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Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
7 days ago
Help with diet
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
Breakfastbabe
in
British Liver Trust
7 days ago
nose bleed
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
Daytym
in
British Liver Trust
7 days ago
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Blood test results
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hidden
in
British Liver Trust
8 days ago
liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
rogertb
in
British Liver Trust
8 days ago
Hope for confusion/brain fog
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
DonnaBoll
Administrator
in
PBC Foundation
9 days ago
Tuesday 'tips'
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
DonnaBoll
Administrator
in
PBC Foundation
9 days ago
interesting encounter
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
CeeCee101
in
PBC Foundation
10 days ago
stent
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Grannysmiff
in
British Liver Trust
10 days ago
Does changes in liver always mean cancer
Hi My partner has cirrhosis and a spot on the liver which is monitored every 6 months. Following an ultrasound, more spots have now been identified and is going for an MRI and blood tests soon. I am very worried and was wondering if anyone has had a similar situation and does this always result in a
Hi My partner has cirrhosis and a spot on the liver which is monitored every 6 months. Following an ultrasound, more spots have now been identified and is going for an MRI and blood tests soon. I am very worried and was wondering if anyone has had a similar situation and does this always result in a
RainbowLover
in
British Liver Trust
12 days ago
Fibroscan – is it too early to be jubilant?
I do now feel like a fraud being here 😔 and my apologies to anybody here who feels I’ve created a storm in a teacup for myself and that I should clear the cyber waves for genuine issues. But in fairness to myself my GPs have been expressing serious concerns to me, I feel suggesting that I’m bound to
I do now feel like a fraud being here 😔 and my apologies to anybody here who feels I’ve created a storm in a teacup for myself and that I should clear the cyber waves for genuine issues. But in fairness to myself my GPs have been expressing serious concerns to me, I feel suggesting that I’m bound to
Trotter2024
in
British Liver Trust
12 days ago
Severe cirrhosis, any hope?
My father is in hospital with severe cirrhosis. He has been drinking a litre of vodka a day for 2 years. It sounds silly but none of us knew about it. He never seemed drunk. We are beating ourselves up wishing we could have intervened sooner. We phoned his DR after finding the empty bottles and he was
My father is in hospital with severe cirrhosis. He has been drinking a litre of vodka a day for 2 years. It sounds silly but none of us knew about it. He never seemed drunk. We are beating ourselves up wishing we could have intervened sooner. We phoned his DR after finding the empty bottles and he was
Puddles0
in
British Liver Trust
13 days ago
Billiry attresia
My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors said that they found mild to moderate fibrosis in his biopsy report . i wanted to know about mild to moderate fibrosis . anyone had this kind
My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors said that they found mild to moderate fibrosis in his biopsy report . i wanted to know about mild to moderate fibrosis . anyone had this kind
srajeshwari53
in
Children's Liver Disease Foundation
14 days ago
Introduction to our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
15 days ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
15 days ago
Wednesday's Word
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
DonnaBoll
Administrator
in
PBC Foundation
15 days ago
Milk thistle
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Hidden
in
British Liver Trust
16 days ago
Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
16 days ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
16 days ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
17 days ago
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