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Livedo reticularis
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PBC/AIH1 Positive
Just as I was wrapping my head around my April PBC diagnosis and taking Urso (which does seem to me improving my liver enzyme levels) a liver biopsy also confirmed that I am also positive for autoimmune hepatitis type 1 (AIH1). I know PBC and other autoimmune conditions tend to run in packs. Does anyone
Just as I was wrapping my head around my April PBC diagnosis and taking Urso (which does seem to me improving my liver enzyme levels) a liver biopsy also confirmed that I am also positive for autoimmune hepatitis type 1 (AIH1). I know PBC and other autoimmune conditions tend to run in packs. Does anyone
lovesoccer
in
PBC Foundation
2 years ago
End of Life Memories
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
2022minks
in
British Liver Trust
2 years ago
Diagnosing early cirrhosis / fibrosis / ALD
I apologise for the long post but I am finding myself in a really difficult position. I am 32 years old and have drank heavily over the past ten years, mostly binge drinking during weekends and holidays (4-5 weeks per year). Other than this I have been generally fit and healthy. In the past six months
I apologise for the long post but I am finding myself in a really difficult position. I am 32 years old and have drank heavily over the past ten years, mostly binge drinking during weekends and holidays (4-5 weeks per year). Other than this I have been generally fit and healthy. In the past six months
Hidden
in
British Liver Trust
2 years ago
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Increased aminoacids ... Could this be my gut issue
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
Waiting_for_godo
in
IBS Network
2 years ago
BLOODS & SCAN UPDATE
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
lonmallin50
in
British Liver Trust
2 years ago
Confusing fibroscan result
Hello all, just a quick update on my partner following his visit to the hepatologist for a check-up 7 months after his last visit. Back in February he had a fibroscan that gave him a score of 16kPa, which was F3 severe fibrosis. At the time he saw a different consultant, who put his original decompensated
Hello all, just a quick update on my partner following his visit to the hepatologist for a check-up 7 months after his last visit. Back in February he had a fibroscan that gave him a score of 16kPa, which was F3 severe fibrosis. At the time he saw a different consultant, who put his original decompensated
Bibbybob
in
British Liver Trust
2 years ago
Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
elevated liver tests but no diagnosis since 2004!!
hi everyone, Im 38 years old now and i have been having elevated liver enzymes since 2004 (22 years old). I have almost had all necessary tests done (biopsy twice, tons of blood tests for all sort of liver related diseases etc…) but nobady could name a proper diagnosis so far. Im recently on Ursoactive
hi everyone, Im 38 years old now and i have been having elevated liver enzymes since 2004 (22 years old). I have almost had all necessary tests done (biopsy twice, tons of blood tests for all sort of liver related diseases etc…) but nobady could name a proper diagnosis so far. Im recently on Ursoactive
Drummer1984
in
British Liver Trust
2 years ago
I don't know what to do :(
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
BluePumpkin
in
Thyroid UK
2 years ago
Liver cancer stage 4
Hello, I am hoping for some advice and support. My poor father was diagnosed with liver cancer in May. It is stage 4 and spread to both lungs a couple of months ago. I am hoping for some advice from people who may have, sadly, gone through this. He is extremely tired, with a very low appetite and
Hello, I am hoping for some advice and support. My poor father was diagnosed with liver cancer in May. It is stage 4 and spread to both lungs a couple of months ago. I am hoping for some advice from people who may have, sadly, gone through this. He is extremely tired, with a very low appetite and
Chadwickthecat
in
British Liver Trust
2 years ago
Which statin to take with Nubeqa/Darolutamide? Pitivastatin or a different statin?
