Post-ropinerole aches?

[RiverDanceLegs]

Hi. I “was” an RLS sufferer. On ropinerole. Augmented. So after seeing loads of chats about DAs, I’ve come off it - I followed my doctor’s prescribed steps, gradually reducing to nothing about a month ago. I also concentrated on upping my ferritin from the last measured value of 81.

I was on codeine for a bit… but off that too, now.

Symptoms now? Almost none!!! (Much to do with reading posts on this group - thanks!) I think it’s been the ferritin that worked for me.

But one thing I’m finding, and don’t know if it is connected, I now get much more muscle/nerve/joint pain - could be arthritic - in legs, hands and shoulders. Anybody got any ideas?

[Madlegs1]

Possibly! Tends to come with the age.

Michael Flatley is probably crippled!!☠️

[DicCarlson]

I too have knee arthritis and it flared way up with my Covid vaccine (then receded) and more recently with a probable tick bite. I think many other conditions enhance the arthritis inflammation.

[Hidden]

I love your "handle"! I think that we with RLS have an enhanced nerve sensibility. A doctor once said I might have fibromyalgia or a nerve abnormality that coordinates with brain perception. For myself, I don't think this is a heightened sensitivity to pain, but more of a nerve awareness of what is going on in all parts of my body. Hard to explain, but there is a difference between discomfort and perception. I'm sure you know what I mean.

[RiverDanceLegs in reply to Hidden]

Thanks - that makes sense. I think I’m just surprised that it seems to be more noticeable since stopping ropinerole.

The name came because my wife kept on asking, with all that leg twitching, if I was dreaming of being Michael Flatley all the time.

River Dance