK
2 years ago
Personalised Vitamin Plans (radio)
Just a quick alert to the devious vitamin sales people! I'm sure many here are all too well aware of schemes like these. However, the end result seems to suggest just taking a multivitamin. And we know that there is a strong (and evidenced) view that multivitamins are not ideal. Issues like combinations
Just a quick alert to the devious vitamin sales people! I'm sure many here are all too well aware of schemes like these. However, the end result seems to suggest just taking a multivitamin. And we know that there is a strong (and evidenced) view that multivitamins are not ideal. Issues like combinations
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Long term Carbimazole
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
Boaby
in
Thyroid UK
2 years ago
Weight loss
Hi everybody- hope you’ve all had a good weekend. We had the appointment with my brothers oncologist- he’s a lovely man. We have a lot of drugs to combat the cough - mainly steroids & a codeine linctus. Fingers crossed it works. Unfortunately his cancer is showing extensive spread to his right lung but
Hi everybody- hope you’ve all had a good weekend. We had the appointment with my brothers oncologist- he’s a lovely man. We have a lot of drugs to combat the cough - mainly steroids & a codeine linctus. Fingers crossed it works. Unfortunately his cancer is showing extensive spread to his right lung but
Brianderrick12
in
The Roy Castle Lung Cancer Foundation
2 years ago
Can overdoing it cause a flair
I've been doing fine on 3mg for a while. I'm a gardener and was hedge cutting a low but wide hedge last Tuesday. Bending over, arms outstretched welding a heavy petrol hedge cutter. Bad idea on reflection. That evening I had bad back ache and since then it's got worse rather than better. I can literally
I've been doing fine on 3mg for a while. I'm a gardener and was hedge cutting a low but wide hedge last Tuesday. Bending over, arms outstretched welding a heavy petrol hedge cutter. Bad idea on reflection. That evening I had bad back ache and since then it's got worse rather than better. I can literally
Jontie
in
PMRGCAuk
2 years ago
What pain killers can I take when on HU?
I am experiencing terrible pain in my left hip/ thigh and leg and slept for only one hour last night. I had an X-ray and blood tests on Wednesday and await the X-ray results. Nothing was broken luckily. But meanwhile I am taking paracetamol every four hours which really doesn’t do much. As I’m on Hydroxycarbamide
I am experiencing terrible pain in my left hip/ thigh and leg and slept for only one hour last night. I had an X-ray and blood tests on Wednesday and await the X-ray results. Nothing was broken luckily. But meanwhile I am taking paracetamol every four hours which really doesn’t do much. As I’m on Hydroxycarbamide
Michali45
in
MPN Voice
2 years ago
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