I took someone's advice and called Bayer Corp today. What a waste of one hour. Minimum wage level 1 employee bumbling around trying to get me answers. I already read the entire product packet. It says that Crestor and Lipitor (and other statins) can accumulate and cause problems/side effects. Looks
I took someone's advice and called Bayer Corp today. What a waste of one hour. Minimum wage level 1 employee bumbling around trying to get me answers. I already read the entire product packet. It says that Crestor and Lipitor (and other statins) can accumulate and cause problems/side effects. Looks
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Silychristin, a Flavonolignan Derived From the Milk Thistle, Is a Potent Inhibitor of the Thyroid Hormone Transporter MCT8
We have seen many claims for Milk Thistle over the years. Often suggested for people with liver-related issues. But the only person I know who tried it felt unwell from taking it. So I have long been cautious. This paper identifies a potentially significant issue with a constituent of Milk Thistle
We have seen many claims for Milk Thistle over the years. Often suggested for people with liver-related issues. But the only person I know who tried it felt unwell from taking it. So I have long been cautious. This paper identifies a potentially significant issue with a constituent of Milk Thistle
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Recent deterioration
I have an autoimmune liver disease called Nodular Regenerative Hyperplasia. This is caused by a primary immune condition called Common Variable Immune Deficiency. I have deteriorated slowly over 10 years and the phrase “ advanced liver disease” was used for the first time in September. A few weeks
I have an autoimmune liver disease called Nodular Regenerative Hyperplasia. This is caused by a primary immune condition called Common Variable Immune Deficiency. I have deteriorated slowly over 10 years and the phrase “ advanced liver disease” was used for the first time in September. A few weeks
Devonviolet
in
British Liver Trust
2 years ago
Fibroscan referrals
My wife and I took advantage of a Fibroscan Roadshow this week. Mine was normal but wife has reading of 12.2 kPa and an 1QR 47. The clinician who took my wife’s reading had a great deal of difficulty in getting the right position to get a reading from her liver. It took over 10 minutes! The results
My wife and I took advantage of a Fibroscan Roadshow this week. Mine was normal but wife has reading of 12.2 kPa and an 1QR 47. The clinician who took my wife’s reading had a great deal of difficulty in getting the right position to get a reading from her liver. It took over 10 minutes! The results
Curtis60
in
British Liver Trust
2 years ago
Fibroscan vs CT scan for cirrhosis diagnostics
I will ask this question to my consultant but since I won't see him in the next 2 months, I'll go ahead and ask here in case anyone knows. As I understand, Fibroscan can correctly show the fibrosis reading of, let's say 6.5 kPa, but CT scan can still detect liver nodularity and scarring which corresponds
I will ask this question to my consultant but since I won't see him in the next 2 months, I'll go ahead and ask here in case anyone knows. As I understand, Fibroscan can correctly show the fibrosis reading of, let's say 6.5 kPa, but CT scan can still detect liver nodularity and scarring which corresponds
Margolia
in
British Liver Trust
2 years ago
Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good, but I can't find anything after 2021.
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good, but I can't find anything after 2021.
Badmouth
in
Cure Parkinson's
2 years ago
First Fibroscan
Hi guys,so I just had a face to face with my consultant(which I asked for),for a general catch up. He’s really pleased with everything,and at the end I said will I be having a Fibroscan at some point, with that he stood up and whipped out this big laptop,had me lay on the bed and he did it there and
Hi guys,so I just had a face to face with my consultant(which I asked for),for a general catch up. He’s really pleased with everything,and at the end I said will I be having a Fibroscan at some point, with that he stood up and whipped out this big laptop,had me lay on the bed and he did it there and
deanw41
in
British Liver Trust
2 years ago
Cirrhosis!
silly question but I was wondering if anyone ever was told that they have cirrhosis and one day it all got cleared? Is it possible for the liver to heal once it has cirrhosis and if anyone has the experience of this then please share the treatment or life style changes you may have adopted. Many thanks
silly question but I was wondering if anyone ever was told that they have cirrhosis and one day it all got cleared? Is it possible for the liver to heal once it has cirrhosis and if anyone has the experience of this then please share the treatment or life style changes you may have adopted. Many thanks
Hope1011
in
British Liver Trust
2 years ago
de compensated
i Had been diagnosed with liver cirrhosis in jan 2021 it was de compensated been off the drink now for 7 months now oedema gone he gone just got a slight tinge of yellow some days on and off still on lactulose and water tablets my bilirubin level is still quite high does all this mean my liver is now
i Had been diagnosed with liver cirrhosis in jan 2021 it was de compensated been off the drink now for 7 months now oedema gone he gone just got a slight tinge of yellow some days on and off still on lactulose and water tablets my bilirubin level is still quite high does all this mean my liver is now
lonmallin50
in
British Liver Trust
2 years ago
Update on hubby Nov 2022
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
mumof3girls
in
British Liver Trust
2 years ago
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