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Trouble transitioning to Gabapentin
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Scottmiles
in
Restless Legs Syndrome
1 year ago
Neurology appointment- after ICU stay
okay long one I’m sorry. so I was recently in hospital for 2 weeks following an increase in tonic clonic seizures, as they were usually at night but suddenly started happening during the day time(My seizures only started in May last year for reference and in 27)The day I got admitted I’d fallen during
okay long one I’m sorry. so I was recently in hospital for 2 weeks following an increase in tonic clonic seizures, as they were usually at night but suddenly started happening during the day time(My seizures only started in May last year for reference and in 27)The day I got admitted I’d fallen during
Beyouandonlyyou
in
Epilepsy Action
1 year ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
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insomnia in middle of night
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
Sandalsforever
in
Restless Legs Syndrome
1 year ago
Pain in hip, leg down to shins, ET Jak2 prefibrotic MF
Diagnosed earlier this year with ET Jak2 and Prefibrotic myelofibrosis. Have been in pain since 1st Nov - checked for DVT -nothing - Having MRI of hip on Friday. Am on 500mg Hydrea 5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic
Diagnosed earlier this year with ET Jak2 and Prefibrotic myelofibrosis. Have been in pain since 1st Nov - checked for DVT -nothing - Having MRI of hip on Friday. Am on 500mg Hydrea 5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic
JOL13
in
MPN Voice
5 months ago
Toothache and af
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Sunnyann
in
AF Association
1 year ago
hip replacement, nerve pain
hi just wondering if anyone else has nerve
pain
radiating down the
leg
on which they are going to have a hip replacement and if it improves after the op.
hi just wondering if anyone else has nerve
pain
radiating down the
leg
on which they are going to have a hip replacement and if it improves after the op.
daisyd
in
Arthritis Action
10 months ago
Advice following ultrasound!
My symptoms have been getting worse, now accompanied with left
leg
pain
, bowel symptoms, shooting pain and bleeding before periods. Does this sound familiar to anyone else?
My symptoms have been getting worse, now accompanied with left
leg
pain
, bowel symptoms, shooting pain and bleeding before periods. Does this sound familiar to anyone else?
otter13
in
Endometriosis UK
1 year ago
Update on my wife
Hello everyone, my wife (Jackie) was diagnosed with MSA after an initial diagnosis of PSP on 29th Jan 2023. Now the Neurologist is trying to say her condition is Perplexed and that Wilsons disease is a possibility. She's been to have her eyes tested at Vision Express and after a thorough (90mins) examination
Hello everyone, my wife (Jackie) was diagnosed with MSA after an initial diagnosis of PSP on 29th Jan 2023. Now the Neurologist is trying to say her condition is Perplexed and that Wilsons disease is a possibility. She's been to have her eyes tested at Vision Express and after a thorough (90mins) examination
Derek1uk
in
Multiple System Atrophy Trust
1 year ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
New to endometriosis
My periods also changed from 28 day cycle to 33,35, I also had pelvic pain and shooting pain I would have bad period pains and lower back
pain
aswell as
leg
pain
but thought this was all normal part of period.
My periods also changed from 28 day cycle to 33,35, I also had pelvic pain and shooting pain I would have bad period pains and lower back
pain
aswell as
leg
pain
but thought this was all normal part of period.
Starfish44
in
Endometriosis UK
11 months ago
Topical Treatment for RA Joint Pain
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
Aporiac
in
NRAS
1 year ago
Gabapentin and fibromyalgia
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
lynn_lunn
in
Fibromyalgia Action UK
1 year ago
Advice for self-injecting.
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB
in
Pernicious Anaemia Society
1 year ago
RLS and Parkinsons
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
Graham3196
in
Restless Legs Syndrome
1 year ago
Severe RLS for 40 years
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
Happygrandmother
in
Restless Legs Syndrome
1 year ago
Migraines!
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Blackberrywine
in
NRAS
1 year ago
3 years later
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
Sandwichesandchips
in
ICUsteps
1 year ago
pain deep in vagina after peeing
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
Cavapoochon7
in
Endometriosis UK
1 year ago
RLS nightmare
I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nights are ok but it’s the daytime attacks that are becoming a nightmare now. I just did a 4 hour flight to Europe and despite being early morning, within half an hour my legs were going ballistic. I spent the next 3 1/2 hours
I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nights are ok but it’s the daytime attacks that are becoming a nightmare now. I just did a 4 hour flight to Europe and despite being early morning, within half an hour my legs were going ballistic. I spent the next 3 1/2 hours
Jimbartlett
in
Restless Legs Syndrome
1 year ago
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