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Going Crazy!!!!!!!!!!!
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
lalake
in
Restless Legs Syndrome
6 years ago
Supplement breakthrough but now what??
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
cnote1213
in
Restless Legs Syndrome
6 years ago
Tramadol efficiency
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Pam34
in
Restless Legs Syndrome
6 years ago
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Newborn and chickenpox
Can newborn babies catch chickenpox? My baby is 3 weeks old tomorrow and my cousin has been round with her little girl today and has just rang me to say she’s got chickenpox - she’s only noticed when she’s got her changed - I’m panicking now my baby is gonna catch them!
Can newborn babies catch chickenpox? My baby is 3 weeks old tomorrow and my cousin has been round with her little girl today and has just rang me to say she’s got chickenpox - she’s only noticed when she’s got her changed - I’m panicking now my baby is gonna catch them!
Shanks_21
in
Pregnancy and Parenting Support
6 years ago
Question about RLS and meds.
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
tuckbo
in
Restless Legs Syndrome
6 years ago
Surgery Tomorrow
Hi fellow warriors, I’m planned to have a total abdominal hysterectomy tomorrow & I was already feeling anxious etc but now tonight I’ve discovered the biggest horrible boil on the top of my inner thigh. Thanks to Lupus I do often suffer with boils on my thighs but why now???? It’s going to be so embarrassing
Hi fellow warriors, I’m planned to have a total abdominal hysterectomy tomorrow & I was already feeling anxious etc but now tonight I’ve discovered the biggest horrible boil on the top of my inner thigh. Thanks to Lupus I do often suffer with boils on my thighs but why now???? It’s going to be so embarrassing
tweetyburd
in
LUPUS UK
6 years ago
SO MUCH BETTER!!
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hidden
in
Restless Legs Syndrome
6 years ago
Effects of meningitis
Does people with the TB meningitis get (chronic granulomatous lymphadenitis) swelling in the neck forming pus. Does it will cure on it's own? Or it needs a surgery
Does people with the TB meningitis get (chronic granulomatous lymphadenitis) swelling in the neck forming pus. Does it will cure on it's own? Or it needs a surgery
Vissusaila
in
Meningitis Now
6 years ago
Restless leg relief
Please anyone with restless leg try potassium citrate and vitamin B1 you’re symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief it’s a vitamins deficiency. Worth a try
Please anyone with restless leg try potassium citrate and vitamin B1 you’re symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief it’s a vitamins deficiency. Worth a try
Karenfried
in
Restless Legs Syndrome
6 years ago
Clonazepam and lyrica
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
Katerina22
in
Restless Legs Syndrome
6 years ago
Specialist recommendations
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Goodfairy
in
Restless Legs Syndrome
6 years ago
Viral Meningitis
I had viral meningitis with Influenza B in March 2018. I have had a horrible headache everyday since then. I also have major cognitive problems and I have trouble walking. I also was diagnosed with Chiari malformation but the doctor said I had it since childhood and that wasn’t the problem. I am off
I had viral meningitis with Influenza B in March 2018. I have had a horrible headache everyday since then. I also have major cognitive problems and I have trouble walking. I also was diagnosed with Chiari malformation but the doctor said I had it since childhood and that wasn’t the problem. I am off
buttons2ct
in
Meningitis Now
6 years ago
All about cannabis
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
Parminter
in
Restless Legs Syndrome
6 years ago
Restless legs
Hi I find that only when I take Tylenol for my headache I have the restless legs at night ... I took 3 around 12:30 pm and now it's almost 2 am and I can't sleep did any one notice the same ?
Hi I find that only when I take Tylenol for my headache I have the restless legs at night ... I took 3 around 12:30 pm and now it's almost 2 am and I can't sleep did any one notice the same ?
Ty77
in
Restless Legs Syndrome
6 years ago
Viral meningitis/ encephalitis
I am now age 60, contracted viral meningitis age 35, was diagnosed and immediately sent to specialist hospital, 6weeks in Coppetts Wood, (no longer there) then another 6weeks in different hospital, what I've been reading a lot ,is people going back to work so soon. I was under release care, though had
I am now age 60, contracted viral meningitis age 35, was diagnosed and immediately sent to specialist hospital, 6weeks in Coppetts Wood, (no longer there) then another 6weeks in different hospital, what I've been reading a lot ,is people going back to work so soon. I was under release care, though had
Hexy
in
Meningitis Now
6 years ago
Cold Sores
Hi , Has anyone had a cold sore in the eye. Very painful. Lasts about a week. Take painkillers and zovirax . Have been occurring for past 6 years . Wondering what brings it on. Diagnosed pbc -aih 9 years go
Hi , Has anyone had a cold sore in the eye. Very painful. Lasts about a week. Take painkillers and zovirax . Have been occurring for past 6 years . Wondering what brings it on. Diagnosed pbc -aih 9 years go
chasper
in
PBC Foundation
6 years ago
Tried most everything
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
tac2014
in
Restless Legs Syndrome
6 years ago
getting no sleep after stopping miripex
now I understand why so many of my friends here said an opiate of some kind was a necessity. As I weaned off of miripex, each time I lowered the dose I had a couple of days of trouble. But now that i'm off it altogether, my symptoms are bad in legs and arms. Baths are no longer helping. Any idea
now I understand why so many of my friends here said an opiate of some kind was a necessity. As I weaned off of miripex, each time I lowered the dose I had a couple of days of trouble. But now that i'm off it altogether, my symptoms are bad in legs and arms. Baths are no longer helping. Any idea
Belsheart
in
Restless Legs Syndrome
6 years ago
Mouth Sores from Pegasys
Any suggestions for treating mouth sores? I have been taking Pegasys since November, and recently started getting mouth sores. It seems to occur weekly, and lasts for about 3 days, then resolves on its own. Thank you for any advice on how to manage the days when it flares up.
Any suggestions for treating mouth sores? I have been taking Pegasys since November, and recently started getting mouth sores. It seems to occur weekly, and lasts for about 3 days, then resolves on its own. Thank you for any advice on how to manage the days when it flares up.
clevemic
in
MPN Voice
6 years ago
New to group....need advice
Hi, I am new to this site. I just want to thank everyone for sharing their experiences, I don't know anyone who suffers from RLS like I do, so its nice to know there are others that understand. I have had RLS since I was 13 in my legs and left arm. I had huge battles with my GP throughout my childhood
Hi, I am new to this site. I just want to thank everyone for sharing their experiences, I don't know anyone who suffers from RLS like I do, so its nice to know there are others that understand. I have had RLS since I was 13 in my legs and left arm. I had huge battles with my GP throughout my childhood
VickiAW
in
Restless Legs Syndrome
6 years ago
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